Making research meaningful and accessible to patients: Why patient and public involvement is crucial to designing effective health research studies
Date Monday 6th March 2017
Time 3:00 – 4:30 pm
Location EB708, Executive Business Centre, 89 Holdenhurst Road, Lansdowne Campus, Bournemouth University
As part of the Public and Patient Involvement (PPI) in Research seminar series
Dr Jo Adams is a Professor of Musculoskeletal Health within the Faculty of Health Sciences, University of Southampton. Jo is an occupational therapist by background. She has led both national and international applied translational research programmes related to developing effective self- management approaches for individuals with musculoskeletal diseases. Her research is widely published and she leads collaborative partnerships to improve the translation of research into NHS clinical practice. She is also an experienced educator having taught health care professionals at pre and post registration level for over 20 years
Book your place now: https://patientandpublicinvolvement.eventbrite.co.uk
Refreshments are available and there will be plenty of time for discussion at the seminar end. Any questions please contact:
Dr James Gavin
Phone +44 (0)1202566303
Focus groups in open air in rural Nepal, (c) Sheetal Sharma
Congratulations to Sheetal Sharma, postgraduate student in the Centre for Midwifery, Maternal & Perinatal Health (CMMPH) whose latest paper on the process of the research in her PhD fieldwork was accepted today by the Journal of Asian Midwives . Sheetal used an innovative mixed-methods evaluation which was applied to a long-running maternity intervention in rural Nepal. The intervention has been supported for nearly seven years by Green Tara Trust, a Buddhist charity based in London. Sheetal’s supervisors are supervisors are Prof. Vanora Hundley, Prof. Edwin van Teijlingen, Dr. Catherine Angell (all in CMMPH) and Prof. Padam Simkhada, who is Visiting Faculty in the Faculty of Health & Social Sciences and based at Liverpool John Moores University.
This paper is part of a larger body of health research work conducted by CMMPH in Nepal.
Sharma, S., Simkhada, P., van Teijlingen, E., Stephens J, Hundley, V., Angell, C. (2017) Evaluation of Maternity Care Intervention in Rural Nepal: Lessons learnt, Journal of Asian Midwives (accepted Jan. 2017).
We had the honour to speak to Parliamentarians (MPs) in Kathmandu today (December 29th) as part of workshop to promote evidence-based policy-making. The workshop was organised by a consortium of three UK universities: Liverpool John Moores University (LJMU), Bournemouth University and the University of Sheffield. Fund the Fund supported this Advocacy Workshop with Parliamentarians and Policy Experts on HV and AIDS (Discussion series IV) in the Himalayan Hotel in Lalitpur in Kathmandu Valley. The workshop was attended by some 30 MPs from all major parties and three or four former ministers. The drive to increase evidence-based policy-making in Nepal is led by Dr. Gangalal Tuladhar MP.
Prof. Padam Simkhada from LJMU and BU Visiting Professor addressed ‘key challenges on evidence-based health care delivery in Nepal’ and Prof. Edwin van Teijlingen from the Faculty of Health & Social Sciences compared selected different health-care systems in high-income countries.
Congratulations to CMMPH’s Donna Wixted, Joint BU-Portsmouth Hospitals NHS Trust, doctoral student who just had a paper published in MIDIRS. The paper is titled ‘Drinking in pregnancy: poor guidelines or lack of evidence?’ The paper reports a very lively debate at the 2016 BU Festival of Learning which was a debate around the motion: “Advising pregnant women to avoid drinking alcohol during pregnancy is symptom of the Nanny State and another step towards the medicalisation of childbirth”. The debate was chaired by CMMPH’s Prof. Vanora Hundley.
The Festival of Learning event grew out of Donna’s PhD research. Donna’s PhD is jointly supervised by Dr. Greta Westwood of Portsmouth Hospitals NHS Trust & the University of Southampton and FHSS academics Dr. Liz Norton and Prof. Edwin van Teijlingen.
Wixted, D., Hundley, V., Norton, L., van Teijlingen, E., Westwood, G. (2016) Drinking in pregnancy: poor guidelines or lack of evidence? MIDIRS Midwifery Digest 26(4): 462-65.
We have written in many previous BU blogs about progress of our THET-funded project in southern Nepal (e.g. here AND here ). Today’s blog reflects on the use on BU’s unique FUSION approach in our project ‘Mental Health Training for Maternity Care Providers in Nepal‘.
Our BU-led project brings highly experienced health professionals, such as midwives, health visitors or mental health nurses, to Nepal to work as volunteer trainers. The training is aimed at community-based maternity care practitioners and addresses key mental health issues relevant to pregnancy and for new mothers and offers the required communication skills. These health professionals will bring their experience as health care providers as well as trainers in the field of mental health and maternity care/midwifery, mental ill-health prevention and health promotion. They volunteer for two to three weeks at a time to design and deliver training in southern Nepal.
The Centre for Midwifery & Maternal Health (CMMPH) collaborates in this project with Liverpool John Moores University (LJMU), the Department of Health, and Physical & Population Education at Nepal’s oldest university Tribhuvan University’s (TU). The project is supported in the field by a local charity called Green Tara Nepal. Our project is part of the Health Partnership such as Nepal. HPS itself is funded by the UK Department for International Development and managed by THET (Tropical and Health Education Trust).
Our maternal mental health project is a good example of BU’s FUSION approach as it combines EDUCATION (through the training of Auxiliary Nurse-Midwives in Nepal) by UK volunteers (representing PRACTICE) through an intervention which is properly evaluated (representing RESEARCH) is a perfect example of BU’s FUSION in action. Moreover, the project will be partly evaluated by FHSS’s Preeti Mahato as part of her PhD thesis research. This PhD project is supervised by Dr. Catherine Angell (CEL & CMMPH), BU Visiting Professor Padam Simkhada (based at LJMU) and CMMPH’s Prof. Edwin van Teijlingen.BU’s focus on the FUSION of research, education and professional practice is a unique variant of the way UK universities (and many abroad) blend academic teaching, research and scholarship. FUSION is a key concept derived from BU’s strategic Vision & Values).
Prof. Edwin van Teijlingen
Congratulations to Dr. Pramod Regmi as the lead author of the paper ‘Informed consent in health research: challenges and barriers in low-and middle-income countries with specific reference to Nepal‘ . Informed consent is a process whereby potential participants are genuinely informed about their role, risk and rights before they are enrolled in the study. Thus, ethics committees in most countries require ‘informed consent form’ as part of an ethics application which is reviewed before granting research ethics approval. Despite a significant increase in health research activity in low-and middle-income countries (LMICs) in recent years, only limited work has been done to address ethical concerns.
Most ethics committees in LMICs lack the authority and/or the capacity to monitor research in the field. This is important since not all research, particularly in LMICs region, complies with ethical principles, sometimes this is inadvertently or due to a lack of awareness of their importance in assuring proper research governance. With several examples from Nepal, this paper reflects on the steps required to obtain informed consents and highlights some of the major challenges and barriers to seeking informed consent from research participants. The authors offer some recommendations around how can we can promote and implement optimal informed consent taking process.
The paper will appear later this year in the international journal Developing World Bioethics (publisher: Wiley). Finally, just out of interest five out of six of the authors are graduates of the University of Aberdeen!
Prof. Edwin van Teijlingen
- Regmi, P.R., Aryal, N., Kurmi, O., Pant, P.R., van Teijlingen, E., Wasti, P.P. (2016) Informed consent in health research: challenges and barriers in low-and middle-income countries with specific reference to Nepal, Developing World Bioethics (Online HERE )
This week we had our latest planning meeting for the BU-led and THET-funded project in Nepal. The project has been running for over a year (following a six-month delay due to the terrible 2015 earthquake in Nepal). The project brings highly experienced UK health volunteers to train local community-based maternity care practitioners about the key mental health issues in pregnancy and after birth. The Centre for Midwifery & Maternal Health (CMMPH) works in collaboration with Liverpool John Moores University (LJMU), the Department of Health, Physical and Population Education at Nepal’s largest university Tribhuvan University’s (TU). Our project is part of the Health Partnership Scheme (HPS), which funds health partnerships to carry out capacity-building projects in low-income countries, including Nepal. HPS itself is funded by the UK Department for International Development and managed by THET.
Halfway through the project we had an update meeting at Tribhuvan University in Kathmandu to discuss and plan the second half of the project which runs until the spring in 2017. The maternal mental health project is a good example of BU’s FUSION approach as it combines Education (through the training of Auxiliary Nurse-Midwives) by UK volunteers (representing the Practice-element of FUSION) in an intervention that is Research-based in both its design and evaluation. The next group of UK volunteers is due to go out to southern Nepal in September 2016. The photo on the top shows one of the UK volunteers (a midwife from Aberdeen) in action with the aid of a Nepali translator during the latest training session in Nawalparasi in May 2016.
Prof. Edwin van Teijlingen (CMMPH) and Prof. Padam Simkhada (LJMU & BU Visiting Faculty)
Congratulations to Dr. Sarah Collard on her latest paper ‘The psychosocial impact of exercising with epilepsy: A narrative analysis’ in Epilepsy & Behavior. The paper offers valuable insight into the psychosocial benefits of and barriers to exercising with epilepsy and draw attention to the individual differences in how a person with epilepsy copes with uncontrolled seizures and their impact on his/her exercise routine. This knowledge can lead to future research in exploring how a person with epilepsy can overcome these barriers to exercise and encourage more people with epilepsy to enjoy the benefits of exercise.
Prof. Edwin van Teijlingen
Congratulations to Preeti Mahato in the Centre for Midwifery, Maternal & Perinatal Health (CMMPH) on the publication of a paper based on her Ph.D. research. Her paper ‘Birthing centres in Nepal: Recent developments, obstacles and opportunities’ can be found in the June 2016 edition of the Journal of Asian Midwives (JAM) . All articles in JAM are Open Access to ensure midwives and researchers in the poorest parts of Asia can freely access the scientific articles in the journal.
This literature review was appraised the relevant literature on birthing centres in Nepal, South Asia, and other similar settings. Preeti and her co-authors concluded that birthing centres in Nepal have the potential to improve both (a) the institutional delivery rate; and (b) the proportion of births that benefit from the presence of a skilled birth attendant (SBA). However, accessibility, socio-demographic characteristics, and cultural factors act as barriers to pregnant women attending birthing centres and hospital facilities.
Preeti’s Ph.D. is supervised by Dr. Catherine Angell and Prof. Edwin van Teijlingen in CMMPH and Prof. Padam Simkhada at Liverpool John Moores University. Padam is also Visiting Faculty at the Faculty of Health & Social Sciences (FHSS).
- Mahato, P., van Teijlingen, E., Simkhada, P., Angell, C. (2016) Birthing centres in Nepal: Recent developments, obstacles and opportunities, Journal of Asian Midwives 3(1): 17-30.
Today BU staff and post-graduate students published our latest diabetes paper. In the International Journal of Food, Nutrition and Public Health (IJFNPH) publish by the World Association for Sustainable Development (WASD) you’ll find ‘Diabetes prevention and management in South Asia: a call for action‘.
The lead BU author is Dr. Pramod Regmi. he is joint by Faculty of Health & Social Sciences (FHSS) PhD student Ms. Folashade Alloh as well as Prof. Edwin van Teijlingen of the Centre for Midwfiery, Maternal & Perinatal Health (CMMPH). Further national and international co-authors are: Dr. Om Kurmi based at the Nuffield Department of Population Health, University of Oxford; Dr. Nirmal Aryal, from the Department of Medicine, University of Otago, New Zealand; Dr.Puspa Raj Pant based at the Centre for Child and Adolescent Health, University of the West of England; and Amrit Banstola based in the Faculty of Health and Applied Sciences, also at the University of the West of England.
The paper can be found here! Please note, you need to be a WASD member to login and download this paper. Once you are logged in you will see a ‘Download’ button in the box above. If you do not have a login, you can register to join WASD free of charge.
The week saw the publication of a new book by Elsevier (June 9th) Health Through Social Media which contains a chapter by FHSS staff Drs Carol Bond and Osman Ahmed called ‘Patient Empowerment Through Social Media’. Carol and Osman have a wide-ranging experience in researching and publishing about e-health, m-health and social media. They co-authored this topical chapter with a colleague in Australia.
Prof. Edwin van Teijlingen
BU Humanisation Conference 21st June 2016
Venue: Room EB708, Executive Business Centre, 89 Holdenhurst Road, BH8 8EB
Please find the Programme for the Humanisation conference on the 21st June 2016 attached.
Please feel free to pass the information on to others internal and external to the university (academic and practice) who you feel may be interested
The conference is being run at no cost and so you need to make your own arrangements for lunch. Let Dr. Caroline Ellis-Hill ( firstname.lastname@example.org ) know by the 15th June if you wish to attend .
If you only want to attend for part of the day, please state which part of the day you’d like to attend.
||Dr Caroline Ellis-Hill
||Humanisation of the BU Generic Student Assessment Criteria.
||Dr Sean Beer
||Perceptions of the authenticity of food: a study of residents in Dorset (UK)
||Prof Ann Hemingway
||Innovative routes to Wellbeing: Equine Assisted interventions
||Sharing human concerns: utilising an embodied interpretative approach to convey findings from a descriptive phenomenological study
||Dr Carole Pound
||Humanising care: translating theory into practice in stroke care
||Rutherford and Dr. Emer Forde
||The Rutherford Introspective Photography: Promoting self-reflection and wellbeing of GP trainees through photography.
||Free time Please see information about local venues for lunch
||Dr Vanessa Heaslip
||How phenomenology enables insight into the Human lives of Gypsy Roma Travellers’
||Experiencing the Humanisation Framework together
||Dr Jan Mosja
||Chaplaincy at the bedside. Learning from Buddhist chaplains and their contributions to the humanisation of health care.
||Humanising and the Care Act well-being principle
||Dr Mary Grant and Dr Catherine Lamont Robinson
||HeART of Stroke: feasibility study of an Art & Health intervention following a stroke
||Thanks, Tea and Close
Congratulations to FHSS PhD student Sheetal Sharma on her latest paper . The paper ‘Measuring What Works: An impact evaluation of women’s groups on maternal health uptake in rural Nepal’ appeared this week in the journal PLOS One. Sheetal’s innovative mixed-methods approach was applied to a long-running maternity intervention in rural Nepal. The paper concludes that community-based health promotion in Sheetal’s study had a greater affect on the uptake of antenatal care and less so on delivery care. Other factors not easily resolved through health promotion interventions may influence these outcomes, such as costs or geographical constraints. The evaluation has implications for policy and practice in public health, especially maternal health promotion.
- Sharma, S., van Teijlingen, E., Belizán, J.M., Hundley, V., Simkhada, P., Sicuri, E. (2016) Measuring What Works: An impact evaluation of women’s groups on maternal health uptake in rural Nepal, PLOS One 11(5): e0155144 http://journals.plos.org/plosone/article?id=10.1371%2Fjournal.pone.0155144
129 Fellows awarded a prestigious new Churchill Medallion at a London award ceremony
Anita Immanuel, PhD student in FHSS was presented with a newly designed Churchill medallion at a prestigious biennial award ceremony in London this week (Wednesday, 18th May), after successfully completing her Winston Churchill Travelling Fellowship.
Anite was presented with the stunning blue cloisonné enamelled silver Churchill medallion by its designer and Guest of Honour, Professor Brian Clarke, who is a world renowned architectural artist. Professor Clarke presented 129 Fellows with their medallions at a ceremony in Church House, in Central London. Church House has significant Churchillian associations as during the Blitz, Winston Churchill requisitioned Church House as a makeshift Houses of Parliament after the originals had been damaged by bombing.
As part of her Fellowship and linked to her PhD research, Anita travelled to Australia and Canada. Her PhD reserach examines the quality of lives of adults who have survived cancer of the blood or lymphatic system. Patients with haematological cancers have frequently reported lack of care-coordination as an unmet need following their intensive treatment. Anita’s Fellowship has been outlined in a previosu BR Research Blog (click here!).
Speaking about the Fellowship, Prof. Stephen Tee (Executive Dean FHSS) said: “These Winston Churchill Travelling Fellowships provide opportunities for UK citizens to go abroad on a worthwhile project, enriching their lives through their global experiences. We are proud of Anita’s PhD research focusing on the quality of life in people who have survived cancer. This Fellowship has also benefited Anita and her colleagues at the Royal Bournemouth and Christchurch Hospitals NHS Foundation Trustwhere she works as specialist nurse in this field”.
Anita’s PhD is supervised by: Dr. Jane Hunt and Prof. Edwin van Teijlingen (both FHSS) and Dr. Helen McCarthy, Anita’s clinical Ph.D. supervisor.
In 2017 The Winston Churchill Memorial Trust will be awarding 150 Travelling Fellowships. This will directly support British citizens who want to travel overseas to gain knowledge, experience and best practice to benefit others in their UK professions and communities, and society as a whole. The Winston Churchill Memorial Trust was established shortly after Sir Winston’s death in 1965, as his national memorial and living legacy. Since then it has awarded over 5,250 Travelling Fellowships. The application process for travel in 2017 is now open! Visit www.wcmt.org.uk for more details, or to apply before 5pm on 20th September 2016, for travel in 2017.
BU PhD student Anita Immanuel has been invited to speak at the 4th Annual Saudi Hematology/Oncology Nurses Meeting in Jeddah, Saudi Arabia this Saturday (May 7th). Anita’s Ph.D. study examines the quality of lives of adults who have survived cancer of the blood or lymphatic system. Patients with haematological cancers have frequently reported lack of care-coordination as an unmet need following their intensive treatment. With the increase in the number of cancer survivors and possible long-term side effects that could impact on the quality of life, it is important to have (a) good post-treatment follow up; and (b) seamless coordination between health care providers.
Dr. Helen McCarthy (The Royal Bournemouth and Christchurch Hospitals NHS Foundation Trust), Anita’s clinical Ph.D. supervisor at congratulated her on this invitation. Dr. McCarthy said: “This talk in Saudi Arabia gives Anita the opportunity to present some of her preliminary Ph.D. findings.”
FHSS’s Dr. Jane Hunt commented: “Anita’s research is addressing a growing issue with more people living longer with cancer. Her Ph.D. identifies key quality of life issues and helps us to understand the needs surrounding survivorship care better.”
Prof. Edwin van Teijlingen
In two days time the first ever National Conference on Adolescent Health and Development in Nepal starts in Kathmandu. BU has a joint poster at this conference on the topic of Community-Based Menstrual Hygiene Promotion in Rural Nepal. The poster reports on a project led by Ram Chandra Silwal.
The project is an international collaboration between Green Tara Nepal, BU Visiting Fellow Prof. Padam Simkhada (representing Liverpool John Moores University), the University of Tokyo and the Centre for Midwifery, Maternal and Perinatal Health (CMMPH) in BU’s Faculty of Health & Social Sciences.
Prof. Edwin van Teijlingen
- Silwal, R.C., Pradhan, S., Sharma, A., Simkhada, P., van Teijlingen,E., Jimba, M. (2016) ‘Community-Based Menstrual Hygiene Promotion in Rural Nepal’ poster at First National Adolescent Health & Development Conference held in Kathmandu, Nepal, 2-3 May 2016.
This week saw the publication of a new paper co-written by BU staff in the Sociological Bulletin. This is the first paper comparing Indian and Nepali Maoist rebels providing health services and health promotion to the communities under their influence. It presents the key provisions either made by rebel health workers themselves or by putting political pressure on government health workers to deliver better services in the areas controlled by rebels. Prof. Edwin van Teijlingen’s co-authors are based in India and Nepal. Prof. Gaurang R. Sahay is based at the Centre for Study of Developing Societies, Tata Institute of Social Sciences, Mumbai, India, whilst Bhimsen Devkota is Professor in Health Education, Tribhuvan University, Nepal.
This sociological paper is based on a mixed-method approach comprising 15 interviews and a questionnaire survey with 197 Nepalese Maoist health workers and a secondary analysis of policy documents and other published materials on the Maoist health services of India. The paper suggests that rebel health services in India and Nepal followed a fairly similar approach to what and how they offered health care services to local populations. Maoists becoming a government party changed the political landscape for the rebel health workers in Nepal. However, not incorporating the Maoist rebel health workers into the government health system was a missed opportunity. There are lessons that India and Nepal can learn from each other. Should the Maoist rebels and the Government of India come to an agreement, potential for rebel health workers to be integrated in the official health care system should at least be considered.
The paper benefitted from an earlier review through eBU: Online Journal. The feedback from the eBU: Online Journal’s reviewers helped shape and polish the paper before submission to the Sociological Bulletin.
Edwin van Teijlingen
- Sahay, G., Devkota, B., van Teijlingen, E.R. (2016) Rebel Health Services in South Asia: Comparing Maoist-led Conflicts in India & Nepal, Sociological Bulletin 65(1):19-39.
Dr. Jenny Hall in CMMPH published her latest article ‘Facilitating learning of spirituality in midwifery’ in the academic journal Spiritual Care . She highlights that there has been considerable discussion in the literature around spirituality at the end of life but little relating to childbirth. Perhaps because of this facilitation of learning around the subject is limited. The aim of this article is to raise awareness of these issues and promote future discussion and research.
Prof. Edwin van Teijlingen
Hall, J. (2016) Facilitating learning of spirituality in midwifery, Spiritual Care 5(2): 81–88. DOI: 10.1515/spircare-2016-0021,