Members from the Ageing and Dementia Research Centre were invited to present at the Wessex Brain Ageing and Dementia Research meeting on 4th February, St Mary’s Stadium, Southampton. Hosted by IDeAC, NIHR CRN and ARC Wessex, the event showcased dementia research in Wessex, linking dementia researchers across Wessex and grow the network for clinical trials.
PGR Raysa ElZein presented a poster on research on dietary fat interventions in cognitive impairment and older people, Dr Michele Board on research using the ‘A Walk Through Dementia’ app, Dr Samuel Nyman presented his research on Tai Chi (The TACIT Trial) for people with dementia and Prof Jane Murphy gave an overview of the ADRC’s research and a workshop on PPI and dementia research with Dr Michelle Heward. It was a great opportunity to share research and grow opportunities to collaborate on projects across Wessex and cross disciplines with academics and stakeholders attending.
Both Dr Susan Dewhurst and Prof Jane Murphy from BU’s Ageing and Dementia Research Centre were invited to speak at the 27th Managing Osteoporosis conference 2019 on 9-10th December 2019 at RBCH alongside a number of high profile speakers from across the UK. There were over 200 delegates from across the South including consultants, nurses and other Allied Health Professionals. Susan spoke about ‘Exercise for Fall Prevention: What Works?’, whilst Jane updated delegates on ‘Diet, Nutrition and Ageing’.
The talks garnered a lot of interest with new insights for bone health and managing osteoporosis and opportunities for collaboration.
Stories to remember in Bournemouth
It has been wonderful to host the third transnational project meeting in Bournemouth bringing together the team from Bulgaria, Greece, Ireland, Romania, and the UK (pictured) to advance the Story2Remember ERASMUS+ project: Using drama and storytelling in dementia care.
Following an introduction from Professor Jan Wiener about the work of the Ageing and Dementia Research Centre at Bournemouth University, Andreea presented on activities and results from year one and talked the team through next steps for year two.
Intellectual Output 2: Story2Remember
Each team presented their results and outputs from delivering Story2Remember for both phase 1, delivering Story2Remember to people with dementia and phase 2, delivering the ToT training to professionals in the dementia field. The overall results across all the teams were extremely positive for both phase 1 and 2. Feedback will be used to finalise the Story2Remember handbook.
Intellectual Output 3: The Toolkit
Collaborative discussions brought about positive actions to set out our next steps for the toolkit and its layout and structure agreeing for both website, PDF and paper copy it should:
- Focus on improving communication between carer and person with dementia
- Be user friendly
- Be easy to navigate and use
- Be a supportive platform for carers
The key focus from now is to build the content for the toolkit with the aim of piloting to users in March 2020.
TPM3 was an extremely proactive and collaborative meeting with celebration on successful delivery of IO2 and tangible next steps agreed for IO3.
By Danielle Wyman (Research Assistant for ADRC, Bournemouth University).
Facebook page: https://www.facebook.com/STORY2REMEMBER.EU/
Prof Jane Murphy (Ageing and Dementia Research Centre, ADRC) was invited to speak at the All Party Parliamentary Food and Health Forum (22nd October 2019) on the topic of malnutrition. Chaired by Sir David Amess MP, Jane spoke about nutrition related problems in older adults including people living with dementia, food and hydration problems in hospitals and tackling malnutrition more effectively across health and social care. She also shared research informed resources that help identify malnutrition including the ‘Nutrition Wheel’ and the Eating and Drinking Well with Dementia guides for care staff and family carers and friends produced by the ADRC. BU PhD student Gladys Yinusa (supervised by Dr Janet Scammell, Prof Jane Murphy and Dietetic Manager Grainne Ford) attended the meeting. Jane raised awareness of her research on food and nutritional care at Royal Bournemouth and Christchurch Hospitals Trust.
Dr Trevor Smith, President of British Association for Parenteral & Enteral Nutrition (BAPEN) presented preliminary findings of the malnutrition screening survey as part of its work during Malnutrition Awareness Week 2019 14-20th October as well as Declan O’Brien, Director General, British Specialist Nutrition Association who spoke about the costs and health impacts of malnutrition.
There was much discussion and important concerns were raised by Eleanor Smith MP, Baroness Walmsley, Baroness Greengross as well as representatives from member organisations including the British Dietetic Association, Association for Nutrition and other attendees. MPs attending offered their help to take forward some of key issues discussed including the need for public health policy to recognise the nutritional needs of older people and effective malnutrition screening and treatment policy. Much to follow up on and real scope for impact.
The minutes will be available for public view on the APP Food and Health Forum webpage.
The Nutrition Resource of the Year is made up of four resources called Nutrition and Dementia Care: A toolkit for health and care staff. The toolkit is to provide freely available resources to deliver person-centred nutritional care in the area of dementia. The toolkit has been used all over the UK and overseas, as far afield as Australia and is the WINNER of the 2019 CN Award for Nutrition Resource of the Year!
Both Professor Jane Murphy and Gill Hooper represented the team by attending the 2019 CN Award ceremony last Thursday 29th September in London.
In the photo: Gill Hooper (Research Assistant) and Professor Jane Murphy (Professor of Nutrition and Co-Director of ADRC)
The team that produced the toolkit includes Professor Jane Murphy, Gill Hooper (linked with the Greater Manchester Nutrition and Hydration programme), Dr Joanne Holmes and Caroline Jones.
In the photo: Caroline Jones, Dr Joanne Holmes and Professor Jane Murphy
The toolkit comprises:
- Eating and Drinking Well: Supporting People Living with Dementia workbook
- Eating and Drinking Well Training Video
- Eating and Drinking Well Nutrition leaflet
- Eating and Drinking Well with Dementia: A Guide for Care Staff
It is available to download for free on our specific ADRC training page, please visit: https://www.bournemouth.ac.uk/research/centres-institutes/ageing-dementia-research-centre/eating-drinking-well-dementia-toolkit.
We have just launched our new Eating and Drinking Well with Dementia: A Guide for Family Carers and Friends which will be available to download from the ADRC training page soon.
Please visit our training page and spread the word of our training resources.
The CN Awards* provide the chance for all readers, advertisers and contributors of CN
Magazines to come together to recognise the achievements of those whose great work
has made a significant difference within the nutrition industry – whether an individual,
group or organisation. For further information about the CN Awards, visit: nutrition2me.com/cn-awards
*The annual CN Awards were launched in 2010 by Complete Media & Marketing Ltd. (CM2) – the publishers of Complete Nutrition (CN)
Magazines. CM2 do not endorse any particular individual’s, group’s, organisation’s or company’s products, services, resources, views or
opinions. For further details on the CN Awards, visit: nutrition2me.com/cn-awards
Stories to remember in Thessaloniki
It has been wonderful to bring together the team from Bulgaria, Greece, Ireland, Romania, and the UK (pictured) within the second transnational project meeting from Thessaloniki, 23-24 May 2019, to advance the Story2Remember ERASMUS+ project: Using drama and storytelling in dementia care.
Collaborative discussions brought about positive actions to set out our next steps including:
- actions for disseminating Intellectual Output 1: the booklet.
- agreement for our evaluation process and next steps of how we will capture the impact of the ‘Story2remember’ training program and workshops.
- a timeline for piloting the ‘Story2remember’ training, delivery and data collection.
- a more cohesive outlook and next steps on how we can take forward Intellectual Output 3: the toolkit.
We also discussed about the peer-review of the first Intellectual Output achieved, the booklet in creative drama and storytelling for practitioners and further impact in the field and future project activities. The booklet is aimed at dementia practitioners and provides an overview of how creative drama and storytelling are being used within the dementia care field and the benefits they may have for the well-being of people living with dementia and their care partners. It is wonderfully designed and will be key tool to bring about opportunities for our communities to engage with this exciting project. Thank you to everyone for their input and a special thank you to Dr. Ben Hicks for creating this dynamic and engaging booklet which personifies this project. We look forward to sharing the booklet with everyone.
We were honoured to have two enthusiastic and passionate guest speakers whose research focuses on using creative arts to enhance wellbeing for people living with dementia connected to Alzheimer Hellas. Firstly, Professor Magda Tsolaki talked about the benefits for people living with dementia linked to their research using non-pharmacological interventions involving creative arts and art therapy. Professor Tsolaki also spoke about the work they are doing to support carers and caregivers. Secondly, Elena Poptsi talked about the benefits associated with their research using dance and drama therapy for people living with dementia. It was enlightening to have an insight into the exciting research being carried out, which is positively changing the landscape for people living with dementia in Greece.
Gaiety School of Acting, the partner from Ireland shared the latest news on the ‘Story2remember’ creative drama and storytelling pilot workshops, which have initially shown to bring about a sense of inclusion for people living with dementia. We look forward to getting our creative hats on and immersing ourselves in the training from Dublin in August, where we will all receive the ‘Story2remember’ training in using creative drama and storytelling in dementia care.
By Danielle Wyman Research Assistant for ADRC (Bournemouth University).
Facebook page: https://www.facebook.com/STORY2REMEMBER.EU/
The Ageing and Dementia Research Centre’s Amanda Adams and Dina Blagden attended the Annual Alzheimer’s Society Conference at the Oval in London last May 2019, and joined Health Education England (HEE) (Jan Zietara: Head of Programme Delivery – South Health Education England, and Chris O’Connor: Consultant Admiral Nurse/HEE Dementia Fellow Health Education England) on the stand. They spoke to a range of people about the Dementia Education and Learning Through Simulation 2 ( DEALTS 2) training – the ADRC team are currently delivering the training for a second time, across the South of England.
Dina presented a poster on research evaluation of DEALTS 2 from training sessions delivered from the first round, funded by HEE. These resources provide a simulation-based training package for staff working regularly with people living with dementia. The simulation approach aims to facilitate staff to consider experiences from the point of view of a person living with dementia. These resources can be adapted to be relevant in different settings, and have been designed using low key simulation scenarios, with the opportunity to be adjusted to suit the level of resources available.
PhD student Raysa El Zein and Caroline Jones from The Ageing and Dementia Research Centre (ADRC) attended “The Memory Roadshow Event” in Dorchester, hosted by Dorset Healthcare University Foundation Trust. The Memory Roadshow is an event for people who have memory problems, the people who support them and healthcare professionals. It was a mixture of talks, music and information on support services across Dorset. The event was well attended with significant interest for our stall that presented the research and activities from the centre.
Prof Jane Murphy (Ageing and Dementia Research Centre,ADRC) and Dr Janet Scammell (Nursing long-term Health Challenges Research Centre, N4LTH) from FHSS recently visited the University of Genoa, Italy to explore a potential collaboration focused on older people with severe swallowing difficulties.
Academic colleague Dr Milko Zanini from the Health Sciences Department in Genoa is with Janet a member of Phi Mu Chapter of Sigma Theta Tau International Honor Society of Nursing (hosted by Bournemouth University). Working with industry, Dr Zanini and his team have developed a novel nutrition-intervention programme that uses high-quality texture-modified food for people with dysphagia (swallowing problems) and demonstrated significantly improved nutritional, biochemical and functional outcomes in older people living in Italian nursing homes. Dysphagia is a worldwide challenging clinical issue (affecting 8% of the world population), leading to poor health outcomes and quality of life including malnutrition, pneumonia in stroke patients and those affected by cognitive impairment. In nursing homes, older people with dysphagia and cognitive impairment and are also at higher risk of malnutrition, sarcopaenia (muscle loss) and higher mortality, and as such represent a considerable nursing challenge.
Jane and Janet with the ADRC and N4LTH plan to work collaboratively to explore new research around how this innovative intervention could be implemented in UK nursing homes and measure its impact on quality of life and other health outcomes. The potential is to provide a much needed solution to better manage this challenging problem in older people.
2019 NHS Safeguarding Awards
The National Centre for Post-Qualifying Social Work and Professional Practice is pleased to announce that our Director Professor Keith Brown has been recognised for his significant contribution as a safeguarding system leader at the 2019 NHS safeguarding awards.
A full range of our safeguarding publications and workbooks are detailed on the centre website at www.ncpqsw.com
Exciting news from the Ageing and Dementia Research Centre.
We are really excited to announce that our Nutrition and Dementia Toolkit has been shortlisted as part of the 2019 CN Awards.
Please vote for us at https://nutrition2me.com/cn-awards/shortlist/
Deadline is the 22nd July.
The Ageing and Dementia Research Centre (ADRC) in collaboration with Southern Health NHS Foundation Trust and Wessex Academic Health Science Network (AHSN) hosted their end of research project conference on ‘Nutrition Screening in Community Care for Older People’ (INSCOPPe) at the Captain’s Club Hotel in Christchurch. Funded by the Burdett Trust for Nursing, this 2 year project aimed to understand factors that may help or hinder implementation of a new procedure for nutrition screening and embedding it as a routine aspect of care. New tools have been developed to encompass training for wider rollout across the organisation and wider adoption nationally.
At the conference, the outputs and impacts of the research were showcased for delegates and new tools were launched including training videos and new workbook launched ‘Managing malnutrition (as undernutrition) and caring for older people living in the community’. The workbook is aimed at healthcare staff working in community teams. Prof Jane Murphy, Research Project Lead/Co-Lead for the ADRC ‘ Supporting staff to have the skills and knowledge in identifying and treating malnutrition in older people living in the community is vital for organisations to meet their responsibilities for delivering excellent care.’
The speakers were:
- Dame Christine Beasley – Trustee, Burdett Trust for Nursing
- Jane Murphy, Professor of Nutrition, Co-Lead Ageing and Dementia Research Centre, Research Project Lead, Bournemouth University
- Annemarie Aburrow, Dietitian for Wessex Academic Health Science Network and Research Assistant, Bournemouth University
- Kathy Steward, Area Matron, Southern Health NHS Foundation Trust
- Kathy Wallis, Associate Director, Wessex AHSN
- Julia Lake, Southern Health NHS Foundation Trust, Interim Divisional Director of Nursing and Allied Health Professionals
- Alison Smith – BDA Older People Specialist Group chair, Prescribing Support Consultant Dietitian
Thank you to everyone who attended. The conference was a real success and really helped showcase the important work that ADRC continues to do.
“It was such a great day – Thank you for having us over” – Caroline Laidlaw, Advanced Dietitian Mental Health from Sussex Partnership Trust.
The Ageing and Dementia Research Centre would like to extend a big thank you to those that contributed to the research and are grateful to The Burdett Trust for Nursing who provided generous support for the research project.
Please see website for more details about the research and how to access the tools:
The Caring UK conference was held at Bournemouth Football Club’s Vitality Stadium. The doors opened promptly at 08.30 for attendees to visit the various exhibition stands that were on show. This included our very own stand displaying our guides and workbooks around the topic of Eating and Drinking Well with Dementia. These were very popular with attendees and helped showcase the work that the centre does. The stand was run by Caroline Jones (Administrator for the centre) and Dr Michele Board (Co-Director of the centre).
As part of the conference Dr Michele Board was giving a talk about ‘Insight into the Lived experience of Living with Dementia – A Virtual Reality Experience’. Having spoken to a lot of attendees in the morning ahead of Dr Michele Board’s talk in the afternoon, they were all very much looking forward to hearing Michele speak.
Overall, it was a very worthwhile conference to attend having met a variety of useful contacts from the care industry and it also really helped raise awareness of the work that the Ageing and Dementia Centre does.
Image of the Eating and Drinking Well with Dementia: A Guide for Care Staff that was on display.
Image of the Eating and Drinking Well: Supporting People Living with Dementia workbook that was on display.
On the 19th February 2019, Dr Ben Hicks from the Psychology Department and the Ageing and Dementia Research Centre (ADRC), was fortunate to be invited to present two one hour workshops at the Mental Capacity Act Conference in Dorchester. This is the largest conference for social workers and was attended by around 500 delegates. The conference focussed on assessing capacity in individuals and through a range of presentations by judges and lawyers, sort to outline the many challenges that can be faced whilst undertaking this work. Of particular interest, was a Keynote speech by Alex Ruck Keene, a lawyer based in London that specialises in mental capacity and mental health law. He discussed the many ground-breaking cases he has been involved in regarding the Mental Capacity Act and the multiple publications he has authored that have influenced this area of practice. His passion for, and knowledge of the subject was clearly evident, and it is safe to say that the audience could have listened to him for well beyond his allotted hour and a half timeslot.
Whilst the majority of the conference was concerned with assessing capacity in individuals, Ben took a slightly different angle with his workshops and sought to demonstrate how the ADRC enable people with dementia to have the capacity to contribute to research. This includes: positioning them as experts and eliciting their views at all stages of project development; creating safe spaces where they feel comfortable expressing themselves; and adopting flexible research methods that have a ‘moral sensitivity’ to their capabilities and interests. Ben also outlined the multiple ways whereby society constructs barriers that socially exclude people with dementia and prevent their participation in research and wider society, as well as the work that the ADRC are undertaking to address this. One such method is through a Virtual Reality training program that provides participants with an immersive experience of what it may be like to live with the condition. This innovative approach was well received and a number of the workshop delegates have already approached Ben to enquire about delivering the training within their workplace. This highlights the great work that the ADRC are undertaking to empower people with dementia and provide innovative training to healthcare professionals that emphasises the rights and capacity this population has for contributing throughout society. As one delegate wrote during the evaluation feedback:
“More from Dr Ben Hicks and Bournemouth Uni. He gave an interesting presentation on ageing and dementia research and talked about the responsibilities both himself and his colleagues have undertaken in regards to this. I would be interested to hear more from them.”
As part of the ERASMUS+2017 project, Dr Ben Hicks and Irma Konovalova from the Ageing and Dementia Research Centre and Psychology department, hosted a three day meeting with their European partners from Slovenia, Turkey, Greece and Spain. The meetings were held in Brighton from the 11th-13th March 2019 and were the fourth in a series that have taken place over the past 1.5 years in the representative partner countries. During this time, the project has sought to collaborate alongside people with dementia and their care partners to explore how they seek to retain their autonomy throughout their journey with dementia, as well as develop an information portal that can support them with the challenges they may encounter. This fourth meeting presented an opportunity for the project partners to get together, view a prototype of the online information portal and discuss the training they will be delivering to the end-users during May-July 2019.
The fourth meeting is underway
The first day involved discussions about the training processes and the validation measures that could be used to explore its impact on the quality of life for people with dementia and their care partners. Given the varying professional backgrounds of the partners, with both academics and practitioners present, it was unsurprising that these were the liveliest discussions. However, by the end of the day an outcome was reached that satisfied everyone and so all partners headed off for a well-deserved dinner at a local tapas restaurant. Although the discussions had been long, and sometimes fairly heated, everyone remained excited and positive about the final stages of the project.
Experiencing some Spanish culture in Brighton
The concluding two days were a little less emotionally charged, as the partners discussed the implementation of the training program within the different countries as well as the dissemination of the final outputs. The project will conclude in September 2019 and plans are underway to present the findings through: setting up local events within the representative countries; writing one technical and one academic paper for the varied audiences; and delivering presentations at international conferences. So far two conferences have been targeted for 2019: the International MinD Conference “Designing with and for People with Dementia: Wellbeing, Empowerment and Happiness,” held in Germany, and the Open Living Lab Days “Co-creating innovation: scaling up from Local to Global” in Greece. However, given the positive feedback the project has received to date, it is likely that more opportunities for international dissemination will present themselves in the future.
Exciting times await!
By Irma Konovalova
Many congratulations to Dr Michelle Heward, Dr Michele Board, Ashley Spriggs and Pro Jane Murphy from the ADRC for their new publication ‘Design and evaluation protocol for ‘DEALTS 2’: a simulation-based dementia education intervention for acute care settings’ in International Psychogeriatrics.
The team was commissioned by Health Education England (HEE) to develop and evaluate ‘DEALTS 2’, a national simulation-based education toolkit informed by the Humanisation Values Framework, developed at Bournemouth University and based on an experiential learning approach to facilitate positive impacts on practice. This paper describes the process of developing DEALTS 2 and the protocol for evaluating the impact of this intervention on practice across England.
The paper was published online on 3rd January 2019: https://www.cambridge.org/core/journals/international-psychogeriatrics/article/design-and-evaluation-protocol-for-dealts-2-a-simulationbased-dementia-education-intervention-for-acute-care-settings/0D6D58EB6D24257F6454E6AB0AF69E7D
Using drama and storytelling in dementia care: Kick-off meeting for ERASMUS+ 2018 funded project
Last week, Dr Ben Hicks, I and the European partners from Greece, Romania, Bulgaria and Ireland began the ERASMUS+ 2018 funded project, exploring drama and storytelling in dementia care. The kick-off meeting was held in Bucharest, Romania, where all partners met to discuss the implementation of the project and establish targets for the next two years.
The morning session began with a discussion regarding the process of producing a booklet “Life in a story: creative arts and storytelling use for Alzheimer’s Disease patients and carers”. This will be based on a systematic review, conducted by Bournemouth University, and interviews with professionals who use drama and storytelling as a mean to engage people with dementia. In the afternoon, representatives from The Gaiety School of Acting, Ireland, introduced us to the use of theatre and storytelling. This was by far the most creative and interesting moment from the meeting, as we passed a ball of string amongst ourselves whilst regaling the proudest moment in our life.
The ball of string went around the table and everyone got a chance to tell their story. At the end, we could tangibly see that although we were all individuals, we each had similar stories that bound us together. The partners from Gaiety School of Acting will be creating a training programme using similar methods that focus of theatre and storytelling to train health and social care professionals to better understand, engage and support people living with dementia and their care partners.
As the meeting progressed, we also discussed the preparation of a toolkit for family carers to improve communication with people with dementia as well as the policy recommendations required for creating dementia friendly communities and institutions through the use of creative arts.
The meeting went well, and clear targets and future plans were established for the project. Moving forward, Bournemouth University will now begin conducting a systematic review of the area as well as interviews with dementia practitioners. This phase of the research will conclude in April 2019 and will inform the development of a ‘Train-the-Trainer booklet that will supplement the future drama and storytelling workshops (Phase 2).
My first international meeting as a research assistant exceeded my expectations. We received a very warm welcome, tackled the workload with a lot of heated discussions and achieved positive outcomes from the meeting. It was interesting to learn about cross cultural differences in dementia care and the benefits that the creative arts can offer people with dementia and their care partners. However, it was also upsetting to listen to project partners sharing their experiences of battling their Governments to provide even the most minimal of financial support for those living with dementia. Hopefully, this ERASMUS+ 2018 project will not only bring more dementia awareness across European countries, but also enable a wide variety of people to use drama and storytelling in dementia care to improve understanding of dementia and enhance the support provided to those living with the condition. I really look forward to the practical part of this project, when we receive the training from Gaiety School of Acting.
Blog written by Irma Konovalova (Research Assistant in the ADRC).