Kip Jones will be taking RUFUS STONE by video link to Nazarbayev University Graduate School of Education, Kazakhstan this Friday.
The screening will be followed by a Q&A with the film’s author and Executive Producer, Kip Jones.
The screening will be followed by a Q&A with the film’s author and Executive Producer, Kip Jones.
A new training resource, launched yesterday (11 June) by Alzheimer’s Research UK and Bournemouth University, uses virtual reality to help healthcare professionals improve their understanding of the symptoms and challenges of dementia, and to help them develop enhanced relationships with people with the condition.
The Lived Experience of Dementia aims to enhance empathy and increase understanding of the lesser-known symptoms of dementia by enabling healthcare professionals to experience the everyday challenges faced by people living with the condition through innovative VR technology. From today, the first 1,000 training packs will be free to order from the charity’s website.
The resource is built around Alzheimer’s Research UK’s groundbreaking A Walk Through Dementia virtual reality app. The free app uses computer-generated environments and 360° video sequences to illustrate in powerful detail the symptoms and difficulties faced by people with dementia.
The Lived Experience of Dementia was developed following a comprehensive evaluation of the A Walk Through Dementia app as a training tool at Bournemouth University’s Ageing and Dementia Research Centre with nursing home staff and undergraduate students including physiotherapy, occupational therapy and adult, child, and mental health nursing students.
The evaluation showed that 81% of users said the app had challenged their perceptions of dementia and 92% had a greater insight into the challenges faced by people with dementia after using it. When asked, 93% of those who tested the app as part of the evaluation said they would recommend it to health and social care staff and family members of people with dementia.
After an introduction to a humanised approach to care, the training pack asks the user to undertake the VR app to follow Anne, who has dementia, as she goes shopping, walks back from the supermarket and makes a cup of tea at home. Each scenario links the challenges Anne faces to the user’s experiences in their working life, enabling them to reflect on how they can apply this insight when interacting with, and caring for, people with dementia.
The resource also incorporates commentary from people with dementia and their carers, including suggestions on the small changes healthcare professionals can make to enhance the care they provide.
The Lived Experience of Dementia is suitable for anyone who provides front-line care in an acute hospital, in the community or in a residential home setting, and covers a range of learning outcomes from the Dementia Training Standards Framework, supporting other learning materials covering Tier 2 standards.
Hilary Evans, Chief Executive of Alzheimer’s Research UK, said:
“With more than 850,000 people in the UK living with dementia and this number set to rise dramatically in coming years, we must do all we can to support those working on the front line of healthcare.
“The Lived Experience of Dementia is a uniquely powerful training tool, using innovative virtual reality approaches to give people first-hand experience of some of the challenges that those living with dementia face every day. Our aim is to harness this technology to provide a low-cost way for formal and informal carers to develop their own skills and widen their perspective of the complex experience of dementia.
“This has been a truly special project for us and we’re hugely grateful to our supporters whose experiences inspired the development of this important resource.”
Dr. Michele Board, Deputy Lead Ageing and Dementia Research Centre (ADRC) at Bournemouth University, said:
“When we first saw Alzheimer’s Research UK’s virtual reality dementia app, we were struck by its potential to drive more empathy than traditional training approaches. Our evaluation work shows that the VR approach leaves a lasting impact on learners and saw many users refer to their experiences in the app when faced with similar situations in their day-to-day work.
“People with dementia often find it difficult to communicate what they’re experiencing or how they need help. It’s only through truly stepping into someone’s shoes that you can develop really human-centred approaches to care. We hope this training tool will support healthcare professionals in their personal and professional development.”
Trina, living with posterior cortical atrophy – a rare form of Alzheimer’s disease – who fed into the development of the app and the training resource, said:
“When some people think about dementia they just think about memory problems, but it also affects people in lots of other ways. I’m delighted that my experiences and the experiences of people living with other forms of dementia have been used to develop this resource.
“We must talk about dementia more and do all we can to help people understand it.”
Attending the launch in London from BU were Dr Michele Board and Professor Jane Murphy; Rebecca Mitchell Research Assistant and 3 adult nursing students, Abigayle Travers, Laura Wade and Neil Reid. The students have participated in the evaluation, development of the workbook and support delivery of the training to other students, their active involvement throughout the project has been brilliant!
The Lived Experience of Dementia training packs, containing the workbook and virtual reality headset, can be ordered by visiting alzres.uk/lived-experience-dementia
The first 1,000 packs are free thanks to funding from Legal & General, a long-standing corporate partner of Alzheimer’s Research UK.
The Project Zed Group at Bournemouth University and Space Youth Dorset are excited to learn about young people’s experiences of being the latest generation of teens and their interface with the world around them! The morning is part of a pilot for a potential larger project for teens to tell their stories on a video channel. Participants will very much be “co-creators” in this process.
We will spend the morning watching some videos about teen’s experiences and talking with teenagers about their own. We are interested in their ideas of identity, gender and sexuality and their relationships with each other. We will give them the chance to begin thinking about how their stories might contribute to a larger story on video or film.
Storyboard sketchbooks will be distributed for participants to go away and begin to plot their own ideas for a story graphically. They don’t have to be great artists, just people with great ideas!
At the end of the morning, we will provide a Bar-B-Que lunch. We will meet up again a month later so that everyone can share their ideas and storyboards together.
Come to this public event on Wed 19 June to hear the latest results from 3 dementia research projects:
After the talks, come and meet some of our researchers to hear more about dementia research at Bournemouth University over a free light lunch.
Wednesday 19 June
Please share the link for this public event dementia-and-living-well.eventbrite.co.uk with anyone who might be interested.
Two Wellcome Trust funds have issued calls.
Investigator awards in humanities and social sciences – funding available to enable humanities and social science researchers with a compelling research vision to tackle the most significant questions in human health. Researchers at all career stages are eligible.
Collaborative Awards in Humanities and Social Science – supporting teams to tackle major health-related questions in the humanities and social sciences that require a collaborative approach. Research must have the potential to make a significant, measurable difference to health research in the humanities and social sciences.
In conjunction with her supervisory team, led by Professor Ann Hemingway – Prof of Public Health & Wellbeing, Charlotte Clayton, PGR in HSS, has published her literature review protocol, ‘A scoping review exploring the pregnancy, postnatal and maternity care experiences of women from low-income backgrounds, living in high-income countries’, on the Open Science Framework (OSF) website. The OSF is an online, open access platform which gives researchers the opportunity to share their research activities, and provides a platform for the publication of reviews, like scoping reviews, in order to generate open discussion about research and establish wider networking possibilities.
The review protocol is available at: https://osf.io/yb3zq/
The completed review will be submitted to a peer-reviewed midwifery journal, in the spring of 2019 & forms part of her PhD research – which is looking at the pregnancy and postnatal experiences of women from low-income backgrounds and the role of midwifery-led continuity of care in the reduction of maternal health inequalities.
For further information, email: email@example.com or @femmidwife on Twitter
(Clayton, C., Hemingway, A., Rawnson, S., and Hughes, M., 2019. A scoping review exploring the pregnancy, postnatal and maternity care experiences of women from low-income backgrounds, living in high-income countries. [online]. Available from: osf.io/yb3zq).
Whilst researching a new Level 5 ‘Media Perspective’ unit (Life Stores and the Media) for the Department of Media Production, I decided to discuss the concept of ‘dissident reading’ within the lectures, relating the work of Alan Sinfield in this area. In doing this, I not only checked out if our library had the relevant book Cultural Politics – Queer Reading, which we did, but also I thought that I would just check out (online) what Alan is working on now.
Alan Sinfield had been a catalyst in my research journey, as way back in 2004 when I was in the final stages of my PhD, Alan had invited me to speak at a research seminar workshop at the University of Sussex. I remember that Alan was a little critical of my interest in the ‘carnivalesque’, but largely supportive. That seminar offered me a great experience in developing my ideas for the eventual PhD at Bournemouth, and it provided me with a much-needed psychological boost, as the PhD submission date loomed. I remember at the time I had asked Alan some probing questions regarding his new research interests. Alan’s work was fundamental in developing gay and lesbian studies in theatre and popular culture. He replied that he was working on something new, concerning ageing. It was remiss of me to not follow up on this, despite having more contact with the University of Sussex in other areas later on, such as working with Sharif Molabocus who contributed to two of my edited collection books, and also working there as an external PhD examiner. On searching for Alan’s latest work, I discovered that he had passed away last year, aged 75.
In thinking through my meeting with Alan in 2004, I had not realized that soon after this he would retire, as Parkinson’s disease would effect his speech. Now I maybe understand Alan’s interest in writing about ageing, at a time when his life must have been changing. The loss of Alan also made me think about others in the LGBT and queer studies media research community who I have met that are no longer with us.
Before I was accepted to study my PhD at Bournemouth, I had applied to the University of the West of England. When the panel interviewed me, I met Tamsin Wilton, whose ground-breaking book was entitled Immortal, Invisible: Lesbians and the Moving Image. While I did not get the doctoral scholarship at UWE, Tamsin confided in me that her research was mostly done within her own time, suggesting that at that time the department thought her work was ‘too radical’. Tamsin passed away in 2006, only a few years after we met, and I remember thinking how much we have lost in her passing, her work was revolutionary, and she genuinely encouraged me to press on with my research, in times when LGBT studies were less popular.
Besides the loss of Alan Sinfield and Tamsin Wilton, I cannot forget the sudden loss of Alexander Doty. Similar to meeting Alan and Tamsin early in my research journey, I briefly met Alex when he was presenting at the feminist Console-ing Passions Conference in Bristol in 2001, a conference that I would eventually co-organise this year at Bournemouth. In 2001, I was studying for an MA at Bristol, and I had never been to an academic conference before, but we were required as students to help out. I remember attending Alex’s paper on the TV series Will and Grace, and I had a brief conversation with him over coffee. Somehow, I made some links between his ideas, and those that I was studying, and I am forever grateful to Alex for his work, and his non-pretentious demeanour. Although if I am honest, I was a little in awe of him, and at the time I could have never imagined that I could have published my academic work.
So I think, often we encounter inspirational researchers along the way, at conferences, seminars, symposiums, and even in interviews. For me, the loss of Alan Sinfield, Tamsin Wilton and Alex Doty, almost seems too much to bear, as clearly they had far more to offer, despite their remaining stellar work. In the manner where I discussed the legacy of Pedro Zamora (the HIV/AIDS activist) and the meaning of a life cut short, theoretical and political ideals potentially live on. Our task is not only to remember all that potential, but also to continue it in any way we can.