BU Research Blog

This weekend a new issue of the Journal of Asian Midwives appeared online [1].  Its latest editorial focuses in part on research ethics.  The editors highlight the new World Health Organization (WHO) guidance for best practices in clinical trials [2].  The new WHO guidance was picked up at the 24th FERCAP International Conference “Maximizing Benefits through Responsible Conduct of Research” held in November 2024 in Nepal.  FERCAP is the Forum for Ethical Review Committees in the Asian and Western Pacific Region.

FERCAP reminded us that research as a social activity should improve health and quality of life for both targeted and general populations.  One notable message from this recent conference was the need for shorter and more comprehensible consent forms to make them user-friendly without sacrificing clarity. The other interesting development is that of so-called “decentralized clinical trials”. Decentralized or point-of-care trials can increase the diversity of clinical trial enrollment by increasing its accessibility, for example where elements of the trial are delivered at home and/or data are collected electronically by trial participants instead of researchers. These are exciting new developments in thinking about research ethics.

The Journal of Asian Midwives is Gold Open Access and hence freely available online.

Prof. Edwin van Teijlingen

Centre for Midwifery & Women’s Health

References:

1. van Teijlingen, E., Musaddique, A.,  Jan, R. (2024) Editorial – Dec 2024. Journal of Asian Midwives, 11(2):1–2.
2. World Health Organization (2024). Guidance for best practices for clinical trials. World Health Organization. https://www.who.int/publications/i/item/9789240097711 (accessed Jan. 2025)