BU Research Blog

Congratulations to Dr. Caroline Ellis-Hill on the publication of her article ‘We are not the same people we used to be: An exploration of family biographical narratives and identity change following traumatic brain injury’.  This paper was accepted for publication in 2017 and will now be finally published in its final format in the September issue of Neuropsychological Rehabilitation.

This scientific paper focuses recovery and rehabilitation following traumatic brain injury. Accumulation of subjective changes over time has led many to examine the question of “continuity of self” post-injury. Vacillation between feeling the same and different is common and often at odds with the medical narrative preparing families for permanent change. This position of ambiguity was examined in a qualitative narrative study. The aim of this paper is to describe the narrative structures used by uninjured members of a family to understand change. These changes relate primarily, to their perspective of whether and how the injured person had changed, but also secondarily to whether and why they themselves felt they had changed in the first year post-injury. Nine uninjured family members from three families took part in three unstructured interviews during the first twelve months post-injury.

In-depth narrative analysis showed family members used biographical attendance; biographical disruption; biographical continuity; and biographical reconstruction to understand change. Dr. Ellis-Hill and her co-authors argue that concentrating on a narrative of change is too limiting and that engaging in biographical narratives may help humanise care provided to injured individuals and their families. Implications for research and practice are discussed

Prof. Edwin van Teijlingen

CMMPH