‘The #WhyWeDoResearch campaign was established in December 2014 by Claire Whitehouse (@ClaireW_UK), Lead Nurse for Research at The James Paget University Hospitals NHS Foundation Trust (JPUH). The aim is to raise research awareness and opportunities to staff, patients and the public, and to start a conversation about research between all involved. ‘
The #whywedoresearch Tweetfest is back with 2 weeks worth of a wide range of topics, all exploring why or how we do research. The topics vary from ‘reaching out to involve communities in research’, to ‘digital health & research’, to ‘Clinical Academic careers’.
The Tweetfest is scheduled to being Monday 13th May with the last day being Friday 24th May.
Join in by clicking this link, which shows the range of topics on offer and when to take part. Happy tweeting!
The Health Research Authority (HRA) has formed the Research Transparency Strategy Group in response to the House of Commons Science and Technology Committee Report on clinical trials transparency.
You can read more about the first meeting of the expert group, including the minutes by clicking here
In relation to this, the HRA’s Director of Policy, Juliet Tizzard has released a blog post entitled What’s the point of research transparency? You can read the post here.
BU has access to the ClinicalTrials.gov system so get in touch if you would like access. This is a great opportunity to register your study and study results in the public domain. On ClinicalTrials.gov, it is free to do so.
Despite the name, the system may be used for other clinical research projects.
Please see below for a message from the NIHR Workforce Development team –
‘We are pleased to inform you that the Association of British Insurers (ABI) have confirmed to the Health Research Authority that participation in clinical trials does not affect eligibility criteria for travel insurance and have now withdrawn their guidance document “Clinical research trials and insurance”.
ABI agree that taking part in a clinical trial should not affect insurance cover if the medical condition itself doesn’t. Please share the following message with your teams, organisations etc.
‘When individuals apply for travel insurance, insurers will typically ask questions about an individual’s health in order to make an accurate risk assessment. This risk assessment takes into consideration the health of the individual and the insurer will often ask questions about any pre-existing health conditions and medical treatments for those conditions. Travel insurers do not typically ask about clinical research trials. Where an insurer does ask an individual about their participation in clinical research trials, the insurer must ensure the question is clear and the individual should answer it accurately and honestly”.
If you are aware of instances when participation in a trial is given as a reason for not providing insurance or insurance being an obstacle to participation in clinical trials, please contact firstname.lastname@example.org‘