At the Health Research Authority’s ‘Make It Public’ conference held on 3rd and 4th November a new toolkit to help researchers and participants stay in contact throughout the duration of a study was launched by Parkinson’s UK.
The Staying Connected Toolkit was created through co-production with people affected by Parkinson’s, Health Care Professionals and researchers.
The toolkit master guide can be found here and provides further links to resources such as a newsletter template and how to put together a podcast.
This guide is useful for all types of research, whether clinical or not.
The NIHR Learn platform now contains a number of resources to offer guidance and support to help researchers during the pandemic.
There are resources in the following areas:
- Understanding the science of Covid-19
- Leading in uncertain times
- Conveying Difficult Information to patients and relatives
- Personal resilience
- Remote working
- Online Webinars and Events
To access these you will need to create an account on the system* – if you run into any issues with creating an account phone the helpdesk on 0207 333 5894 or email them.
Once you are on the system, click on ‘Bite-sized Learning’ from the options and then select ‘Resources to support you through the Covid-19 pandemic’.
*If you have used the system to access Good Clinical Practice training or dates you will already have an account.
Two resources are now available on the NIHR Learn website for researchers –
- Patient and Public Involvement: Inspiring New Researchers – an online course developed by the Department of Health and NIHR. It is intended to help researchers to understand the benefits of good Patient and Public involvement into their research.
- Social Media Toolkit – a combination of practical resources on how to get started and real case studies from how colleagues across the NIHR Clinical Research Network are currently using social media to support their work.
To access the above resources you will need to have access to the NIHR Learn website. Once you have an account select the tab ‘Health Research Innovations’ and then click on ‘NIHR Endorsed Learning’. Both courses are free and do not require an enrolment key.
Remember – support and guidance is on offer at BU if you are thinking of conducting clinical research, whether in the NHS, private healthcare or social care – get in touch with Research Ethics. You can also take a look at the Clinical Governance blog for resources and updates.
EU Bookshop is a fantastic resource containing publications dating back to 1952 in more than 50 languages. PDF and e-book versions of the publications are free, with a small surcharge for hardcopies of certain titles. It has an easy search and order function along with sections dedicated to Horizon 2020, Grants and Funding, Treaties and much more!
Watch this excellent short video from BU’s Library and Learning Support Manager Jill Beard who discusses the latest developments to BU’s resources, including the availability of subject specialists for undergraduates, post graduates and academic staff.
To see other BU videos on YouTube go to the BU YouTube page.
The EU’s proposed Horizon 2020 Framework Programme for Research and Innovation will run from 2014-2020, replacing FP7. The EC is preparing the proposals for the Programme by holding stakeholder workshops. Two workshops with 50 representatives from the scientific community and government representatives were held on the Resource Efficiency and Climate Action Challenge. Key points that emerged from the discussions are:
- More clarity is needed on how the transition from FP7 to Horizon 2020 will work; it will be important to identify new and emerging needs as the situation will change up to 2020.
- Innovation which promotes societal change should be supported as it should be driven by technology and regulations as well as stakeholders and policy makers. There should be co-operation with non-EU countries to address common concerns.
- Cultural heritage; urban environment; natural hazards; earth observation systems; air quality; and land use and landscape were areas all missing from the proposals but which should be included.
- A balance between covering a comprehensive range of themes and focussing on a reduced number of priorities needs to be implemented. Stakeholder involvement and the indirect/intangible impacts should also be part of the peer review criteria.