Tagged / patient and public involvement

Introduction to Patient and Public Involvement

Guidance, NHS, Research Ethics, Training

This half day course is an introduction to PPI and will:
1. Define PPI and why it matters
2. Explore the links between PPI and health equity
3. Explain how to deliver PPI and support those involved

It will be an interactive session, including input from someone with lived experience, talking about their involvement in research.

It will be delivered by Sue Bickler from the Involving People team at Help and Care, an organisation that ‘helps people and communities live the lives they choose’.

Sue has worked in the voluntary sector, local authorities, and health, and has substantial experience engaging with people and communities to ensure that services meet their needs.  Her current role brings together the four Healthwatch in Hampshire and the Isle of Wight (HIOW), ensuring that patient voice is central to decision making in the HIOW Integrated Care System and that people are equipped to support effective Patient and Public Involvement (PPI).

The session is funded by Clinical Research Network Wessex and is open to all health and care researchers working in Wessex including public contributors and community organisations.

Book your place here.  A link to the online training will then be sent to you.

Introduction to Patient and Public Involvement (PPI) for Researchers – free event

Guidance, NHS

Introduction to Patient and Public Involvement (PPI) for Researchers

Date: Tuesday 10 January 2023
Time: 10:30 – 12:30

This event is aimed at people who are new to PPI or setting up their first PPI project, and is free for students and staff from the NIHR, NHS, UK universities, public sector institutions and registered charities based in the UK.

It will help them to discover the support available to plan, deliver and build PPI into their research, and highlight how PPI improves research for patients, services users and carers.

NIHR resources – Patient and Public Involvement and Social Media Toolkit

Guidance, Knowledge Exchange, NHS, Research Ethics, Training

Two resources are now available on the NIHR Learn website for researchers –

  • Patient and Public Involvement: Inspiring New Researchers – an online course developed by the Department of Health and NIHR. It is intended to help researchers to understand the benefits of good Patient and Public involvement into their research.
  • Social Media Toolkit – a combination of practical resources on how to get started and real case studies from how colleagues across the NIHR Clinical Research Network are currently using social media to support their work.

To access the above resources you will need to have access to the NIHR Learn website. Once you have an account select the tab ‘Health Research Innovations’ and then click on ‘NIHR Endorsed Learning’. Both courses are free and do not require an enrolment key.

Remember – support and guidance is on offer at BU if you are thinking of conducting clinical research, whether in the NHS, private healthcare or social care  – get in touch with Research Ethics. You can also take a look at the Clinical Governance blog for resources and updates.

New UK Standards for Public Involvement

Guidance, NHS, Research Ethics

Involving the public in your study is important, especially at the research design stage. This is called ‘Public Involvement’ (also known as ‘PPI’ [Patient and Public Involvement]). Public involvement in research means research that is done ‘with’ or ‘by’ the public, not ‘to’, ‘about’ or ‘for’ them.

By seeking the opinions and recommendations of the public, it is a great way to ensure that your study is designed and set-up in a way that will be relevant to participants, and of good quality.
This can also help to avoid any setbacks once the project is underway.

The new UK Standards for Public Involvement have now been released and were developed over three years by a country-wide partnership between the National Institute for Health Research (NIHR), Chief Scientist Office (CSO) Scotland, Health
and Care Research Wales, and the Public Health Agency Northern Ireland

They describe what good public involvement looks like and encourage approaches and behaviours that are the hallmark of good public involvement such as flexibility, sharing and learning and respect for each other.

You can see the six UK standards and supporting materials, as well as further details about the partnership, project and the piloting of the new standards, here.

Further guidance is available via the Clinical Governance section of the Research blog and via the Health Research Authority and NIHR pages.

New page on the Clinical Governance Blog – Public Involvement in Research

Guidance, NHS, Research Ethics

Involving the public in your study is important, especially at the research design stage, this is known as ‘Public Involvement’ or ‘Patient & Public Involvement’ (PPI). This involvement can greatly improve the quality of your study design and documentation.

To better support researchers with this process (in particular for the purposes of clinical research), there is now a dedicated space for guidance, resources and wider reading, on the Clinical Governance blog space.

You can find the page here – as always if there are any specific queries, please get in touch with Research Ethics.

Patient and Public Involvement – the findings of a pilot programme run by Parkinson’s UK

HomeThe findings of a pilot programme run by Parkinson’s UK to explore the difference patient and public involvement (PPI) can make to research are now available. Both researchers and those involved valued the contribution made by members of the public to the research process, with particular benefits relating to written information about the research, and to the study design. Both a two-page summary and the full report of the findings can be found at the link above.

If you’re interested in PPI, we’ll be running a session as part of the RKE Development Framework, targeted particularly at NIHR applications. More information will be made available as soon as possible here.