Tagged / PPI

New page on the Clinical Governance Blog – Public Involvement in Research

Involving the public in your study is important, especially at the research design stage, this is known as ‘Public Involvement’ or ‘Patient & Public Involvement’ (PPI). This involvement can greatly improve the quality of your study design and documentation.

To better support researchers with this process (in particular for the purposes of clinical research), there is now a dedicated space for guidance, resources and wider reading, on the Clinical Governance blog space.

You can find the page here – as always if there are any specific queries, please get in touch with Research Ethics.

Health Research Authority public involvement guidance – third blog post

Involving patients and/or the public in your clinical research is a great way to ensure that your study is designed and set-up in a way that will be attractive to participants. By carrying out PPI (patient and public involvement) you can also ensure that your research will be of benefit, not only to individuals but also the wider population and healthcare in general.

In 2018 the Health Research Authority (HRA) released guidance to help applicants better identify where they have involved the public in their research applications, and the difference that it made to their studies.

In addition, in January of this year two HRA blog posts were advertised, following the journey of a Research Fellow at the University of Surrey, who conducted PPI for her research project. The first and second posts can be found on the HRA website alongside other news items.

The HRA have just released the third blog post in which they talk to one of the lay Research Ethics Committee (REC) members who sat on the panel that reviewed the fellow’s study. The post explores the Committee member’s views on how public involvement benefited the research application. You can find it here.

Remember that support is on offer at BU if you are thinking of introducing your research ideas into the NHS, social care or healthcare institutions – email the Research Ethics mailbox, and take a look at the Clinical Governance blog.

Patient and Public Involvement Seminar Series

DrBUDSPA James Gavin is running a free series of seminars on  patient and public involvement (PPI).

This series will highlight the importance of PPI throughout the research cycle, from design to dissemination. PPI is gaining importance to identify treatments that meet people’s needs and are more likely to be adopted in practice.

Speakers will share insights on involving the public as partners to improve: relevance, quality, study protocol design and the communication of findings in health research. The speakers are from a variety of roles in occupational therapy, mental health, social work, health demographics, education and national health governance.

To find out more information and to book your place please click here.

Date Location Time Speaker Seminar Title
Monday 6 March 2017 EB708, Lansdowne Campus 3.00-4.30pm Professor Jo Adams Making research meaningful and accessible to patients: Why PPI is crucial to designing effective health research studies
Wednesday 15 March 2017 EB708, Lansdowne Campus 3.00-4.30pm Lisa Gale-Andrews & Dr Zoe Sheppard Importance of public involvement in research design: an orthopaedic case study
Monday 3 April 2017 EB708, Lansdowne Campus 3.00-4.30pm Dr Mel Hughes & Angela Warren Recruiting and supporting participants to engage in meaningful PPI
Monday 24 April 2017 EB708, Lansdowne Campus 11.00am-12.30pm Simon Denegri How can today’s patient help research tackle tomorrow’s health challenges?

Patient and Public Involvement – the findings of a pilot programme run by Parkinson’s UK

HomeThe findings of a pilot programme run by Parkinson’s UK to explore the difference patient and public involvement (PPI) can make to research are now available. Both researchers and those involved valued the contribution made by members of the public to the research process, with particular benefits relating to written information about the research, and to the study design. Both a two-page summary and the full report of the findings can be found at the link above.

If you’re interested in PPI, we’ll be running a session as part of the RKE Development Framework, targeted particularly at NIHR applications. More information will be made available as soon as possible here.