The National Institute for Health Research (NIHR) Clinical Research Network (CRN) Wessex has recently conducted a survey, distributed amongst the 10 NHS organisations in the Wessex region. This is the second time the CRN Wessex patient research experience survey (PRES) has been conducted, and ran throughout October 2018.
400 responses were received anonymously, and showed that 96% of participants had a good experience of taking part in research. It also showed that 98% of research participants surveyed had all the information that they needed in relation to the study.
Copied from the original article –
‘Many of those surveyed reported that the research staff supporting them were friendly and helpful and that they had a considerable amount of time to spend with them in order to explain the study and answer any questions.
The survey also highlighted that one of the key motivators for taking part in research was a desire to help others, with one participant commenting: “It’s good to know that this research could help future generations of patients.”’
The survey will be conducted again in October of this year.
Remember, there are members of the BU Clinical Research Unit team available during the Faculty of Health and Social Sciences Writing Week to help you (you don’t need to be FHSS to speak to us, we’re here to help anyone doing health research) along the way. Today we’ll focus on Helen Allen.
Once you have decided on a funder, an important (but sometimes overlooked) aspect of working up a grant application is the planning and documenting of the involvement of service users/patients/relevant groups or organisations (Public Patient Involvement or PPI) ie the people most likely to have a vested interest in the research you are intending to do. Indeed, many major national funders, including the NIHR, require detailed evidence of how service users have been involved. But do you know who to approach? When? How? What can service users be involved with? What can they add? Sometimes it’s relatively straightforward to identify appropriate individuals and organisations. Other occasions can call for more creativity. Hot tip: everything takes longer to arrange than you might think. Allow a minimum of 6 weeks to plan, consult service users and feedback from the PPI consultation to your colleagues.
If you’d like some advice about planning PPI and conducting service user consultations for a project Helen Allen will be pleased to advise you. Helen is available on Tuesday 3rd and Thursday 5th January.