BU Research Blog

10 June 2013

‘Off the Campus and Into the Community: Teaching for Social Justice

Speaker: Dr Susan Hyatt, Visiting Fellow, Department of Applied Social Sciences, Durham University, Associate Professor of Anthropology, IU School of Liberal Arts, Indiana University – Purdue University, Indianapolis

Monday, 17^th June 2013

12:00– 13:30

R303 Royal London House

Abstract:

Over the past 20 years, institutions of higher learning in the US, both public and private, have increasingly emphasized the value of civic engagement and community outreach as integral parts of their educational missions. In my teaching of applied anthropology, I have embraced this pedagogical turn as a way to involve students in community-based issues and to promote critical thinking. In this talk, I offer several brief examples where I have taken students out off the campus and into the community to engage in collaborative research projects. And, I have also offered students opportunities to participate in courses taught in somewhat unconventional community settings, including prisons and a residential treatment facility for women overcoming addiction. I argue that through such courses, we do not teach our students about social justice; rather, we allow students to experience for themselves the inequalities that structure much of our contemporary world and to reflect deeply on the ways that social action connects theory with practice.

10 June 2013

PHENOMENOLOGY INTEREST GROUP: Sport and Well-being

vsimcock

You are warmly invited to the fourth meeting of the Phenomenology Interest Group which will be held on Wednesday 3 July between 12.00—1.30. Venue: R201, Royal London House

We are fortunate to have Dr Joanne Mayoh and Dr Ian Jones from the School of Tourism who will demonstrate an example of cross-disciplinary thinking and the translation of theory into practice:

Title: Using the Dwelling Mobility theory to explore how sport can make wellbeing an experiential possibility

Abstract:

The positive relationship between sport and wellbeing has been widely documented in both policy documents and the academic literature. Whilst it is widely acknowledged that this relationship exists, little is known regarding how and why sport can contribute to positive wellbeing for individuals. Subsequently, there is a need for research that takes a bottom-up approach in order to adequately explore the nature of this relationship in order to contribute to wider knowledge regarding sport and wellbeing, and effectively inform future policy and practice. In mirroring this approach our research draws upon phenomenological philosophers such as Heidegger and Merleau-Ponty to provide a view of the individual that sees them having a sense of agency and existential freedom. This philosophical standpoint will provide the human-centred emphasis for research that is required to fully understand how sport and wellbeing may be connected. Specifically, this paper draws upon the existing work of Todres & Galvin with regards to Dwelling- Mobility Theory in order to consider how lifeworld philosophy could become more central in leading sport research. In line with this theory, our work considers how sport can provide a sense of dwelling, mobility, and dwelling-mobility within each of six lifeworld dimensions: temporarily; spatiality; embodiment; inter-subjectivity; identity and mood. We conclude that sport is one of the few single activities that can provide the potential for feelings of dwelling, mobility and dwelling-mobility within these dimensions simultaneously.

Dr Joanne Mayoh is a Lecturer in Sport, Physical Activity and Health at Bournemouth University. Her main research interests include the Conceptualisation of Wellbeing, and Active Ageing. She has published journal articles on Phenomenology and research methodology.

Dr Ian Jones is the Associate Dean for Sport at Bournemouth University- His research interests include Sport and Identity, Sport Fandom, and Spectators. He is author of Research Methods for Sport Studies and Qualitative Research in Sport and Physical Activity.

29 May 2013

BU Research Blog Exclusive: Design & Look of eBU leaked

PG research, Publishing, Research themes aharding

The first screenshot of the eBU interface has been exclusively leaked to the BU Research Blog, and is expected to go viral across the BU community over the next week.

eBU will provide both an internal and external forum for the development of research papers by undergraduate to Professor around the eight BU research themes:

– Creative & Digital Economies

– Culture & Society

– Entrepreneurship & Economic Growth

– Environmental Change & Biodiversity

– Green Economy & Sustainability

– Health, Wellbeing & Ageing

– Leisure & Recreation

– Technology & Design

Submissions will be open to immediate publication (in a safe internal environment) and open peer review by 2 appropriate BU academics. Authors will be encouraged to act upon these reviews by either reworking papers for submission to an external journal or by opting for publication on the external eBU site.

For BU academics this is a great opportunity to get critical appraisal on your research papers or ideas from colleagues. For academics it also an opportunity to encourage the submission of high quality student output, and possibly to facilitate the co-creation and co-production of publishable material to an external journal or to publish externally with eBU. For students, this is a fantastic opportunity to turn high quality essays or dissertations into scholarly outputs, which will be attractive to employers across many sectors and industries.

If you have any questions or would like to become involved in this exciting venture, please get in touch with me via email aharding@bournemouth.ac.uk or by telephone 01202 963025.

14 May 2013

The new Dorset APP: Dorset Alliance to Prevent falls and Promote independence

Public engagement snyman

With Osteoporosis Dorset, BU has recently set up a forum that brings together local professionals and representatives of older people with an interest in the prevention of falls. Dorset Alliance to Prevent falls and Promote independence (Dorset APP) is an initiative led by Samuel Nyman as part of his research in this area. Membership of the alliance is growing, but to date there are 24 members including representatives of all the local hospitals, Age UK Bournemouth, Age UK Dorchester, the University of the Third Age (Bournemouth branch), Bournemouth Older People’s Forum, Dorset Partnership for Older People Programme, among others. The alliance will be working together to enhance information sharing and generation of new ideas as to prevent falls and hip fractures in the Dorset region; similar to the alliance initiated by the National Osteoporosis Society and Age UK at the national level.

Dorset APP was launched at a conference in Bournemouth hosted by Osteoporosis Dorset on the 1^st of May. The conference, “A positive approach to preventing falls and broken hips in care homes”, included a presentation by Bournemouth University Dementia Institute (BUDI) members Sue Barker and Samuel Nyman on the prevention of falls among older people with dementia. There was a lot of interest about the alliance on the day and in the first meeting of the alliance to be held at BU within a few weeks.

More information about Dorset APP can be found on BU’s news page: http://www.bournemouth.ac.uk/newsandevents/News/2013/may/ne04-bu-helps-launch-dorset-falls-alliance.html

Samuel Nyman

BUDI and Psychology Research Centre

14 May 2013

eBU: Online Journal

Fusion, PG research, Publishing, Research themes aharding

Following on from my last post ‘Developing a Working Paper at BU’ in January of this year, we are now within sight of having an exciting new online journal at BU. eBU will provide both an internal and external forum for the development of research papers by undergraduate to Professor around the eight BU research themes:

– Creative & Digital Economies

– Culture & Society

– Entrepreneurship & Economic Growth

– Environmental Change & Biodiversity

– Green Economy & Sustainability

– Health, Wellbeing & Ageing

– Leisure & Recreation

– Technology & Design

Submissions will be open to immediate publication (in a safe internal environment) and open peer review by 2 appropriate BU academics. Authors will be encouraged to act upon these reviews by either reworking papers for submission to an external journal or by opting for publication on the external eBU site.

For BU academics this is a great opportunity to get critical appraisal on your research papers or ideas from colleagues. For academics it also an opportunity to encourage the submission of high quality student output, and possibly to facilitate the co-creation and co-production of publishable material to an external journal or to publish externally with eBU. For students, this is a fantastic opportunity to turn high quality essays or dissertations into scholarly outputs, which will be attractive to employers across many sectors and industries.

It is anticipated that author guidelines will be circulated in the coming weeks, and staff and students alike should begin to think about how they could submit to eBU.

If you have any questions or would like to become involved in this exciting venture, please get in touch with me via email aharding@bournemouth.ac.uk or by telephone 01202 963025

30 April 2013

Yawning in France

Awarded & submitted bids, Funding opportunities, Post-award Simon Thompson

My recent visit to Paris via the Erasmus Teaching Mobility scheme has been most useful, not only as it continues to strengthen the links I have made with like-minded researchers and clinicians, but also because it exposes you to raw student talent. This is important to help you keep up to date with current views and research with the assistance of an eager and interrogative French audience! Such visits are quite intellectually challenging, partly because my level of French is constantly under scrutiny! The collaborative research links I have made are invaluable and I hope to submit some reasrch bids in the area of Multiple Sclerosis and yawning soon.

28 April 2013

ups and downs of engaging with the public

Festival of Learning, Public engagement Anthea Innes

We have been attempting to engage with the public in a number of ways recently. The first was via having a stand at an Alzheimers Care Show in London, not quite the same as the Care Show at the BIC which targets those working in the care world (we had a stand there too and lots of interest, but in a business sense), the show in London was different in that it was advertised and open to anyone interested in dementia. The organisors sold hundreds of tickets in advance to those working in the field but tickets were on sale on the day for anyone worried about their memory or their family members. This was a slightly novel approach and on the second day, a Saturday, there was a lot of footfall from people directly affected by dementia rather than those working in the field (who swarmed in on the first day). It was interesting to hear this audiences views about what Universities should be doing to address their concerns, and is an area that vexes me as we are not a campaigning organisation, nor are we a service, but we clearly need to engage with and work to our key stakeholders agendas and concerns to be having genuine impact. Training professionals working in the field is an obvious one (and the key issue raised at our own local carers forum last year) as was the need for more information to sign post people along their dementia journey (and is one of the areas Claire House-Norman and her team are currently fundraising for). However one of the big issues raised was the need to challenge perceptions about dementia, the assumption that people with dementia are less able, lost, require ‘special’ treatment that results in marginalisation and stigmatisation. Now this aspect was really interesting to us in BUDI as we also have an arts and dementia project on the go at the moment where we are collecting written accounts from people with dementia and the general public about what they think dementia is/means to them and peoples’ views and experiences about dementia; this will be exhibited at the Festival of Learning in June. Standing windswept at Bournemouth beach this weekend – one of our general public venues (we, BUDI staff and volunteer BU students, have been all over in the last week with further venues this coming week, for examples in supermarkets, shopping centres, hotels, sports centres, libraries, and schools) it struck me how many people steer away, physically and mentally, from the word dementia. Our pop ups and papers blowing around in the wind at the beach attracted attention and laughter from passing members of the general public as we raced around to pick stuff up and tie it down, and did result in some people stopping to talk about and write about their experiences/thoughts. Free sweets also pulled in teens and families to stop and talk but to not necesssarily write as they didn’t know what dementia was or didn’t want to write down their experiences. Also some people stopped, read the sign and made comments about dementia and did a physically body swerve. We also got a lot of people who did stop and write about their views and experiences (and we are currently at about 400 stories in total) but there seems to be a general fear? aversion? negativity? to the word dementia which makes our arts project even more important as we are trying to get people to think about dementia and question and challenge the negative stereotypes that abound about this condition. Engaging with the public about issues perceived as ‘difficult’ in some ways isn’t easy, nor is it easy to find practical ways for our University based work to have real impact, but we have started the journey and are open to any creative ideas others might have about how else we might go about engaging!

21 April 2013

Finding (and defining) Friendly in New York City

Fusion, Research themes Anthea Innes

‘Dementia Friendly’ is a sound bite used frequently at the moment in my field. This is in part due to the Prime Ministers 2012 Dementia Challenge which has a particular component aspiring to the creation of 20 dementia friendly towns/cities by 2015. But what does dementia friendly actually mean? and how do we know when we have an example of something that is dementia friendly? A colleague and I spent a week in New York City earlier this month and we were truly ‘wowed’ by the dementia friendly initiatives we witnessed. The first was at MOMA where they have an established programme for people with dementia that we were lucky enough to be able to join one afternoon. What made this programme dementia friendly? Three things in my view; first the educators (their term) made no attempt to ‘dumb down’ their offering to those with dementia (too often people with dementia are treated as less able without first having tested the waters to see if just because the label of ‘dementia’ applied means that the person is unable to participate in various everyday activites ‘as usual’ or if it needs modified in some way, in this case participating in an arts appreciation programme). Two it was extremely difficult to tell who might have dementia and who were the accompanying family members and finally the contributions from the group reflected the individual perspective different people have on what is ‘art’, what they like, or in the case of one man what was ‘trash’ (every piece we stopped at!). We were also invited to join a choir rehearsing in a cathedral (an extremely modern building that we walked by twice before realising this was the cathedral, another story…) for the final time before performing at MOMA the following week (we didn’t get to see the real performance as back at BU by then). This choir group, known as ‘The Unforgettables’, was amazing, the two directors created an unbelievable energy in the room, there was laughter, fun, serious points made about music/signing. Individuals who could barely walk took their turn to stand by the piano and sing heart rending solos which brought a tear to the eye, a lump to the throat. By contrast, other couples sang humourous duets. This was an inspiring group to witness. The choir directors had again made a conscious decision not to ‘dumb down’ their approach but to encourage and challenge, in the same way that they would any other choral group. The results were incredible. We were offered hospitality by the group members, the only tell tale sign that one particular man had dementia was his bringing us 5 cups of iced tea and numerous plates of fruit/cake/biscuits as he didn’t remember that he had already been up to the table and brought us over some goodies. We also visited the Metropolitan Museum, again with long established groups for people with dementia. Some involve art making, others art appreciation, others tours of different parts of the museum. Again the underpinning philosophy is one of ability to engage, to promote intellectual stimulation, social interaction and also the programmes encourage a degree of physical activity by choosing exhibits at various places throughout the building (mental, physical and social stimulation being key to reducing risk of developing dementia, but also to maintaining well-being once diagnosed).

We went to New York because we had heard about the programmes and wanted to see if possible to learn and implement back here in Dorset but also to meet with academic colleagues, present at NYU, meet with the US Alzheimer Association (which has really made us think about donations and fund raising to support our work) and these were also very productive parts of the trip and reinforced that the approach we are taking at BU Dementia Institute is one that we should continue (mainly that engagement and collaboration with the range of stakeholders that has been guiding our work should continue). But what stands out for me is the energy and enthusiasm of those running groups for people with dementia and the huge engagement and enjoyment this approach created. The US might not have a ‘dementia friendly agenda’ being driven at a national policy level, and New York might not immediately spring to mind as a place where one could live well with dementia, but the initiatives we saw clearly demonstrate the possibility to create dementia friendly environments even in places where sign posting might not be clear, transport busy and where the assumption that services ‘cost’ can be challenged (all the programmes we joined are free to those with dementia).

18 April 2013

State of Yawning – Santander Travel Scholarship awarded to Dr Simon Thompson

Awarded & submitted bids, Fusion Simon Thompson

Studying yawning has the potentially benefit of identifying underlying neurological disorders. Strong evidence of a link between yawning and fatigue, and with multiple sclerosis, is known. Mechanisms involved in excessive yawning are not understood and my work has shown a definitive link between yawning and cortisol levels in normal people. However, since people with multiple sclerosis often yawn excessively, it is important to establish whether or not their cortisol levels rise as with normal people since prolonged rises in cortisol levels indicate stress and may also indicate adverse neurological symptomatology. My work has generated a new hypothesis to explain the occurrence of excessive yawning and is complementary to Dr Gallup’s theories on thermoregulation in multiple sclerosis, which is pioneering. I am meeting Dr Gallup (Princeton University) in New York to discuss further studies in order to stay ahead of research progress. This is an excellent opportunity for kudos for Bournemouth University in being the first to carry out such research.

1 April 2013

Want a challenge? short term secondment opportunity @ the Bournemouth University Dementia Institute

Anthea Innes

The BU Dementia Institute is growing fast with staff or students involved in various ways from all BU schools. We have a short term secondment opportunity (3 months) to work with us as Project manager to help develop our profile, income streams and to work on selected existing projects. Interested? Take a look at http://www.bournemouth.ac.uk/jobs/hsc184.html and drop me an email if you would like to discuss ainnes@bournemouth.ac.uk

4 March 2013

SILVER – Active ageing: Open call for robotic based pre-commercial solutions

Funding opportunities lrossiter

In the European Union, countries are facing tough times in the health and elderly care sector: while populations age and require more care services, countries are under pressure to make these services more cost efficient and effective. The pan-European SILVER project (Supporting Independent LiVing for the Elderly through Robotics) aims to demonstrate how public services can be rejuvenated by procuring R&D services that will develop higher quality and more sustainable elderly care solutions.

The SILVER project searches for new, innovative ways to acquire public sector health services by utilizing a Pre-Commercial Procurement (PCP) process designed for optimally matching R&D with procurers’ needs. The goal is to find new technologies to assist elderly people’s ability to continue living independently at home. By the use of robotics or other related technologies, the elderly are able to enjoy homelife even if they have physical or cognitive disabilities.

Registrations for the competition can be made via the SILVER webpage at www.silverpcp.eu/call-for-tender/registration

SILVER (Supporting Independent LiVing for the Elderly through Robotics) is a research and development project to establish and to execute a Pre-Commercial Procurement process suitable for the conditions for cross-border project implementation across several EU countries. It is funded by the European Union under the ICT cooperation part of the Seventh Framework Programme for research and technological development (FP7). The project started in January 2012 and will run for 51 months. SILVER has partners in Denmark, Finland, the Netherlands, Sweden and United Kingdom.

Status: OPEN

Open Date: 1st March 2013

Registration Close Date: 5^th June 2013

Close Date: 12^th June 2013

Website: www.silverpcp.eu/

e-mail: competitions@silverpcp.eu

Phone number: +44(0) 300 321 4357

14 February 2013

Tales from the Sea – Maritime Archaeology and Dementia – an innovative journey!

Awarded & submitted bids, Fusion, Public engagement ppalma

Bournemouth University School of Applied Sciences and Dementia Institute have joined forces to create the Tales of the Sea project in order to be all inclusive in the appreciation of our heritage. Paola Palma, MSc Maritime Archaeology Programme Coordinator, and Clare Cutler BUDI Research Assistant (Society and Social Welfare) in the School of Health and Social Care will work on this project that combines maritime archaeology and dementia, to create a series of interactive marine archaeological sessions specifically for people with dementia. Five venues in the Bournemouth area will be selected to host sessions where BU staff and students will deliver a maritime archaeological experience to an audience who may not normally engage in such activities. These sessions are designed to be educational, stimulating and inclusive.

Participants will be encouraged to take part in the interactive activities which will include a mini archaeological ‘excavation’ and the handling of maritime objects and archaeological replica’s. The activities are specifically designed to encourage interaction and sensory participation for those with dementia. We hope that the participants will have their own Tales of the Sea to share!

7 January 2013

Developing a working paper at BU

Fusion, PG research, Publishing, Research themes aharding

I would like to make you aware of an exciting development at BU.

A multi-disciplinary group of BU academics has been meeting over the last 6 months in order to design a online journal that is capable of acting as a central focus for the dissemination of the high quality research and scholarly outputs from UG and PG dissertations, post graduate researchers, early career researchers and established academic staff. The group has designed a developmental working paper online journal that will support ‘would be’ authors and their potential publications. Although particular emphasis has been given to maximising high quality outputs of UG and PG students and early career academics, this online journal will be capable of supporting the potential of all those engaged in research and scholarship at BU.

Below are a series of Q & As:

What’s the name of the working paper?

The provisional title is eBU: Working Papers Online

How is the working paper structured?

The working paper will not be limited to any one discipline or allied to any one particular methodology, but will aim to publish articles driven by the key BU Research Themes: (Creative and Digital Economies, Culture and Society, Entrepreneurship and Economic Growth, Environmental Change and Biodiversity, Green Economy and Sustainability, Health, Wellbeing and Ageing, Leisure and Recreation, Technology and Design). Apart from the build-up to launch, the working paper will have no deadlines or specific calls for papers. Instead, the working paper will work on a rolling submission process.

A set of author guidelines and details about formats are currently being considered and written. However, the guidelines are likely to accommodate a wide range of formats.

What are the submission processes for staff and students?

It is envisaged that staff will act as gatekeepers and encourage undergraduate and master’s students to submit high quality work into a format this is publishable. Post-graduate researchers and academic members of staff will be able to submit papers on their own accord.

After a short review from the editorial board, two designated BU academics will provide an initial quality check. The paper will then be uploaded to the internal intranet working paper site. This will allow any member of staff or student to read and offer feedback. However, within a few weeks the two designed reviewers will then provide a more comprehensive and detailed critical review. All reviews will take place in a safe, secure and INTERNAL environment. After a detailed review, students will then be encouraged to make any recommended changes and submit to external publication/or make their work available to be published on external working paper website.

This working paper is set to go live in March.

Further information

If anyone is interested in becoming involved in helping to create this online journal, and/or at an editorial level please get in touch with Andrew Harding (aharding@bournemouth.ac.uk), Andrew Adams (aadams@bournemouth.ac.uk) or Fiona Knight (fknight@bournemouth.ac.uk).

26 November 2012

New PhD at HSC!

BU Challenges Jane Murphy

Colleen Deane has recently joined the School of Health and Social Care to commence a BU matched funded PhD studentship investigating novel mechanisms regulating muscle mass in the elderly. Colleen has just successfully completed her Masters (with distinction) in Physical Activity, Nutrition and Health Promotion, where she investigated the effects of specific hormones (Testosterone) and polyphenols (Resveratrol) on artificially aged skeletal muscle cells, extracted from rodent mice. This PhD aims to enhance current understanding of the mechanisms regulating age-related loss of skeletal muscle mass (termed ‘sarcopenia’) and the associated reductions in mobility, general health and quality of life. Whilst exercise and nutritional interventions improve muscle size and function in young individuals, this response is attenuated in elderly muscle. Thus, using a combination of physiological and metabolic/molecular techniques these studies will investigate novel mechanisms underlying the blunted response of ageing muscle to exercise and nutritional growth stimuli. For further information contact Colleen on cdeane@bournemouth.ac.uk.

8 November 2012

Rufus Stone selected for Torin Film Festival

Kip Jones

Rufus Stone has been selected for this year’s Torin Film Festival, 23 Nov-1Dec in Torino, Italy. Held every November, it is the second largest film festival in Italy, following the Venice Film Festival.

The 30-minute film is the result of three years of in-depth research into ageing and sexuality in rural Britain at Bournemouth University. The project, led by Bournemouth University’s Dr Kip Jones, uses the film as its main output.

Rufus Stone was directed by Josh Appignanesi (The Infidel) and produced by Parkville Pictures, London. The film stars well-known stage and television actor, William Gaunt in the title role. Jones was author of the story and acted in the capacity of Executive Producer for the film.

The film will be shown five times during the festival, which opens with a screening of Dustin Hoffman’s directorial début, Quartet. The festival will close with Ginger & Rosa, a 1960s coming-of-age story from U.K. director Sally Potter.

Rufus Stone will be screened in the Festa Mobile sidebar, made up of mostly European and Italian premiers, including Anna Karenina, Joe Wright’s adaptation of the Leo Tolstoy classic that stars Keira Knightley and Jude Law.

Rufus Stone was recently featured as part of the ESRC Festival of Social Science at Bournemouth University and will be shown locally as part of BU’s Festival of Learning next June. Future screenings are also planned for Birbeck, Cambridge and Oxford Universities.

More information on the research project and the film.

18 October 2012

Are we born to yawn?

Fusion, R & KE Operations, REF Subjects, Research assessment, Research Integritiy, Research themes Simon Thompson

Yawning consistently poses a conundrum to neurologists and neuroscientists. Increasingly, evidence is found to link neurological disorders through the commonality of yawning episodes and contagious yawning. Despite discrete incidences (such as parakinesia brachialis oscitans) in brain stem ischaemic stroke patients, there is considerable debate over the reasons for yawning, with the mechanism of yawning still not fully understood. Cortisol is implicated in the stress response and fatigue; repetitive yawning may be the link between neurological disorders and with a strong correlation between yawning and a rise in cortisol levels. Evidence has now been found in support of the Thompson Cortisol Hypothesis that proposes cortisol levels are elevated during yawning [1]. Additional data is in press, and further research is planned with longitudinal consideration to neurological disorders such as multiple sclerosis and stroke. Funding for such initiatives is currently being sought.

[1] Thompson, S.B.N., & Bishop, P., 2012. Born to yawn? Understanding yawning as a warning of the rise in cortisol levels: randomized trial. Interactive Journal of Medical Research, 1(5), e4:1-9. Doi: i-www.jmr.org/2012/e4/

8 October 2012

How Web 2.0 might revolutionise our research

Adrian Newton

Many of you will be familiar with the revolution that the internet is undergoing, with its growth of social networking, web applications, blogs and wikis. What I had not appreciated, until very recently, is what the full implications are for how we go about our research. I am sure that colleagues in DEC and the MediaSchoolare well ahead of the curve on this, but for the rest of us, the penny is perhaps only just beginning to drop. I recently attended a fascinating conference hosted by the European Social Simulation Association in Salzburg. This is a group of researchers united by a common interest in using computer programs to simulate human behaviour, and its implications for human society. This was very much a new arena for me; I was really attending to learn something about the agent-based modelling approaches that are the flavour of the month in these circles. But what most impressed me was the way researchers are now using web technologies to access data to explore in their models. For example, although I’d heard of “crowdsourcing” before, I’d never really seen it in practice, and what it can deliver. I was most impressed by groups using tools such as Twitter, together with mapping applications such as Google maps, to produce highly informative maps showing the movements and wellbeing of large numbers of people. A great example is what the LSE is doing to map happiness – yes, really – http://www.mappiness.org.uk/. Another example, from the University of Leeds, has been using Twitter to map the movements of commuters in and out of the city. What is perhaps most astonishing is that large numbers of people seem keen to participate in these research projects. Potentially useful tools being used by this research community include open source mapping initiatives such as Open Street Map http://www.openstreetmap.org/ and Maptube http://www.maptube.org/, as well as Survey mapper http://www.surveymapper.com/current.aspx. You might find this reference useful if you’re interested in learning more – http://ssc.sagepub.com/content/27/4/524

11 September 2012

Carers experiences to inform direction of dementia work at BU

Public engagement Anthea Innes

On Monday 10 September Bournemouth University Dementia Institute (BUDI) held our second public engagement event (the first was back in May when we held a public meeting that also served as the launch of our Institute). The focus this time was on hearing the experiences of carers of people with dementia from across Dorset with the aim of finding out what they felt were the key issues terms of dementia services locally; and also to gather their views about future work that BUDI should prioritise that could be captured under our remit of research, service evaluation, consultancy and education.

The carers were very open and shared their experiences of getting a diagnosis for the person with dementia from short (minority of examples) to protracted and difficult journeys (this is sadly a common finding across the UK and beyond). There were lots of examples of difficulties encountered after receiving a diagnosis too; a lack of peer support, a lack of sign posting to follow to help access help and support, a lack of concern from service providers. There were positive examples too, with specialist dementia care units being a marked improvement compared to general hospital wards and agency staff coming in to the person with dementia/carers own home to deliver personal care. What is remarkable, and again from previous research, if the creativity and perseverence carers display in finding help, finding practical solutions to the challenges of caring, finding activities that are meaningful and enjoyable for both carer and the person with dementia, I say remarkable as the absence of help and support for commonly reported problems is something that really needs to be addressed. Local clubs run by the Alzheimer’s Society and AgeUK were really valued by carers but had often been found after considerable difficulty, this might partly explain why carers were telling us that they would like more sign posting, in the words of one carer ‘a hitch hikers guide to dementia’, something that provides a short checklist with more detailed information to follow up on if requried. This was said within the context of acknowledging the wealth of information available on the internet and via service providers, but this is a maze to navigate and what carers in our forum said was that they needed the information in a simple and more accessible format.

When we asked carers what they thought BUDI should be focusing our work on, they had some really interesting things to say: ‘more opportunities to talk like this’ being one, the idea of public engagement and having a chance to have a say was something they really valued. Ideas for training courses we should run to address the lack of knowledge about dementia from care providers they had encountered were readily given. Ideas for research projects focusing on carers needs, activities for people with dementia and carer support and general information giving have given us food for thought in how we turn these ideas into research projects that can be matched to funding opportunities.

We knew from previous experience of working with carers that it was important to have space for their relative with dementia to also be able to attend. In the end, of the eleven carers who participated, four brought their relative with them. We had organised a separate room with BU colleagues experienced in working directly with people with dementia offering a range of activities as well as the opportunity to share their experiences and thoughts about memory loss and what they felt was important about living with dementia; the discussion highlighted the importance of family and being able to talk to peers – the space we had created during our carers forum offered the opportunity to have this peer discussion. The activities that we offered that were most popular with those with dementia were Apple I pads and Nintendo DS games, technology that is often rarely offered to people with dementia based on negative expectations of the ability of people with dementia to be able to learn new skills and to engage with gaming technologies (something we are addressing via a technology club we are running for Bournemouth Council).

Engaging with a range of stakeholders is one of BUDI’s aims; we want to work in partnership with local people, to develop collaborative ways of working and to engage with local issues – after all one of our aims is to make a real contribution to improving the lives those affected by dementia. Our next engagement event is likely to bring together different stakeholders, carers, people with dementia, service providers as well as our academic community at BU working in this field. This is necessary as an academic institution can’t often deliver practical solutions directly, rather we need to find ways to influence and inform policy and practice based on our empirical work, but to do so requires acknowledging and embracing the starting points and concerns of those most directly affected by dementia, those with the diagnosis and those who provide the support and care.

Category / Ageing and Dementia