Late last week my colleague Dr. Pramod Regmi, Senior Lecturer in International Health, returned home from his Erasmus+ exchange to Nepal. He brought home for me a copy of the MMIHS (Manmohan Memorial Institute of Health Sciences) Souvenir 2023, this outliens key events at the institution of the past year. One of the write ups in the Souvenir is from the seven MMIHS M.Sc. students in Public Health who visited Bournemouth University in late 2022-early 2023 for three months. The students have since all completed their M.Sc. in Public Health at MMIHS. Their story highlights some of the British features of student life which were new to them. These included the support they received from our SUBU (=students’ union), or registering with the NHS, and the UNIBUS app, as well as cultural celebrations during their time in Dorset, such Halloween, Christmas and New Year. They rave about the module Public Involvement in Research and specifically thank Dr. Mel Hughes and BU’s PIER (Public Involvement in Education & Research) team. Their second module at BU focused on Systematic Reviewing, they particularly mention the guidance and support received from Prof. Vanora Hundley in the Centre for Midwifery & Women’s Health (CMWH) and our Faculty of Health & Social Sciences librarian Mr. Caspian Dugdale.
Unfortunately, the Erasmus+ scheme has come to an end, but Bournemouth University has just been awarded funding for a serious number of Turing Scheme exchanges. The latter is for BU students to go aboard, and this funding supports study exchanges, work placements, voluntary traineeships and other international extra-curricular or curricular activities worldwide for a minimum of 28 days and maximum of 12 months.
Prof. Edwin van Teijlingen
Follow the thoughts and reflections of the guest editorial team through our special issue blog series. The special issue of the British Journal of Social Work: Voice and Influence of people with lived experience is written, edited and reviewed by people with lived experience of social work. To date we have received 140 submissions across the three categories of academic papers, reflective pieces and creative artefacts. Follow our progress as we work toward publication in Spring 2023 via our blog series here
We would like to invite you to the Bournemouth, Christchurch ad Poole Poverty Truth Commission launch on Thursday 14th July 10-12.
Truth Commission, is a new project rooted in lived experience which seeks to tackle the root causes of poverty
in the BCP area. If you would like to understand more about how a Poverty
Truth Commission works there is more information and a short 4 minute video on their website that explains it really well (scroll down to find the video): Poverty Truth – Bournemouth, Christchurch and Poole (povertytruthbcp.org)
The project so far
14 inspirational Community Commissioners (CCs) – those with lived experience of poverty locally – have agreed to become part of the Commission. They have been meeting together fortnightly since April to get to know each other, better understand the process, and tease out key themes common to their stories such as housing, mental health, rising costs, benefits. They have told the commission they already feel “less alone”, “really listened to” and “inspired”. They are now working together with the commission to design and prepare for the public launch event (10-12 on 14 July) where similar numbers of local leaders including myself (Mel Hughes) in my role as Academic lead for the BU PIER partnership will join them as Civic/Business Commissioners (CBCs) to work together to tackle the root causes of poverty over the coming year.
To book a place at the launch please register here
If you would like to discuss, please contact me directly email@example.com
We’ll hear from Dr Mel Hughes and colleagues about PPI (Public and Patient Involvement in Research) and a new internal funding stream for public engagement.
Public engagement with research intersects with a number of other ways of communicating your research or involving people in it. At our next PER Network meeting we’ll look at one of those other ways, welcoming Dr Mel Hughes, Academic Lead for the BU PIER (Public Involvement in Education and Research) Partnership, Rachel Jury, PIER member, and Angela Warren, PIER coordinator who will provide a brief introduction to the what, why and how of public involvement in research, or PPI.
This is an opportunity to learn about different approaches to public involvement, the benefits to your research and the pitfalls to avoid. This session is co-designed and facilitated with a representative from the PIER partnership (Public Involvement in Education and Research), who has extensive experience of sharing their lived experience expertise in research studies. There will be opportunity at the end to ask your questions about public involvement.
We’ll also other news on public engagement from BU, including a new internal funding stream for public engagement and how you can apply.
The meeting will take place 1-2pm on Thursday 25 November, on Teams.
To join this meeting and find out about future ones, join our BU Public Engagement with Research Network. Check under ‘Meetings’ for upcoming sessions.
Today saw the publication of a new paper ‘Importance of involving patients and public in Health Technology Assessment (HTA) and health research in South Asia’ co-authored by the BU Public Involvement in Education and Research (PIER) Partnership . This paper is co-written with Dr. Bibha Simkhada, until recently Lecturer in Nursing in N4LTH Centre (Nursing for Long-Term Health) and now Senior Lecturer in Nursing at the University of Huddersfield, Dr. Aliya Naheed at icddr,b in Bangladesh, Angela Warren based at PIER, Dr. Sue Green (Principal Academic) and Prof. Edwin van Teilingen. The paper appears in the International Journal of Technology Assessment in Health Care, which is published by Cambridge University Press.
The authors highlights that Patient and Public Involvement/Engagement (PPI/E) in public health research and Health Technology Assessment (HTA) in has significantly increased over past decade in countries such as the UK. PPI/E helps improve health research and hence benefits patients and service users. For example, organisations like BU’s PIER bring a unique patients and (potential) users’ perspective of these services, which enables FHSS to enhance the education the future workforce in health and social care as well as research in this area.
However, PPI/E is still very new concept in many LMICs (Low- and Middle-Income Countries). This paper considers the importance of PPI in public health research and HTA in the development and implementation of technology in the health sector in South Asia. Currently, in this region, health technology is frequently adopted from HICs without local research and HTA. It also discusses the importance of local co-creation of technology to reflect the needs of users within a culturally appropriate setting. It is important for LMIC-based researchers to understand the potential of PPI/E and how it can contribute to it to improve health care and research, especially perhaps in the era of COVID-19.
- Simkhada, B., van Teijlingen, E., Naheed, A., Warren A., Green, S. (2020) Importance of involving patients and public in Health Technology Assessment (HTA) and health research in South Asia. International Journal of Technology Assessment in Health Care [Online First 5 November, pp. 1-3].
Within the Bournemouth University PIER (Public Involvement in Education and Research) partnership and the BU Research Centre for Seldom Heard Voices we have been re-evaluating the nature and purpose of PPI (what, why and how) in order to identify ways of broadening the models and approaches used by researchers. This stems from our on-going work to identify, pilot and evaluate models which have the most impact and which involve a more diverse range of voices in shaping and informing health and social sciences research. As part of this process we conducted a concept analysis drawing on published research where claims of PPI were made. As a result, we identified five operational definitions for conducting PPI. The five definitions which outline different models or approaches to conducting PPI, were: undefined involvement; targeted consultation; embedded consultation; collaboration and coproduction; and user led research. We deliberately avoided presenting these as a ladder or pyramid of involvement given the significant impact on the research cycle which can be achieved with each approach. The definitions provide a useful tool for researchers to consider how best to incorporate public involvement into their research and to consider what the impact of doing so might be. The paper is available for open accesss at https://rdcu.be/5uin Hughes, M. and Duffy, C 2018 Public involvement in health and social sciences research: a concept analysis. Health Expectations.
I was invited to present at Imperial’s PPI network this week to talk on the theme of inclusivity in PPI (public and patient involvement in research). In the PIER partnership and the newly formed Research Centre for Seldom Heard Voices, we are exploring challenges and opportunities for engaging seldom heard voices in PPI. The basis of our work is that those most affected by health inequalities often have the least opportunity to inform and shape health research. Beresford (2007:310) highlights that if diversity and the barriers that can be in the way of increasing diversity are not addressed, ‘participation is likely to be partial, and reflect broader social divisions and exclusions’ i.e. it will further reinforce health inequalities. This led to some great discussions within the PPI network. The main focus was whether we need to approach PPI differently to engage a more diverse range of voices. From our work at BU, we are finding that we need to think differently about who we involve and how we involve. Only a certain demographic of people will feel comfortable and confident engaging in focus groups, providing feedback on plain English summaries or voicing their opinions in formal settings. These methods and voices are valid but in our experience, are not particularly diverse. Our current work seeks to engage marginalised groups such as rough sleepers in PPI activities by creating outreach opportunities for researchers to ‘go to them’. As a starting point, we challenge the notion of ‘hard to reach’ groups. In our experience, marginalised groups are easier to locate and engage when collaborating with community organisations such as night shelters. The challenge is to change a culture of PPI which relies on the public ‘entering our world’ rather than us seeking a wider range of voices out in the community. It would be good to hear your thoughts and examples. Dr Mel Hughes, firstname.lastname@example.org