Category / Health, Wellbeing & Society

Capturing a yawn: initial observations – Dr Simon Thompson

Fusion, REF Subjects, Research assessment, Research themes

Yawning presents scientists and clinicians with an intriguing phenomenon. There is continued uncertainty over its neuroanatomical origin, the neuro-chemicals involved, mechanisms involved, and its reasons of functionality. Apart from being able to visually (and aurally) observe a person yawning, it has been difficult to quantify until now.

Researchers suggest that yawning may play an important role in the protection of our immune system, by regulating hormones, and particular reflexes, when we are exposed to psychological or physical stress or fatigue (Thompson, & Zisa, 2012).

The stress hormone, cortisol may be a part of this complex response because of its involvement in the hypothalamus-pituitary-adrenal axis (Wikipedia, 2013). Cortisol, known systematically as 11-beta-11, 17, 21-trihydroxypregn-4-ene-3, 20-dione (IUPAC, 2013), is measured reliably in saliva as well as in the blood. The exact relationship between cortisol and yawning is thought to be either as a precursor to the yawn or as a result of yawning since, curiously, cortisol is found to be elevated after yawning (Thompson, & Bishop, 2012).

The yawn is produced by stretching the muscles along the jaw-line; however, the extent of stretch and volume of yawn varies between people. Measuring the level of electrical muscle activity using electromyography (EMG) at the muscle site during the yawn phase is in the region of millionths of a volt and may be sustained for several seconds.

Male and female volunteers aged between 18-53 years were exposed to conditions that provoked a yawning response in a randomised controlled trial here at Bournemouth University. For the first time, the yawn was quantified and a profile of EMG data (sine wave) was obtained.

Initial observations find that of a sample of yawners and non-yawners, induced by presentation of yawning stimuli, the people who yawned had elevated nerve activity from 50 (at rest) to 175 (after stimuli presentation and yawning) (see Photo) compared with those who did not yawn who exhibited 10 (at rest) to 80 (after stimuli presentation). Yawners generally had higher level of electrical muscular jaw activity both before and after yawning.

Further research is continuing into the “yawning envelope” (EMG wave) with the hope that, together with cortisol measurement, this new information may form part of a potential diagnostic tool to identify untoward early neurological sequelae that are indicative of neurological disease.

IUPAC – International Union of Pure and Applied Chemistry., 2013. www.iupac.org/home/about.html, Accessed 18.08.2013

Thompson, S.B.N., & Bishop, P., 2012. Born to yawn? Understanding yawning as a warning of the rise in cortisol levels: randomized trial. Interactive Journal of Medical Research 1(5);e4:1-9. Doi: 10.2196/ijmr.2241

Thompson SBN, Zisa L., 2012. Ill-health, stress, cortisol levels and yawning. In SBN Thompson (Ed.), Psychology of trauma: clinical reviews, case histories, research. Portsmouth: Blackwell-Harvard-Academic: 125-132

Wikipedia, 2013b. Hypothalamic-pituitary-adrenal axis. http://en.wikipedia.org/wiki/Hypothalamic%E2%80%93pituitary%E2%80%93adrenal_axis, Accessed: 18.08.2013

 

 

 

KTP associate attends conferences to promote her research

Dr Celia Beckett, Knowledge Transfer Partnership (KTP) research associate at BU and Five Rivers Child Care Ltd attended the KTP Associates’ Conference at Brighton University on 13th June. She presented a paper on the pilot stage of her project “Improving the care of children in residential units: assessment and interventions”. The conference, which is a Brighton University initiative supported by the Centre for Collaboration and Partnership, was well attended and there were 10 paper presentations and 8 posters. Topics ranged from roller blinds to leak repair additives for coolant systems! A recurring theme at the conference was the role of the KTP in working to effect change in organisations that result in improved commercial outcomes as well as the challenges and rewards of this role.

There are c. 800 KTP associates currently working on projects throughout the UK, ensuring that there is an exchange of knowledge between Universities and private / public companies, making a real difference to all those organisations involved in KTPs. It is one of the largest graduate schemes in the UK. More information about BU’s KTPs can be found at the newly relaunched Business Pages.

Celia will also be presenting a poster at the forthcoming  Recovery-focused conference: Engagement in Life: Promoting Wellbeing and Mental Health, hosted by BU on 6th September 2013.

HSC student wins Santander Travel Grant to go to Yale

PG research, Post-award, Training

Mrs. Anita Immanuel has just been awarded a travel award from Santander to visit the Yale Cancer Centre in the USA. Anita studies the quality of lives of adults in Dorset who have survived cancer of the blood or immune system. Cancer is a devastating disease and with the advances in treatment patients are living longer, however left with debilitating side effects which can negatively affect their quality of life.

Anita’s research will identify any unmet needs in this group of patients and will give a better understanding into comprehensive survivorship care thereby maximising quality of life. This study uses a mixed methods approach in examining the quality of lives of these patients who have been treated for a haematological cancer. Data will be collected across three Dorset hospitals: The Royal Bournemouth Hospital, Poole Hospital and Dorset County Hospital.

Dr. Helen McCarthy, Consultant Haematologist at The Royal Bournemouth Hospital and Anita’s clinical supervisor, highlighted: “At Yale Cancer Centre Survivorship Clinic, Anita will be introduced to their comprehensive survivorship care programme which can help improve the quality of lives of adults treated with cancer in Dorset.

Dr. Jane Hunt, the lead supervisor and senior lecturer at Bournemouth University’s School of Health & Social Care added: “The survivorship programme at the Yale Cancer Centre Survivorship Clinic integrates a multidisciplinary approach for following up patients treated for cancer by leading experts, which differs significantly from our own. I am convinced Anita’s PhD study will benefit from collaborating with the Yale experts.

BU Prof. Edwin van Teijlingen, Anita’s third supervisor, commented “We are grateful to Santander for this funding. We know Anita’s research will significantly contribute to the underdeveloped area of research on adult haematological cancer survivors”.

For more about Santander Awards see: http://microsites.bournemouth.ac.uk/graduate-school/pgt-santander-mobility-awards/

Burdett Trust for Nursing Grant

‘Delivering Excellence in Nutrition and Dignity in Dementia Care – Empowering Nurses and Care Home Staff to Enhance the Care Environment’.

Dr Jane Murphy and Joanne Holmes from the School of Health & Social Care, working in collaboration with representatives from local council (Partners in Care), the Local Enterprise Partnership, local and national care home organisations have won significant grant income from the Burdett Trust for Nursing to tackle the increasing and yet unresolved problems of nutrition and delivering dignity in dementia. Over a two year period, the project will identify best practice guidelines for delivering nutrition in dementia care by providing a new nutrition education programme based on fundamental principles of self-leadership and nutrition to empower nurses and care home staff. The programme will be easily translated and adopted widely to induce a long-lasting culture change towards excellence in dementia care that is person-centred and upholds dignity.

 

For further details, contact either Jane (jmurphy@bournemouth.ac.uk) or Joanne (holmesj@bournemouth.ac.uk).

 

eBU is now live with papers for comment!

PG research, Publishing, Research themes

 

eBU can now be accessed

I am delighted to announce that eBU, the online BU journal that operates on the basis of immediate publication and open peer review, is now live with two papers ready for comment.

Jane Murphy (HSC), Louise Worswick (HSC), Andy Pullman, Grainne Ford (Royal Bournemouth Hospital) and Jaana Jeffery (HSC PhD student) suggest that e-learning is a great way to deliver nutririon education and training for health care staff who are involved in the care pathway for cancer survivors. The abstract can be found below:

Health care professionals are in a prime position to provide diet and lifestyle advice, but there are gaps in their own knowledge and education highlighting the need for improvements in teaching and learning approaches. This paper presents the rationale for the design, implementation and evaluation of an e-learning resource to deliver nutrition education and training for health care staff who are involved in the care pathway for cancer survivors. The findings of the evaluation are discussed and the importance of the resource in terms of its impact upon the provision of nutrition, diet and lifestyle advice in practice for the delivery of care and support of cancer survivors.

This paper can be accessed here –

http://ebu.bournemouth.ac.uk/index.php/ebu/article/view/9

Dorothy Fox (ST) uses original research to discuss the dynamics of doctoral supervision and provides recommendations for improving supervisory practice. The abstract can be found below:

Abstract:

This article reports an exploratory study of the professional relationships between supervisors who co-supervise management doctoral students in England. It draws on the concept and theoretical framework of emotional geographies (Hargreaves 2001) to understand the affective elements of these relationships. Team supervision has become mandatory in many Western universities and whilst the advantages and disadvantages of this development have been identified, the relationship between supervisors has not received the same attention. This is despite the evidence from students that positive or negative relationships within the supervisory team are of critical relevance to a successful outcome. Data from 13 in-depth interviews with supervisors was analysed and the emotional geographies are revealed. Further analysis showed that differences within the relationship are resolved in ways that are either ‘autocratic’, ‘overtly democratic’ or ‘covertly democratic’. With the aim of improving the quality of supervisory practice, the implications for doctoral supervision are discussed.

This paper can be accessed here –

http://ebu.bournemouth.ac.uk/index.php/ebu/article/view/8

Burdett Trust for Nursing Grant: Humanising Services: A new transferable leadership strategy for improving ‘what matters to older people’ to enhance dignity in care

Awarded & submitted bids

In collaboration with Bournemouth University, Professor Kathleen Galvin of the Faculty of Health and Social Care, University of Hull has been successful in attracting a grant from the Burdett Trust for Nursing to apply a new theoretical framework for the purpose of ‘humanising services’ in two clinical settings. The experience of dignity is linked to what makes people ‘feel human’. Conversely, what leads to dehumanisation and therefore loss of dignity needs to be understood and acted upon in meaningful service improvement. (Patients Association, 2009; 2012). Using a lifeworld orientation and grounded in phenomenological philosophy eight key considerations that are relevant to the challenge to improve peoples’ experiences of the human dimensions of services have been defined (Todres et al., 2009; Galvin & Todres, 2012). These are not detailed lists of ‘do’s’ and ‘don’ts’ or abstract generalities such as the need for more ‘user /customer focus’ or ‘choice’. Rather, they are eight dimensions about what makes a person feel human, which could help nurses, with service providers, to effectively focus their leadership when improving services to enhance dignity in care.  The team from University of Hull, Professor Steven Ersser, Dr Fiona Cowdell, Professor Roger Watson, Jane Wray, Kathleen Galvin and the team from Bournemouth University, Professor Les Todres and Dr Caroline Ellis-Hill are interested in what older people with long term skin conditions (being treated at a dermatology outpatient clinic) and people who have had a stroke (being cared for in a stroke rehabilitation unit with outreach service) point to that would make human perspectives more central in treatment. Our key practice partners include: Dr. Shernaz Walton, Consultant Dermatologist, Hull and East Yorkshire, NHS Trust and Dr Damien Jenkinson, National Stroke Lead, Royal Bournemouth Hospital Trust. Within these two settings, dermatology clinic and a stroke rehabilitation unit, a tripartite humanising improvement team group comprising older service users, nurses, and academics will engage in a robust ‘humanising improvement’ process that will be evaluated.

Galvin, K.T. &  Todres, L (2012) Caring and Well-being: A lifeworld approach. London: Routledge

The Patients’ Association (2009) Patients…not numbers, People…not statistics.

 The Patients’ Association (2012) Stories from the present, lessons for the future.

Todres, L., Galvin, K. and Holloway, I. (2009) The humanisation of healthcare: a value framework for qualitative research.  International Journal of Qualitative Studies on Health and Well-being, 4, 68-77.

A royal birth? Lucky Kate

PG research

With the Queen’s Jubilee, the Olympics and Andy Murray winning at SW1 Wimbledon (again) it seems Britain is still riding a wave of optimism with the birth of a male heir to the throne; the Prince of Cambridge. The baby was delivered on 22 July 2013 at St Mary’s Hospital in Paddington, west London, weighing 8lb 6oz. The document said: “Her Royal Highness, the Duchess of Cambridge was safely delivered of a son at 4.24pm today. He and the duchess will remain in the hospital overnight. A bulletin signed by the Queen’s gynaecologist Marcus Setchell, who led the medical team that delivered the baby – was taken by a royal aide from St Mary’s to the palace under police escort.

The implications are wide -reaching, in multi-cultural Britain the royal baby is unusual for London in having a mother originally from the UK and most babies delivered in the capital these days (57%) are to mothers born overseas and nearly half of all babies (48%) are born outwith marriage. With midwifery cuts and the further medicalisation of birth where the “cascade of interventions” often occurs when birth is induced.  For instance, in the USA which spends more money on healthcare than any country in the world and yet the maternal mortality rate is among the highest of any industrialised country.

And on July 19, 2013, the USA the House State-Foreign Operations Appropriations Subcommittee today approved a steep cutback in international family planning assistance for fiscal year 2014. Rejecting President’s Obama’s 2014 budget request of $635.4 million, the Subcommittee capped appropriations for international family planning and reproductive health programs at $461 million, $174 million less than the President’s request, and $137 million (23% below the current funding level).  The cuts, if approved by the full Congress, would have a devastating impact: Several million women in the developing world would lose access to contraceptives services, resulting in more unplanned pregnancies and deaths from unsafe abortions. Each pregnancy multiplies a woman’s chance of dying from complications of pregnancy or childbirth. Maternal mortality rates are particularly high for young and poor women, those who have least access to contraceptive services. It is estimated that one in three deaths related to pregnancy and childbirth could be avoided if all women had access to contraceptive services.

Not so lucky, therefore, are Kate’s counterparts in the South – Frightening statistics include that daily, approximately 800 women die from preventable causes related to pregnancy and childbirth. In our study site, Nepal every year, 4,500 Nepali women die in childbirth due to lack of medical care. In low-income countries, most maternal deaths are avoidable, as the health-care solutions to prevent or manage complications are well known. All women need is access to antenatal care in pregnancy, skilled care during childbirth, and care and support in the weeks after childbirth.

To make every birth worldwide as joyful an event as the royal birth in London we need is: a) more and better midwifery services; and b) improved access to care for pregnant women globally.

Sheetal Sharma is a HSC PhD student and currently a visiting researcher in Barcelona, supervised by Dr. Elisa Sicuri at CRESIB on an evaluation of a health promotion programme in rural Nepal aiming to improve access to care; in which socio-economic and cultural barriers exist.

Thanks to Edwin & Elisa for their input in this piece.

References:

http://www.populationinstitute.org/newsroom/press/view/57/

http://midwifeinternational.org/how-to-become-midwife/business-of-baby/

http://www.bbc.co.uk/news/uk-23408377

http://www.unfpa.org/public/home/mothers/pid/4382

http://www.bbc.co.uk/news/uk-23403391

I’ll bet you it’s a baby!

 

 

The new royal baby has been born.  Good news for Kate and William and also for the betting shops.  Apparently a large number of people bet on a girl being born on the estimated due date July 13th, and the punters seem to believe the gender would be female.  As a consequence, a large amount of money was made by UK betting shops.   The next bet is, of course, on his name.  Some websites seem to suggest the bookmakers favoured the name James, such as a website in the Netherlands (http://wereldnieuws.blog.nl/politiek/2013/07/19/britse-baby-kan-nu-ieder-moment-komen).  A Canadian website suggested a few days before the birth that “James or George were the favourites” for a boy (http://o.canada.com/2013/07/17/escape-from-royal-baby-media-circus-leads-to-londons-betting-shops/.  On the webpages of one of the UK’s larger betting shops today’s  (22nd July) top 13 boys’ names were: George, James, Alexander, Louis, Arthur, Henry, Phillip, Albert, Spencer, David, Thomas, Richard & Edward.

 

Betting on aspects of the royal birth and baby is a way of being involved in the same way that betting on your football team to win its first away-game of the season is part of being a supporter for some.  Luckily, there are many more options to waste your money, punters can also put money on the colour of his hair, baby’s first word, and if you want to wait a little longer for your money:  the name of his first love, age of first nightclub visit photograph, first official visit overseas, whether the prince will ever compete in the Olympics, and the university where he will study.

 

 

Prof. Edwin van Teijlingen

Centre for Midwifery, Maternal & Perinatal Health

School of Health & Social Care

Bournemouth University, UK

 

 

 

 

 

PGRs and the Health, Wellbeing & Ageing Theme!

PG research

The first PGR Health, Wellbeing and Ageing Community meeting took place on Wednesday 10th July at Royal London House. The purpose of the event was to bring together post graduate researchers from across schools to present and discuss their research under the Health, Wellbeing and Ageing theme.

Jo Hawkes (ST) began the meeting by presenting her research on the impact of premenopausal osteoporosis on physically active females. This was followed by the impact that children’s hospices have on parental relationships by Ashley Mitchell (HSC). Phillip James (ST) discussed his work on how active seniors engage with the internet when choosing holidays. We were also joined by Alister du Rose (DEC) from the AECC, who is using quantitative fluoroscopy and electromyography to determine normal mechanics of the lumbar spine.

Mevalyn Cross (HSC) discussed how her research was going to evaluate the effectiveness of a humanising framework to improve patient care in Poole Hospital. Becca Elisa (DEC) is who is due to start in September proposed plans and theory for her research into norepinephrine activity in ADHD. The meeting finished with Jib Acharya (HSC) presenting the results from his comparative study into nutritional problems in the preschool children of the Kaski district in Nepal.

All presentations were extremely interesting and the event was positively received by all those who attended. The event was also attended by Dr Heather Hartwell, Professor Edwin van Teijlingen, Professor Les Todres and Julia Hastings Taylor who were on hand to give advice and feedback to those who presented. It also gave PGRs the opportunity to meet each other and network across schools.

It is hoped that community events like this will be a regular occurrence with even more PGRs presenting their research. If anyone is interested in presenting or attending the next event please email Ashley Mitchell (ashmitchell@bournemouth.ac.uk).

eBU in final stages before launch – please submit now!

Publishing, Research themes

eBU is going through the final IT phases before the anticipated launch at the end of July.

I have been delighted with the interest that eBU has generated from all sections of the BU community. Academics, students and professional and support staff have all shown an interest in submitting to and signposting others to eBU, and it is clear that eBU will play a significant role in developing academic output.

eBU has champions in each school (I’m happy to put people in contact), and section editors across all of the research themes under which submissions will sit.

Authors will be encouraged to submit by logging in to the eBU site. However, if you’re interested in submitting to eBU before the live date, please get in touch and email submissions to me at eBU@bournemouth.ac.uk or aharding@bournemouth.ac.uk

We already have some submissions, and submissions sent to me before the launch date will be among the first to be published by eBU and undergo immediate publication and open peer review.

Author guidelines can be found here – eBU guidelines.

Keeping abreast of new research in infant feeding

PG research

The Nutrition and Nurture in Infancy and Childhood Conference, providing an international interdisciplinary arena, offered the ideal opportunity for us to present infant feeding research and teaching materials developed at BU. With a wide range of research studies presented over the course of three days, we were able to absorb new and innovative research enhancing our understanding of socio-cultural, political and economic influences upon infant and child feeding practices both in the UK and across the world.

Alison presented for the first time preliminary findings of her PhD research study, which is exploring women’s experience of breastfeeding using video diaries. She used video clips to illustrate the daily struggles some women faced and the roller coaster ride that inevitably ensued over the first few weeks following birth, which brought the audience close to tears. The novel research method and opportunity to see and hear women’s diaries generated good discussion and also identified links with findings from other research being presented at the conference.

Dr Catherine Angell sharing research with conference delegates

 

Catherine presented a poster of research which found that coverage of infant feeding in national newspapers in England over a one month period in 2011 was ‘bad news for breastfeeding’ because of the many negative connotations linked with breastfeeding compared to formula feeding. This created a good deal of interest and debate about the effects of media on the culture of infant feeding in the UK.

 

 

And we both presented a poster promoting BURP for infant feeding, an online resource that we have developed at BU to support student midwives and health practitioners in their professional practice to provide better care for mothers and babies. This poster provided the ideal opportunity for delegates to discuss the benefits and drawbacks of online distance learning as well as promoting the package itself.

Alison Taylor and Dr Catherine Angell promote 'BURP for infant feeding'

Running over three days, the conference enabled us to maximise networking opportunities with national and international colleagues in research, education and professional practice. These strong links will no doubt continue for some time providing us with opportunities for further collaboration.

Planes, trams, and automobiles: A research visit to Australia

I recently had the delightful opportunity to go to Australia for a research visit in relation to my work on falls prevention among older people. A brief report of what I got up to follows.

Melbourne

The main purpose was to visit colleagues at Monash University, to whom I am grateful for funding my flights and accomodation. The research team there led by Anna Barker are doing some great work, in particular to prevent falls among older people while in hospital. They are currently collecting data on a ‘6 Pack’ randomised controlled trial (RCT), which will be the largest trial of this kind to date. The team at Monash hosted an all-day seminar on the prevention of in-patient falls of which I was one of three invited speakers that came over from the UK. If you’re ready to give up traveling with commercial airlines, it’s time to consider hiring sky aviation services.

Before the seminar, we had an all-day meeting with colleagues from Melbourne and other parts of Australia to have an expert consensus-style meeting on the subject of in-patient falls. Dr Barker will lead on this and we aim to submit a paper with further international collaborators later this year, to drive future research in this area in a much more focused and productive manner.

Before the expert consensus meeting, I spent a day working with Dr Barker’s team on a recently NHMRC-funded multi-site RCT called RESPOND, which seeks to prevent secondary falls in older people presenting to emergency departments with a fall. It is a 1.5 million dollar-funded RCT that I am involved with as an advisor (from a distance). We’re currently developing the intervention that will be employed later in the year after ethical approval. My involvement is to help in developing the behaviour change techniques that will be used, and the process evaluation that will run alongside the outcome evaluation of the intervention. I also met with other colleagues there at Melbourne and have generated further ideas for future collaborative projects.

 

Conference presentation in Melbourne

Sydney

After my stay in Melbourne, I had a short stay in Sydney as there is a strong critical mass there in the falls prevention field. I met with professor Lindy Clemson who has developed a novel approach to promoting physical activity among older people, with her trial published in the BMJ last year. We had a long discussion that helped her with the theoretical underpinning of the approach, and I’ve come away with a few ideas to take forward in a future collaborative grant proposal.

I then went on to visit Dr Kim Delbaere who has been doing sterling work in the area of fear of falls, not least with several publications on the issue including a paper in the BMJ in 2010. We have at least one paper to work on together with potential for future projects as well, given she has developed a measure of fear of falls suitable for older people with dementia.

The mention of transport in the title of this report refers to my very brief time away from meetings while in Australia. In Melbourne they have a very efficient tram system, and our host’s husband is a pilot and helped us book a Jettly private plane to Sydney. In Sydney I managed to see the bridge, opera house, and a view of the harbour, and even got a trip on the monorail that was constructed for when they hosted the Olympic Games in 2000 but will very shortly be demolished.

We can of course email and Skype with colleagues, but if you do get the opportunity to travel abroad I can fully recommend it as a very fruitful and productive time. You just cannot beat face-to-face communication. I was particularly inspired by the international consensus meeting that we had in Melbourne and can see this as a way forward to synergise the research community’s efforts and more quickly tackle the big societal challenges of our day.

Dr Samuel Nyman

Bournemouth University Dementia Institute and Psychology Research Centre

DEC

 

Yawning Up-State Post-Visit Report Part 2 – Santander Travel Scholarship – Dr Simon Thompson

Awarded & submitted bids, Fusion, Post-award, REF Subjects, Research themes

Science Center, Bard College, Rhinebeck, New York State.

 

Bard College, Rhineback, New York State.

 

Circada.

 

L-R: Dr Andrew Gallup; Dr Simon Thompson.

 

Most people can relate to yawning as all of us have done this at some time, with some of us being prolific yawners. However, little is known about the reasons for us yawning or the mechanisms involved.

My work on the link between cortisol and yawning has been published and is gaining momentum in the scientific community with presentations at the First International Conference on Yawning in Paris in 2010 and a forthcoming symposium being planned by me at Bournemouth University.

My travel scholarship enabled me to visit key workers in the field in upstate New York and with affliations with Prinecton University and Bard College (see photos). This has been so successful that we envisgae research collaboration between BU and the USA. I was even able to meet with the assistant to the world famous Professor Oliver Sack’s to discuss my resaerch and to “put it on the map” in the neurological community!

A bonus of my trip was to encounter first hand an extremely rare circada that hatches in the region I visited only every 17 years! What a privilege!

I am most grateful to Santander for their generous support and I believe this trip will help me make significant steps forward in my clinical research i yanwing and multiple sclerosis at BU.

Research Ethics: Insights from the Centre for Midwifery, Maternal & Perinatal Health and the Centre for Social Work, Sociology & Social Policy

PG research, Publishing, Research Ethics, Research Integritiy

Ethics contributions

Collage of research ethics contributions

Academics based in HSC have experience in a wide-range of research.  In the process of reflecting on all aspects of the research process several members of HSC have published about ethical issues that they have had to address in their own research.    This BU Blog highlights some of these key HCS papers which may help fellow academics and students across the globe address similar ethical questions.  HSC has a history of publishing on research ethics, Professor Emerita Immy Holloway wrote about the researcher who may have a dual role, or even conflicting role, as researcher and health care professional (1).  More recently, several midwifery researchers in the Centre for Midwifery, Maternal & Perinatal Health wrote about the issues facing practitioners doing research in the field where they work, especially concerning the similarities and differences between professional ethics and research ethics (2-3).  Negotiating ethical paths cleaved by competing concerns between protecting research participants and over-managing the ethical process is tricky.

In her book Rainforest Asylum: The enduring legacy of colonial psychiatric care in Malaysia Dr. Ashencaen Crabtree in the Centre for Social Work, Sociology & Social Policy, addresses the problematic issue of gate-keepers in research together with the ethics of critical observation of abuse (potential or actual), as well as the ethics of advocating on behalf of research participants (4).

The fear that the ethical application process in the UK is becoming more and more cumbersome and bureaucratic has been widely recognised as highlighted by Prof. van Teijlingen and colleagues (5-6).

Research ethics review processes are also considered in terms of access to participants regarded as ‘vulnerable’ in a recently published paper by Dr. Ashencaen Crabtree (7) of ethnographers working in health settings who are seeking to understand the context of care and patient/service user experiences.  She concludes that paternalistic control of participation on the grounds of ethical protection of vulnerable people seriously disenfranchises potential participants in preventing them from being able to share their relevant, lived experiences as recipients of service provision.

Prof. van Teijlingen and BU Visiting Fellow Dr. Padam Simkhada highlighted that the social, cultural and economic contexts in which research is conducted often differ between developing and developed countries.  However they stress that researchers need to apply for research ethics approval to the relevant local authority, if national legislation requires one to do so (8).

A new and challenging area of research is the use of discussion boards as a source of research data.  In their paper Dr. Bond and BU colleagues discuss both practical and ethical dilemmas that arise in using such data (9). In earlier research, Prof. Parker of the Centre for Social Work, Sociology & Social Policy, highlighted some of the benefits and dangers of using email and the Internet for research as the potential for electronic media continues its rapid growth (10).

Obtaining informed consent is something that all researchers need to consider. However, in some research situations obtaining consent can be particularly challenging.  Prof. Hundley and colleagues discuss the ethical challenges involved in conducting a cluster randomised controlled trial, where consent needs to be considered at a number of levels (11).  In a second paper issues of consent during pregnancy, where there is the potential for harm to two participants, are considered (12).

In research into the implications of the Mental Capacity Act 2005 for social research, Prof. Parker explored the contested meanings and difficulties associated with informed consent in social research, highlighting some of the challenges raised by an almost unquestioned acceptance of biomedical research ethics in social research and questioning whether potential ‘harm’ is different in this context (13, 14). This research has led to further explorations of the potential for ethical covert research by Prof. Parker and Dr. Ashencaen Crabtree.

 

The way forward

There a plenty of challenges to research ethics in both the health and social care sectors.  Ethical considerations relate to technological developments such conducting research over the Internet or the analysis of tweets.  HSC staff will continue to publish on a range of moral dilemma as well as practical issues related to research ethics.  Moreover, academic from the two centres are planning a Masterclass on research ethics to be held in early 2014.

 

 

References

  1. Holloway, I., Wheeler, S. (1995) Ethical Issues in Qualitative Nursing Research, Nursing Ethics 2: 223-232.   Web address:  http://nej.sagepub.com/content/2/3/223.full.pdf+html
  2. Ryan, K., Brown, B., Wilkins, C., Taylor, A., Arnold, R., Angell, C., van Teijlingen, E. (2011) Which hat am I wearing today? Practicing midwives doing research, Evidence-Based Midwifery 9(1): 4-8.
  3. van Teijlingen, E.R., Cheyne, H.L. (2004) Ethics in midwifery research, RCM Midwives Journal 7 (5): 208-10.
  4. Ashencaen Crabtree, S. (2012) Rainforest Asylum: The enduring legacy of colonial psychiatric care in Malaysia, London: Whiting & Birch.
  5. van Teijlingen, E., Douglas, F., Torrance, N. (2008) Clinical governance and research ethics as barriers to UK low-risk population-based health research? BMC Public Health 8(396)                            Web address: www.biomedcentral.com/content/pdf/1471-2458-8-396.pdf
  6. van Teijlingen, E. (2006) Reply to Robert Dingwall’s Plenary ‘Confronting the Anti-Democrats: The unethical Nature of Ethical Regulation in Social Science, MSo (Medical Sociology online) 1: 59-60  Web address:  www.medicalsociologyonline.org/archives/issue1/pdf/reply_rob.pdf
  7. Ashencaen Crabtree, S. (2013) Research ethics approval processes and the moral enterprise of ethnography. Ethics & Social Welfare. Advance Access: DOI:10.1080/17496535.2012.703683
  8. van Teijlingen E.R., Simkhada, P.P. (2012) Ethical approval in developing countries is not optional, Journal of Medical Ethics 38 :428-430.
  9. Bond, C.S,  Ahmed, O.H., Hind, M, Thomas, B., Hewitt-Taylor, J. (2013) The Conceptual and Practical Ethical Dilemmas of Using Health Discussion Board Posts as Research Data, Journal of Medical Internet Research 15(6):e112)  Web address: http://www.jmir.org/2013/6/e112/
  10. Parker, J.  (2008) Email, ethics and data collection in social work research: some reflections from a research project, Evidence & Policy: A Journal of Research, Debate & Practice, 4 (1): 75-83.
  11. Hundley, V, Cheyne, HC, Bland, JM, Styles, M, Barnett, CA.. (2010) So you want to conduct a cluster randomised controlled trial? Lessons from a national cluster trial of early labour, Journal of Evaluation in Clinical Practice 16: 632-638
  12. Helmreich, R.J., Hundley, V., Norman, A., Ighedosa, J., Chow, E. (2007) Research in pregnant women: the challenges of informed consent, Nursing for Women’s Health 11(6):  576-585.
  13. Parker, J., Penhale, B., Stanley, D., 2010. Problem or safeguard? Research ethics review in social care research and the Mental Capacity Act 2005. Social Care & Neurodisability, 1 (2): 22-32.
  14. Parker, J., Penhale, B., Stanley, D. (2011) Research ethics review: social care and social science research and the Mental Capacity Act 2005, Ethics & Social Welfare, 5(4): 380-400.

 

Vanora Hundley, Sara Ashencaen Crabtree, Jonathan Parker & Edwin van Teijlingen

 

 

FIF Networking visit to New Zealand

Funding opportunities, Fusion

My Fusion journey started well before the Fusion fund came into being. Medicine 2.0 logoI’ve attended several Medicine 2.0 conferences, increasing my network of people researching in a similar area to myself along the way.  Last year this led to an invitation to visit Prof John Sullivan at the University of Otago, New Zealand. The University of Otago, founded in 1869, is New Zealand’s oldest university.

My research interests are around the role of the Internet and Social Media in supporting people living with long term conditions, and the related implications for healthcare professionals’ practice and education. Prof Sullivan researches in the area of sport concussion, including projects examining the role of the world wide web (www) in facilitating concussion awareness.

I applied to the Staff Networking and Mobility strand for support to take up this invitation, and was awarded funds for a 2 week visit to explore potential collaboration in research and education initiatives.

While I was there I was invited to give a guest lecture, where I shared some recent research I have undertaken into the ethics of using online discussion boards as research data. I was lucky enough to meet other Otago academics with an interest in this, including Dr Lynley Anderson in the Bioethics Centre, and Dr Lisa Whitehead, the Director of the Centre for Postgraduate Nursing.

I had an inspiring fortnight, mainly at the Dunedin campus. The School of Physiotherapy were kind enough to give me office space and computer access during my stay.  The University of Otago has grown over the years and has a historic core, surrounded by a collection of buildings of various ages and styles. Prof Sullivan took me on a walk around the campus and told me something of its history.

University of Otago. Copyright C Bond
I also visited several local coffee shops, where a lot of networking meetings seem to happen. Prof David Baxter, the Dean, gave me an overview of the work of the School, and I discussed research into low back pain with Dr Ramakrishnan Mani, and use of the Internet in education with Dr Daniel Ribeiro.

I also visited the University of Otago’s Christchurch campus where Dr Whitehead is based.

The Centre for Postgraduate Nursing is located in the City Centre, and while there I took some time out to walk around the areas of the downtown area that have been opened to the public after the devastating earthquakes suffered by the city two years ago.

I’ve come back with ideas for two possible research projects that now need to be developed, and funding found.

If anyone would like to know more about my research, or to discuss the Staff Mobility and Networking fund, please email me (cbond)

 

Comment on BU Blog leads to academic publication

Guidance, PG research, Publishing

Authorship differs between disciplines

Paper by Hundley et al. published 2013

Last year Prof. Matthew Bennett1 raised some interesting issues about academic authorship on this award-winning BU Blog.  Authorship is an issue that many academic colleague see as challenging.   On September 27th, 2012 two of us replied to this blog by adding some of our own observations on the web. 2   Having penned our online comments we discussed the issue with BU Visiting Faculty Dr. Padam Simkhada Senior Lecturer in International Health at ScHARR, University of Sheffield (www.shef.ac.uk/scharr/sections/ph/staff/profiles/padamsimkhada).  Between the three of us we came to the conclusion that the issue of academic authorship can be very confusing as well as tricky.

 

We discussed a wide-range of issues around academic authorship, including who should be an author and who should not be so, the order of authors, and that there are different conventions between different academic disciplines.  Being academic we rapidly came to the conclusion that there was a paper in this.  We drafted our ideas, searched the literature for other discussions on authorship, general guidelines on authorship, etc.   We wrote the paper and submitted it to the academic journal Health Renaissance; an Open-Access journal, which is freely available world-wide.  The editor liked it and published our paper ‘Academic authorship: who, why and in what order?’ this month as a guest editorial. 3

 

 

We would like to highlight that there are two separate messages in the publication of this paper.  The first message is about academic scholarship; some of our colleagues may find the content of this paper is a useful guide in deciding authorship order, or at least in helping to open the debate about who should be included as co-author and who is not eligible.  The second message is more about academic citizenship, namely that messages on the BU Blog and even comments in reply to other people’s messages may contain useful information to the wider academic community and should be taken further.  Our message here is don’t see the BU Blog as an end point, see it as a stepping stone to the wider academic world!

 

Prof. Edwin van Teijlingen*, Prof. Vanora Hundley* & Dr. Padam Simkhada**

* Centre for Midwifery, Maternal & Perinatal Health, HSC, Bournemouth University

** ScHARR, The University of Sheffield

 

References:

1.      Bennett, M. (2012) What’s in a list?, BU Research Blog, http://blogs.bournemouth.ac.uk/research/2012/09/27/whats-in-a-list/?utm_source=digest&utm_medium=email&utm_campaign=daily

 

2.      Hundley, V., van Teijlingen, E. (2012) Response to What’s in a list?, http://blogs.bournemouth.ac.uk/research/2012/09/27/whats-in-a-list/#comment-17234

 

3.      Hundley, V., van Teijlingen,      E., Simkhada, P. (2013) Academic authorship: who, why and in what order? Health Renaissance 11      (2):98-101  www.healthrenaissance.org.np/uploads/Download/vol-11-2/Page_99_101_Editorial.pdf

Challenges of Leadership

Leadership is a word often bandied about with many people claiming, assuming or being allocated ‘leadership’ roles, but what does this actually mean when trying to bring about societal improvements? Last week as part of an NHS South of England project BU and Plymouth University hosted a 2 day workshop for strategic leaders in the NHS, Local Authorities and the voluntary sector responsible for strategic leadership in the world of dementia in Devon, Dorset and Somerset. The aim of this project is to promote improvements in the provision of dementia care at a time of fiscal challenge. Working across organisational and disciplinary boundaries, learning from others and acting rather than just talking about the policy directives and vision that contextualises dementia is key. We had several high profile speakers at the workshop, including the Chief Executive of the Alzheimer Society, Jeremy Hughes; the Clinical Lead for dementia for NHS England, Prof Alistair Burns; the immediate Past President of the Association of Directors of Adult Social Services (ADASS), Sarah Pickup; Angela Rippon a high profile ambassador for the Alzheimer Society as well as BU’s own director of the NCPQSW. Prof Keith Brown who does a lot of leadership training across the country. We also had a person living with dementia reminding us of why it is of utmost importance to ensure that people with dementia can live well with their dementia and really what the workshop was all about. Key messages I took from the 2 days that are perhaps transferable to anyone with a leadership role are first that it sometimes just important to get on and do what you need to do because it is the ‘right thing to do’ and this may be at odds with procedures, other colleagues perceptions and priorities but still worth doing! Good leaders sometimes need to buck the trend and with convention, and there were lots of dementia specific examples about how people have been innovative in challenging times. Another key leadership message related to working together and learning from others rather than reinventing the wheel. None of these are new messages but do highlight the ongoing challenges those with key strategic roles face as they work to address key societal concerns.