Tagged / Bournemouth University Dementia Institute

Reminder: BUDI lunch time research seminar open to all BU staff and students

You are cordially invited to a BUDI research seminar which is open to all students and staff.
Please feel free to bring your lunch.

 

“Fire safety in the home: local lessons – global reach”

By Dr Michelle Heward

 Tuesday 8 March 2016

13.00 – 13.50pm

EB202, Executive Business Centre

 

Abstract
Objectives: Impairment, disability and dementia are substantial factors in increasing the risk of injury or death from fire in the home. There is, therefore, a concern that the number of people with dementia injured or dying in fires in the home will increase, in relation to the rising number of people living with dementia internationally.

Methods: Mixed methods study. Online survey sent to all Fire and Rescue Services (FRSs) in the United Kingdom (UK) (n=55) to establish provision of guidance and resources for people affected by dementia.  Four focus groups: fire service professionals; other professionals; and two with people with dementia and family carers in UK (South West). Explored experiences of home safety risks (including fire risks) and risk reduction strategies, alongside ideas for project outputs such as resources.

Findings: 20 FRSs responded to the survey giving a response rate of 36.4%. A descriptive analysis showed that the provision of guidance and resources for people affected by dementia varies widely across the UK, with few providing dementia-specific information leaflets and resources. During the focus groups, people affected by dementia identified different fire risks and risk reduction strategies to those outlined by professionals. However, a need to understand each person and their individual situation came across in each of the focus groups. This was considered a vital part in determining the individual risks within each home environment. Participants also felt that a range of resources that reflect individual needs would be a useful prevention strategy.

Conclusions: For communities to be truly dementia-friendly there is a need to ensure equity in how services respond to the needs of people affected by dementia. Dementia-specific guidance and resources developed as an output from this project could be shared nationally and internationally to address potential consequences of fire safety inequality in the home. However, there remains a need for cross disciplinary working across all sectors to enable people with dementia and their families, practitioners, policy makers, and the general public to understand and contribute towards effective dementia-friendly communities. This case study of fire safety in the home demonstrates the potential impact of local level studies to improving quality of life of people affected by dementia across the globe.

 

We hope you can join us.

BUDI Open Public Meeting 2015: Dementia-friendly Communities

To coincide with Dementia Awareness Week (18-24 May 2015), on Wednesday 20 May 2015 from 12 – 3pm, Bournemouth University Dementia Institute (BUDI) are hosting their fourth Annual Public Open Meeting. This free event will showcase work that is being undertaken locally to make our community dementia-friendly.

There will be an overview of local progress in the following areas:

  • Becoming dementia-friendly in Dorset and Somerset
  • Dementia-friendly GP Surgeries
  • Home fire safety for people affected by dementia.

Alongside updates on the following creative community involvement projects:

  • Intergenerational IT Club
  • BUDI Orchestra
  • Gardening
  • Care Farming

Anyone interested in dementia-friendly communities is welcome to attend, for more information or to register for your free place:

Call us on: +44 (0)1202 962771

Book online at: http://www.eventbrite.co.uk/e/budi-2015-open-public-meeting-dementia-friendly-communities-tickets-14377261777

BUDI Holds Technology and Dementia Masterclass

Report by Dr Samuel Nyman

On Wednesday 18th March, the Bournemouth University Dementia Institute (BUDI) hosted a Masterclass on the use of technology with people with dementia. This was the first in a series of four Masterclasses set for the 2015 calendar year. We provided a day full of information and inspiration on the use of a range of technology with people with dementia. The morning focused on technology and everyday living, and included sessions on assistive technology, monitoring technology, smart homes, virtual reality, and dementia friendly technology guidelines. The afternoon focused on gaming technology and included opportunity to interact with a range of devices including iPads, an Xbox, Wii, a virtual reality environment, and an educational game. 

We had 20 external guests attend the day, who represented organisations from the public, private, and third sectors. The feedback was on the whole very positive and we look forward to providing the next Masterclass in a few months! 

Next Masterclasses:

Wednesday 17th June:             Financial and Legal Aspects of Dementia Care

Future Masterclasses:

Wednesday 30th September:   Creative Approaches in Dementia

Wednesday 2nd December:     Promoting Wellbeing at the End of Life

 

BUDI attends Quarterly Meeting of the Dementia Action Alliance (DAA)

Report by Dr Samuel  Nyman:

On 20th March BUDI attended the quarterly meeting of the Dementia Action Alliance (DAA). This was held in London at the College of Occupational Therapists. The day primarily consisted of presentations with time for discussion, and attracted members from private, public, and third sector organisations as well as people with dementia and their carers. The morning centred on risk reduction and the evidence for lifestyle factors to increase / decrease the risks of developing a dementia, and depression was a particular factor that was highlighted as an important risk factor. The afternoon presented two new calls to action:

Dementia Words Matter

From consultations with people with dementia, this call to action is to ask that everyone uses appropriate language when referring to people with dementia. We are to use terms such as “person with dementia” or “person living with dementia”. Terms to be avoided include referring to people with dementia as “sufferers”, “demented”, “senile”, or “victims”. Part of being a dementia friendly university will mean using the correct language when referring to people with dementia and not using terms that are likely to offend.

National Family Carer’s Involvement Network

With support of the Department of Health, this network will be to engage and equip carers to raise the profile of the needs of carers and to influence policy and practice. It will also be a resource for carers to support each other. Anyone who is a carer or knows of a carer of a person with dementia is encouraged to join this initiative and help campaign for better support and services for informal caregivers who play a vital role in supporting people with dementia.

BUDI is a proud member of the DAA and is a great place to network with key stakeholders who have an influence on policy and practice.

BUDI Orchestra Performance 27th March

Last October, BUDI were lucky enough to secure funding from the ‘Inspired by 2012 Health and Wellbeing’ Fund via Dorset County Council to run another round of our music initiative with people with dementia and their carers from the community.

BUDI Orchestra have been working hard for the last eight weeks to bring you a performance this Friday 27th March, and we would be delighted if you could come along and show your support for all they have achieved in such a short space of time.

 

When? 27th March 2015, 10:30 – 11:30am

Where? The Atrium, Talbot Campus

We look forward to seeing you there!

 

Higher Education for Dementia Network (HEDN) 17th March

Report on Meeting of the Higher Education for Dementia Network (HEDN) 17th March, Worcester

On the 17th March, BUDI attended the quarterly meeting of the Higher Education for Dementia Network (HEDN). It was held in The Hive, University of Worcester, a building co-owned by the university and the council. The Network is an open forum with a purpose to share information and innovation across UK Higher Education providers and to influence the provision of education for the current and future dementia workforce. The host institution gives a presentation at these meetings and on this occasion the University of Worcester decided to initiate discussion about their intentions of developing training for academics wanting to specialise in dementia, and dementia trainers working outside of higher education who want more training in how to design and deliver educational programmes. We also had discussion about how dementia could be better embedded within existing programmes across university departments / courses. At these meetings members also have opportunity to share about their latest developments and initiatives. BUDI was able to share about their work in developing a new MSc in Applied Dementia Studies, and the four Masterclasses that we are running this calendar year. BUDI is proud to be a member of this network and national networks such as these are great not only for sharing innovation and good practice but for working together to help shape the UK’s education provision. This network’s most recent way of achieving this was to develop a national curriculum that is now in the process of being implemented.

 

Cake Sale for Alzheimer’s Society

Sarah and I will be hosting a bake sale in the Talbot Campus Atrium on Thursday 5th March, from 1-3pm, in aid of our 54km trek along the Isle of Wight coastal path this May Bank Holiday weekend. We’re taking on this test of endurance to support the valuable work of Alzheimer’s Society, and to help to make a difference for people living with dementia.

We would like to raise £295 each and we’ve been challenged to reach 50% of our fundraising target by 23rd March 2015. In order to achieve this goal, we would like to invite you to indulge your sweet tooth in aid of a good cause, and join us in the Atrium this Thursday afternoon for cakes and treats!

We’ll have a wide variety of cakes, biscuits, chocolates, and other treats available, along with vegan-friendly, gluten-free, and sugar-free options. If you would like to donate some baked goods for our stall, please contact us at snoone@bournemouth.ac.uk or lreynolds@bournemouth.ac.uk to make arrangements.

We’re not putting any prices on our cakes. We want people to donate however much they would like to (loose change also welcomed!). Alternatively, if you would like to donate to our fundraising efforts online, please visit our JustGiving team page at http://www.justgiving.com/teams/IOW2015-BUDI

To give you an idea of what your generosity could mean for people with dementia:

  • £5 could pay for one person to attend a half hour session at a monthly Dementia Café, providing information and support for people with dementia and their carers.
  • £20 could pay for 100 copies of Understanding and respecting the person with dementia – one of the Society’s most requested factsheets
  • £50 could fund a PhD researcher for one day to continue vital research into understanding the causes of dementia, how it can be treated and, ultimately, to find a cure.
  • £100 could pay for 4 weekly visits by an experienced Dementia Support Worker to someone affected by dementia offering them one-on-one support to help them feel less alone and to identify the services that could help them.
  • £120 could pay to run Talking Point for one day – the Society’s 24/7 online community for all people affected by dementia.

We have already received some very generous donations following our last blog post, and we would like to thank you for your support so far. We look forward to seeing you on Thursday!

RADIQL: Reminiscence Arts and Dementia

Last week, I had the opportunity to attend a one-day seminar hosted by Age Exchange (http://www.age-exchange.org.uk/), at The Kings’ Fund, London, to find out more about RADIQL (Reminiscence Arts and Dementia: Impact on Quality of Life) – a method that uses Reminiscence Arts to improve wellbeing and quality of life in people with dementia.

The day started with an overview of RADIQL, described by the Artistic Director of Age Exchange as “reminiscence empowering people in the present”. RADIQL encompasses two main elements: a structured Reminiscence Arts intervention, and a workforce training programme for care staff working in relationship-centred environments. We were then given an overview of the national context – the recent CQC report ‘Cracks in the Pathway’: the quality of dementia care in health and social services, and a presentation by KCL’s Jo Moriarty on care workers’ views of compassionate care.

The Keynote was provided by Dame Eileen Sills who continued the theme of ‘compassion’ by providing the back-story of ‘Barbara’s Story’, which I’m sure many within health and social care fields will have heard of already. Barbara’s Story is a dramatization created by Guys and St Thomas’ NHS Foundation Trust to raise awareness about dementia among their staff, and show the meaning of ‘kindness’ in the workplace, emphasising the impact that every member of staff has on patient experience. Following the success of ‘Barbara’s Story’, the Trust have since developed as series for use as training materials. You can watch ‘Barbara’s Whole Story’ here (with tissues at the ready!): https://www.youtube.com/watch?v=DtA2sMAjU_Y&feature=share&list=UUbJBh2MFKrX6Lf8bJ7_ZGWQ

The afternoon sessions saw attendees partaking in interactive workshops, demonstrating the activities one might engage with during a RADIQL session. Before the day, attendees were asked to choose whether to be a ‘participant’ or a member of an ‘audience’, i.e. whether to take part in the session, or observe a session from an objective perspective. These workshops were the most insightful part of the day, giving some first-hand experience into how the sessions may be conducted. For anyone planning seminars or ‘how-to’ workshops in the future – I would highly recommend using a similar form of dissemination, if appropriate to your cause, as this seemed to resonate with most of us as an effective and engaging way to demonstrate methods and disseminate research to peers.

The RADIQL method is currently being evaluated by Royal Holloway University London in a three year pilot project funded by Guys & St Thomas’ Charity. More information about the day, and the presentations provided, can be found here: http://www.age-exchange.org.uk/radiql-the-kings-fund/

A paper copy of the interim report and a guide to RADIQL  are available in the BUDI office (PG63) if anyone is interested.

BUDI Orchestra Needs You!

BUDI are still looking to recruit people with dementia and their carers to join the BUDI Orchestra, starting Wednesday 4th February 2015 for 8 weeks.

If you know of anyone living with dementia, or caring for someone with dementia, that you think would be interested in joining a music group led by professional musicians from the Bournemouth Symphony Orchestra, then please do get in touch! We are also seeking volunteers with an interest in music (staff or students) to help facilitate the sessions.

Interested?

For more information, please contact: Laura Reynolds on (01202 9) 62546 or email: lreynolds@bournemouth.ac.uk.

We look forward to hearing from you!

NEW BUDI Orchestra Coming Soon!

Do you know someone living with dementia in Dorset who likes music?

If so, BUDI would like to invite the person with dementia and their carer to become part of a new BUDI Orchestra starting this January 2015. We would like them to share their musical talents and take part in a music evaluation hosted by BUDI and professional musicians.

We hope to evaluate the effects of a novel music initiative on their daily lives. They will have the opportunity to learn a new instrument, sing, or showcase their existing musical talents to their peers.

No previous musical experience is necessary, we’re looking for people who are willing to come along and ‘give it a go’!

For further information, please contact: Laura Reynolds on 01202 962546, or email: lreynolds@bournemouth.ac.uk.

Please disseminate this notice to anyone who you think may be interested in the project. A PDF flyer can be provided – please email: lreynolds@bournemouth.ac.uk.