You are cordially invited to this seminar which is open to all BU staff and students.
(Please email email@example.com for the zoom link to access the seminar).
Dementia and digital selfhood: Identity formation in the age of social media.
Dr. Catherine Talbot
10th February @ 12.30pm
Abstract: A diagnosis of dementia in mid-life can be challenging, often causing losses or changes in a person’s identity as a worker, partner, or parent. Dementia also continues to be a stigmatised condition, whereby those with the diagnosis are frequently identified as ‘victims’ and ‘sufferers’. In contrast, social media may provide some individuals with a means of reconstructing identity, by facilitating narrative and community membership. In this presentation, Dr Catherine Talbot will discuss the findings of her interview study with 11 people with young-onset dementia who use Twitter. Her findings suggest that people with young-onset dementia are using Twitter to re-establish, communicate, preserve, and redefine their identities. However, there are some risks as Twitter was sometimes a hostile environment for individuals who did not present in a ‘typical’ manner or faced technical difficulties because of their symptoms. These findings have important implications for post-diagnostic support provision and the design of accessible social media platforms.
Biography: Catherine is a cyberpsychologist specialising in social media, health, and qualitative methods. Her PhD research concerned the use of Twitter by people with dementia to facilitate social connection, self-expression, and a sense of identity. She is interested in positive technology usage by people with stigmatised health conditions and how technologies can be developed to promote wellbeing and social inclusion. Catherine is a committee member of the British Psychological Society (BPS) Cyberpsychology Section.
Please email firstname.lastname@example.org for the zoom link to access the seminar.
Do you know someone aged 65+ that would like to attend?
Myself and colleagues at Bournemouth University’s Ageing and Dementia Research Centre (ADRC) are really excited to announce our new informal coffee morning, this is starting in January 2021. These coffee mornings are an opportunity for anyone aged 65 and over to hear more and chat about our research. They will take place regularly online (at least for the time being) as we thought it might be nice to engage about our research in a new way in the new year. We are keen for these sessions to be interactive and fun and to hear feedback on study ideas (even develop new ideas) as well as progress our findings.
|ADRC Virtual Coffee Morning – 6th January 2021 at 10 am on Zoom
Our co-Lead of the ADRC Professor Jane Murphy will join us to talk about a new simple tool to detect undernutrition in older people living in the community through a conversation. Also, it helps to signpost to resources and support as required. The tool is called the ‘Nutrition Wheel’.
For more details, click this link: https://www.malnutritiontaskforce.org.uk/nutrition-wheel
At the session she will explain the reasons why older people become undernourished and talk about the tool. We would welcome your thoughts about this to help with further work too.
If you know someone that would like to join us at the coffee morning please email email@example.com and we will send you the Zoom meeting details.
If so, sign-up to the National Cancer Research Institute’s Virtual Show case on 2-3 November 2020 https://www.ncri.org.uk/
Prof Jane Murphy from the Ageing and Dementia Research Centre will be presenting findings from the largest national survey of health care professionals on their provision of nutritional care on behalf of the National Institute for Health Research (NIHR) Cancer and Nutrition. Collaboration. The survey of 610 health care professionals working with cancer patients found that only 39% were aware of nutritional guidelines and just 20% felt completely confident in providing nutritional advice, despite 94% of respondents stating that they discuss nutrition with their patients.
Prof Jane Murphy from the ADRC and Lead of the Professionals Workstream for the NIHR Cancer and Nutrition Collaboration Research has just published the largest UK survey looking at the provision of nutritional care for cancer patients across a wide range of health care professionals has just been published in Supportive Care in Cancer. See below for details:
Research validating a tool to identify the risk of malnutrition, in older people, is among the top 10% most downloaded papers in 2018-19, published in Journal of Human Nutrition and Dietetics!
The research was led by Prof Jane Murphy, working in collaboration with the Wessex Academic Health Science Network and The Patients Association.
Identifying older people at risk of malnutrition and treatment in the community: prevalence and concurrent validation of the Patients Association Nutrition Checklist with ‘MUST’
Malnutrition is already a huge issue in the UK and current national policy for the Covid-19 crisis means that social isolation and loneliness in older people will significantly impact on food intake and in turn increase the risk of malnutrition. However in the Covid-19 pandemic, the use of the validated Patients Association Nutrition Checklist has increased given its simplicity, ease of use and can be carried out remotely so that people can access appropriate help and support where needed.
For more details see:
Working in collaboration with Malnutrition Task Force/Age UK and the Wessex AHSN, Prof Jane Murphy from the Ageing and Dementia Research Centre has developed new resources for older people who are at risk of malnutrition whilst self-isolating during the Covid-19 pandemic.
Resources can be accessed from the just launched Malnutrition Task Force/Age UK Coronovirus Information Hub with helpful information resources and tools for anyone who supports older people.
See the Coronavirus Information
Hub and ow.ly/Yke650zmhse
for more information.
Members from the Ageing and Dementia Research Centre were invited to present at the Wessex Brain Ageing and Dementia Research meeting on 4th February, St Mary’s Stadium, Southampton. Hosted by IDeAC, NIHR CRN and ARC Wessex, the event showcased dementia research in Wessex, linking dementia researchers across Wessex and grow the network for clinical trials.
PGR Raysa ElZein presented a poster on research on dietary fat interventions in cognitive impairment and older people, Dr Michele Board on research using the ‘A Walk Through Dementia’ app, Dr Samuel Nyman presented his research on Tai Chi (The TACIT Trial) for people with dementia and Prof Jane Murphy gave an overview of the ADRC’s research and a workshop on PPI and dementia research with Dr Michelle Heward. It was a great opportunity to share research and grow opportunities to collaborate on projects across Wessex and cross disciplines with academics and stakeholders attending.
Both Dr Susan Dewhurst and Prof Jane Murphy from BU’s Ageing and Dementia Research Centre were invited to speak at the 27th Managing Osteoporosis conference 2019 on 9-10th December 2019 at RBCH alongside a number of high profile speakers from across the UK. There were over 200 delegates from across the South including consultants, nurses and other Allied Health Professionals. Susan spoke about ‘Exercise for Fall Prevention: What Works?’, whilst Jane updated delegates on ‘Diet, Nutrition and Ageing’.
The talks garnered a lot of interest with new insights for bone health and managing osteoporosis and opportunities for collaboration.
Stories to remember in Bournemouth
It has been wonderful to host the third transnational project meeting in Bournemouth bringing together the team from Bulgaria, Greece, Ireland, Romania, and the UK (pictured) to advance the Story2Remember ERASMUS+ project: Using drama and storytelling in dementia care.
Following an introduction from Professor Jan Wiener about the work of the Ageing and Dementia Research Centre at Bournemouth University, Andreea presented on activities and results from year one and talked the team through next steps for year two.
Intellectual Output 2: Story2Remember
Each team presented their results and outputs from delivering Story2Remember for both phase 1, delivering Story2Remember to people with dementia and phase 2, delivering the ToT training to professionals in the dementia field. The overall results across all the teams were extremely positive for both phase 1 and 2. Feedback will be used to finalise the Story2Remember handbook.
Intellectual Output 3: The Toolkit
Collaborative discussions brought about positive actions to set out our next steps for the toolkit and its layout and structure agreeing for both website, PDF and paper copy it should:
- Focus on improving communication between carer and person with dementia
- Be user friendly
- Be easy to navigate and use
- Be a supportive platform for carers
The key focus from now is to build the content for the toolkit with the aim of piloting to users in March 2020.
TPM3 was an extremely proactive and collaborative meeting with celebration on successful delivery of IO2 and tangible next steps agreed for IO3.
By Danielle Wyman (Research Assistant for ADRC, Bournemouth University).
Facebook page: https://www.facebook.com/STORY2REMEMBER.EU/
Telling a story of research through photography
The ‘photo of the week’ is a weekly series featuring photographs taken by BU academics and students for our Research Photography Competition which took place earlier this year.
These provide a snapshot into some of the incredible research taking place across the BU community.
This week’s photo of the week was taken by Dr Michelle Heward and is titled;
‘Active ageing in place’
The onset of physical and mental impairments in later life may mean that mobility declines and individuals need to adjust or change their levels of activity accordingly. Older people therefore require choice of physical activities that are flexible to ensure all abilities are catered for. The GO Active Gold Programme in Oxfordshire encourages people in rural areas age 60 and over, to live more active lifestyles, by setting up local physical activities for all abilities. With funding received from Sport England, they employed rural Activators, to work in partnership with local communities to deliver a varied, inclusive and social physical activity programme. To date, the programme has engaged over 3000 participants from 81 different villages.
Under the ‘Activity and Inclusion’ research theme the Ageing and Dementia Research Centre are currently evaluating how far the project has improved the physical and mental well-being of older adults; encouraged stronger community spirit by reducing loneliness and social isolation through participation in activities; developed a sustainable physical activity programme. Research team: Dr Michelle Heward (Post-Doctoral Research Fellow), Amanda Adams (PhD Student) Prof Jane Murphy (Professor of Nutrition)
If you have any questions about the Photo of the Week series or the Research Photography Competition please email firstname.lastname@example.org
Prof Jane Murphy (Ageing and Dementia Research Centre, ADRC) was invited to speak at the All Party Parliamentary Food and Health Forum (22nd October 2019) on the topic of malnutrition. Chaired by Sir David Amess MP, Jane spoke about nutrition related problems in older adults including people living with dementia, food and hydration problems in hospitals and tackling malnutrition more effectively across health and social care. She also shared research informed resources that help identify malnutrition including the ‘Nutrition Wheel’ and the Eating and Drinking Well with Dementia guides for care staff and family carers and friends produced by the ADRC. BU PhD student Gladys Yinusa (supervised by Dr Janet Scammell, Prof Jane Murphy and Dietetic Manager Grainne Ford) attended the meeting. Jane raised awareness of her research on food and nutritional care at Royal Bournemouth and Christchurch Hospitals Trust.
Dr Trevor Smith, President of British Association for Parenteral & Enteral Nutrition (BAPEN) presented preliminary findings of the malnutrition screening survey as part of its work during Malnutrition Awareness Week 2019 14-20th October as well as Declan O’Brien, Director General, British Specialist Nutrition Association who spoke about the costs and health impacts of malnutrition.
There was much discussion and important concerns were raised by Eleanor Smith MP, Baroness Walmsley, Baroness Greengross as well as representatives from member organisations including the British Dietetic Association, Association for Nutrition and other attendees. MPs attending offered their help to take forward some of key issues discussed including the need for public health policy to recognise the nutritional needs of older people and effective malnutrition screening and treatment policy. Much to follow up on and real scope for impact.
The minutes will be available for public view on the APP Food and Health Forum webpage.
but no worries I’m out and back in the UK!!
I had the privilege of being invited to represent the British Geriatric Society (BGS) Nurses and AHP Council to talk about Dementia and the nurse’s role at the Scientific and Practical Conference Long Term Care Focus on Dementia in St Petersburg last week. What struck me most as I listened to the presentation interpreted from Russian or Hebrew into English is that when it comes to talking about dementia we have more in common than divides us. Nurses, academics, physicians, psychiatrists, and nutritionists all talked about wanting to provide a person centred approach to care, seeing the person not their diagnosis and in essence wanting to offer a humanised approach to care. They discussed the importance of preparing nurses to work with older people and people with dementia and the challenges this poses for the curriculum. They emphasised the need for more research into what is ‘living well with dementia’ and how we can provide it. The presenters spoke with a passion that was inspiring.
I was able to offer the UK perspective and highlight examples from the Ageing and Dementia Research Centre (ADRC) at BU about our innovative approaches to education, research and practical examples of enabling people with dementia to live richer lives. My talk was being translated from English to Russian so as I started my talk I invited everyone to stand up to relieve their pressure areas (we had been sitting still for 2 hours and I am a nurse after all), I do not know what was translated but everyone did stand up, looking a bit bemused. Fortunately when I said to sit down again they all did – hand gestures helped! I felt like I was at the UN with my earpiece carefully in place, but was in awe of the eagerness to learn from others. I was the only person from the UK, but there were speakers from Norway, Israel and of course Russia all presenting. We have so much in common that I hope our conversations will continue.
I was able to stay the weekend and did a mini tour, that included the Hermitage Museum, the ballet (wow!), an overnight sleeper train to Moscow (I felt like I was in a Agatha Christi film), and of course go in to the Kremlin. It was a fascinating conference and trip.
The Nutrition Resource of the Year is made up of four resources called Nutrition and Dementia Care: A toolkit for health and care staff. The toolkit is to provide freely available resources to deliver person-centred nutritional care in the area of dementia. The toolkit has been used all over the UK and overseas, as far afield as Australia and is the WINNER of the 2019 CN Award for Nutrition Resource of the Year!
Both Professor Jane Murphy and Gill Hooper represented the team by attending the 2019 CN Award ceremony last Thursday 29th September in London.
In the photo: Gill Hooper (Research Assistant) and Professor Jane Murphy (Professor of Nutrition and Co-Director of ADRC)
The team that produced the toolkit includes Professor Jane Murphy, Gill Hooper (linked with the Greater Manchester Nutrition and Hydration programme), Dr Joanne Holmes and Caroline Jones.
In the photo: Caroline Jones, Dr Joanne Holmes and Professor Jane Murphy
The toolkit comprises:
- Eating and Drinking Well: Supporting People Living with Dementia workbook
- Eating and Drinking Well Training Video
- Eating and Drinking Well Nutrition leaflet
- Eating and Drinking Well with Dementia: A Guide for Care Staff
It is available to download for free on our specific ADRC training page, please visit: https://www.bournemouth.ac.uk/research/centres-institutes/ageing-dementia-research-centre/eating-drinking-well-dementia-toolkit.
We have just launched our new Eating and Drinking Well with Dementia: A Guide for Family Carers and Friends which will be available to download from the ADRC training page soon.
Please visit our training page and spread the word of our training resources.
The CN Awards* provide the chance for all readers, advertisers and contributors of CN
Magazines to come together to recognise the achievements of those whose great work
has made a significant difference within the nutrition industry – whether an individual,
group or organisation. For further information about the CN Awards, visit: nutrition2me.com/cn-awards
*The annual CN Awards were launched in 2010 by Complete Media & Marketing Ltd. (CM2) – the publishers of Complete Nutrition (CN)
Magazines. CM2 do not endorse any particular individual’s, group’s, organisation’s or company’s products, services, resources, views or
opinions. For further details on the CN Awards, visit: nutrition2me.com/cn-awards
Stories to remember in Thessaloniki
It has been wonderful to bring together the team from Bulgaria, Greece, Ireland, Romania, and the UK (pictured) within the second transnational project meeting from Thessaloniki, 23-24 May 2019, to advance the Story2Remember ERASMUS+ project: Using drama and storytelling in dementia care.
Collaborative discussions brought about positive actions to set out our next steps including:
- actions for disseminating Intellectual Output 1: the booklet.
- agreement for our evaluation process and next steps of how we will capture the impact of the ‘Story2remember’ training program and workshops.
- a timeline for piloting the ‘Story2remember’ training, delivery and data collection.
- a more cohesive outlook and next steps on how we can take forward Intellectual Output 3: the toolkit.
We also discussed about the peer-review of the first Intellectual Output achieved, the booklet in creative drama and storytelling for practitioners and further impact in the field and future project activities. The booklet is aimed at dementia practitioners and provides an overview of how creative drama and storytelling are being used within the dementia care field and the benefits they may have for the well-being of people living with dementia and their care partners. It is wonderfully designed and will be key tool to bring about opportunities for our communities to engage with this exciting project. Thank you to everyone for their input and a special thank you to Dr. Ben Hicks for creating this dynamic and engaging booklet which personifies this project. We look forward to sharing the booklet with everyone.
We were honoured to have two enthusiastic and passionate guest speakers whose research focuses on using creative arts to enhance wellbeing for people living with dementia connected to Alzheimer Hellas. Firstly, Professor Magda Tsolaki talked about the benefits for people living with dementia linked to their research using non-pharmacological interventions involving creative arts and art therapy. Professor Tsolaki also spoke about the work they are doing to support carers and caregivers. Secondly, Elena Poptsi talked about the benefits associated with their research using dance and drama therapy for people living with dementia. It was enlightening to have an insight into the exciting research being carried out, which is positively changing the landscape for people living with dementia in Greece.
Gaiety School of Acting, the partner from Ireland shared the latest news on the ‘Story2remember’ creative drama and storytelling pilot workshops, which have initially shown to bring about a sense of inclusion for people living with dementia. We look forward to getting our creative hats on and immersing ourselves in the training from Dublin in August, where we will all receive the ‘Story2remember’ training in using creative drama and storytelling in dementia care.
By Danielle Wyman Research Assistant for ADRC (Bournemouth University).
Facebook page: https://www.facebook.com/STORY2REMEMBER.EU/
The Ageing and Dementia Research Centre’s Amanda Adams and Dina Blagden attended the Annual Alzheimer’s Society Conference at the Oval in London last May 2019, and joined Health Education England (HEE) (Jan Zietara: Head of Programme Delivery – South Health Education England, and Chris O’Connor: Consultant Admiral Nurse/HEE Dementia Fellow Health Education England) on the stand. They spoke to a range of people about the Dementia Education and Learning Through Simulation 2 ( DEALTS 2) training – the ADRC team are currently delivering the training for a second time, across the South of England.
Dina presented a poster on research evaluation of DEALTS 2 from training sessions delivered from the first round, funded by HEE. These resources provide a simulation-based training package for staff working regularly with people living with dementia. The simulation approach aims to facilitate staff to consider experiences from the point of view of a person living with dementia. These resources can be adapted to be relevant in different settings, and have been designed using low key simulation scenarios, with the opportunity to be adjusted to suit the level of resources available.
PhD student Raysa El Zein and Caroline Jones from The Ageing and Dementia Research Centre (ADRC) attended “The Memory Roadshow Event” in Dorchester, hosted by Dorset Healthcare University Foundation Trust. The Memory Roadshow is an event for people who have memory problems, the people who support them and healthcare professionals. It was a mixture of talks, music and information on support services across Dorset. The event was well attended with significant interest for our stall that presented the research and activities from the centre.
Prof Jane Murphy (Ageing and Dementia Research Centre,ADRC) and Dr Janet Scammell (Nursing long-term Health Challenges Research Centre, N4LTH) from FHSS recently visited the University of Genoa, Italy to explore a potential collaboration focused on older people with severe swallowing difficulties.
Academic colleague Dr Milko Zanini from the Health Sciences Department in Genoa is with Janet a member of Phi Mu Chapter of Sigma Theta Tau International Honor Society of Nursing (hosted by Bournemouth University). Working with industry, Dr Zanini and his team have developed a novel nutrition-intervention programme that uses high-quality texture-modified food for people with dysphagia (swallowing problems) and demonstrated significantly improved nutritional, biochemical and functional outcomes in older people living in Italian nursing homes. Dysphagia is a worldwide challenging clinical issue (affecting 8% of the world population), leading to poor health outcomes and quality of life including malnutrition, pneumonia in stroke patients and those affected by cognitive impairment. In nursing homes, older people with dysphagia and cognitive impairment and are also at higher risk of malnutrition, sarcopaenia (muscle loss) and higher mortality, and as such represent a considerable nursing challenge.
Jane and Janet with the ADRC and N4LTH plan to work collaboratively to explore new research around how this innovative intervention could be implemented in UK nursing homes and measure its impact on quality of life and other health outcomes. The potential is to provide a much needed solution to better manage this challenging problem in older people.