At the end of the month (Friday 30th September) Professor Jane Murphy and Prof. Edwin van Teijlingen are both speaking at the Advanced Dementia Research Conference (ADRC 2022). Their participation will be online thus helping to reduce BU’s carbon footprint. Prof. Murphy, Deputy Dean for Research in the Faculty of Health & Social Sciences (FHSS) will be talking about ‘Nutritional interventions in ageing’, whilst Prof. van Teijlingen from the Centre for Midwifery, Maternal & Perinatal Health (CMMPH) will be discussing ‘Qualitative Research in Dementia’. The one-day conference has two more BU connections and two further speakers ‘Dr. Brijesh Sathian and Prof. Padam Simkhada are both FHSS Visiting Faculty. The former will be speaking on ‘Complex Innovative trial designs and analyses for Dementia Research’, whilst the latter will be presenting on ‘Mixed-methods research in Dementia’.
Tagged / Bournemouth University Dementia Institute
BUDI Open Meeting held on 11 May 2016
Last Wednesday, Bournemouth University Dementia Institute (BUDI) held their fourth annual Open Day. The event marked a new era for BUDI as Dr Jan Wiener and Dr Jane Murphy announced their arrival as the new Head and Co-Head of the Institute, respectively. The event was BUDI’s most successful yet with close to 100 people attending including academics, local practitioners, business, charity and care managers as well as people with dementia and their care partners. This emphasises the great in-roads BUDI continues to make within the local community and the interest that their research is generating.
The event consisted of five presentations delivered by BUDI staff and PhD researchers. Kicking it off, Mary O’Malley, Ramona Grzeschik and Chris Hilton spoke about their project on ‘Wayfinding in Dementia.’ This is fast becoming a specialist area within BUDI after the success of Jan Wiener’s ESRC grant. Following this, Samuel Nyman and Yolanda Barrado-Martin discussed their recently funded NIHR project that aims to use Tai Chi for people with dementia and their care partners. Michelle Heward then outlined the work she has been doing with the local fire service to develop training that enables them to support people with dementia living at home, before Ben Hicks spoke about the innovative ‘Cage Cricket’ project that he is delivering at Hampshire Cricket ground. Finally Rick Fisher concluded the talks by promoting the new BUDI Online Masters Programme that started this academic year. The range of talks highlighted the varied research that BUDI continues to undertake within its remit as a cross-discipline Institute.
The post-presentation activities included a networking and poster session before Michelle Heward closed the event by delivering a Dementia Friends Awareness Session as part of BUDI’s wider aim to ensure Bournemouth becomes a Dementia-Friendly University.
Feedback suggested the event was an enjoyable day out for all those who attended and helped to ensure that BUDI continues to play an integral role in supporting those living with dementia and their care partners within the Dorset County.
‘The event exceeded my expectations – very useful contacts and information about all projects’ (Dementia Practitioner)
‘To see how the university/BUDI is linking with the community and developing ideas to improve things’ (Dementia Practitioner)
Reminder: BUDI lunch time research seminar open to all BU staff and students
You are cordially invited to a BUDI research seminar which is open to all students and staff.
Please feel free to bring your lunch.
“Fire safety in the home: local lessons – global reach”
By Dr Michelle Heward
Tuesday 8 March 2016
13.00 – 13.50pm
EB202, Executive Business Centre
Abstract
Objectives: Impairment, disability and dementia are substantial factors in increasing the risk of injury or death from fire in the home. There is, therefore, a concern that the number of people with dementia injured or dying in fires in the home will increase, in relation to the rising number of people living with dementia internationally.
Methods: Mixed methods study. Online survey sent to all Fire and Rescue Services (FRSs) in the United Kingdom (UK) (n=55) to establish provision of guidance and resources for people affected by dementia. Four focus groups: fire service professionals; other professionals; and two with people with dementia and family carers in UK (South West). Explored experiences of home safety risks (including fire risks) and risk reduction strategies, alongside ideas for project outputs such as resources.
Findings: 20 FRSs responded to the survey giving a response rate of 36.4%. A descriptive analysis showed that the provision of guidance and resources for people affected by dementia varies widely across the UK, with few providing dementia-specific information leaflets and resources. During the focus groups, people affected by dementia identified different fire risks and risk reduction strategies to those outlined by professionals. However, a need to understand each person and their individual situation came across in each of the focus groups. This was considered a vital part in determining the individual risks within each home environment. Participants also felt that a range of resources that reflect individual needs would be a useful prevention strategy.
Conclusions: For communities to be truly dementia-friendly there is a need to ensure equity in how services respond to the needs of people affected by dementia. Dementia-specific guidance and resources developed as an output from this project could be shared nationally and internationally to address potential consequences of fire safety inequality in the home. However, there remains a need for cross disciplinary working across all sectors to enable people with dementia and their families, practitioners, policy makers, and the general public to understand and contribute towards effective dementia-friendly communities. This case study of fire safety in the home demonstrates the potential impact of local level studies to improving quality of life of people affected by dementia across the globe.
We hope you can join us.
BUDI’s January 2016 Newsletter
Dementia Forum X in Stockholm. Dr. Rick Fisher, BUDI.
I was very honoured to represent BUDI as the sole invitee from a UK HEI to attend the inaugural Dementia Forum X (for Executive) in Stockholm, Sweden on Monday 18th May. In all, 100 guests from 17 countries were in attendance and the event was hosted by HM Queen Silvia of Sweden.
Dementia Forum X has been set up to bring together leading lights in dementia at the request of Silviahemmet.
Silviahemmet (Silvia’s house) was established by Queen Silvia in 1996 after her own mother was diagnosed with dementia and the queen became aware of deficiencies in the health and social care systems when care was needed by people with dementia. Stiftelsen Silviahemmet, (Silvia’s House Foundation) has become a centre of excellence for dementia education and care.
The purpose of Dementia Forum X is to raise awareness of and understanding about dementia as well as to make a difference both globally and locally. The initiative was organised by the Swedish Forum for Elderly Care in collaboration with Karolinska Institutet, the Swedish Dementia Centre, FORTE (the Swedish Research Council for Health, Working Life and Welfare) and was administered by Swedish Care International under the watchful eye of Karin Lind- Mörnesten, its CEO.
Dementia Forum X strives for a broader collaboration between executives from all parts of the global community. This event was described as a day of reflection and discussion between a hundred of the world’s leading business executives, policy-makers and other stakeholders. The participants were selected from five identified key sectors; finance, business, society, care and research. By teaming up with the leading expertise from different parts of the global society, Dementia Forum X has the capacity to create a joint understanding of the global effects of dementia. Furthermore, Dementia Forum X will be an accelerator for creativity, new initiatives and sustainable actions towards a better tomorrow.
The Forum was held at the Elite Marina Tower Hotel, Stockholm, across the water from the main city. With a minimum of protocol that would surprise most UK residents, the Queen and Crown Princess Victoria attended the morning session. During the afternoon there were a number of breakout sessions reflecting various themes; Business, Care, Finance, Research and Society. It was notable that the Queen moved around the building to attend each session and to offer her thoughts when sought.
So much for royal watching! The content of the day was based on the notion of ‘inspirational speeches’. This made a refreshing change from the usual round of lectures or ‘death by PowerPoint’ that often constitutes conference proceedings. Instead of a formal address, speakers were invited to begin discussions related to a variety of topics. This approach really worked well because of the excellence of the facilitator Nisha Pillai, formerly of BBC World Service.
Proceedings were initiated with the first speaker Åsa Regner, Minister for Children, the Elderly and Gender Equality, who set the tone by placing a strong emphasis on social care and on the rights of the individual. Fellow speakers included Ann-Charlotte Stjerna (Skandia), Professor Bengt Winblad (Karolinska Institutet), John Crawford (IBM) Sarah Lock (AARP), Dr Franz Graf von Harnoncourt (Order of Malta) Professor Niclas Adler (Babson College). Full details can be obtained from me by request.
The event was followed by a boat trip to Drottningholm, The Royal Palace, where participants witnessed the graduation of the first medical doctors to receive their Masters in Dementia award, presented on the stage of the Drottningholms Slottsteater (Palace Theatre), by HM Queen Silvia.
At the conclusion of the ceremony we were entertained by mezzo-soprano Charlotte Hellekant.
These are the personal memories that I take with me, but reflections from the breakaway groups included:
- Dementia is still not widely understood by society, and we in the UK have made good progress in raising it onto the political and social agenda in comparison with some other countries.
- Improve cross-functional collaboration between academia, industry, healthcare, and people living with dementia as well as the general population in order to optimize the generation of new knowledge.
- Increase societal and corporate awareness regarding our shared responsibilities.
- Continue to focus on and develop person centred care globally, whilst learning from best practices.
- Take the opportunities to exchange ideas and create companionships between different sectors.
- Jointly create concrete examples that show the financial benefits, business opportunities and social benefits for corporations.
And perhaps the most exciting aspect for BUDI is the way that all of these points which emerged from the meeting are reflected in the content of our new online MSc Applied Dementia Studies which will launch in September 2015.
BUDI Open Public Meeting 2015
BUDI are holding their annual Open Public Meeting on Wednesday 20th May. This years topic is “Dementia-friendly Communities”
The meeting will discuss and debate the concept of dementia-friendly communities and will consider the challenges faced by those living with dementia and how our communities can respond to ensure that people with dementia can live well.
To find out more and book your FREE ticket click here . Please forward details to those you wish may want to attend.
BUDI Open Public Meeting 2015: Dementia-friendly Communities
To coincide with Dementia Awareness Week (18-24 May 2015), on Wednesday 20 May 2015 from 12 – 3pm, Bournemouth University Dementia Institute (BUDI) are hosting their fourth Annual Public Open Meeting. This free event will showcase work that is being undertaken locally to make our community dementia-friendly.
There will be an overview of local progress in the following areas:
- Becoming dementia-friendly in Dorset and Somerset
- Dementia-friendly GP Surgeries
- Home fire safety for people affected by dementia.
Alongside updates on the following creative community involvement projects:
- Intergenerational IT Club
- BUDI Orchestra
- Gardening
- Care Farming
Anyone interested in dementia-friendly communities is welcome to attend, for more information or to register for your free place:
Call us on: +44 (0)1202 962771
Book online at: http://www.eventbrite.co.uk/e/budi-2015-open-public-meeting-dementia-friendly-communities-tickets-14377261777
BUDI Orchestra March Performance
On Friday 27th March, the BUDI Orchestra gave a lively performance in the Atrium, Talbot Campus, performing well-known songs and pieces for our enjoyment. We were pleased to see so many staff and students stop to appreciate the Orchestra’s talents, some even singing and dancing along with the musicians.
The performance gave the BUDI Orchestra the opportunity to demonstrate all they have achieved in the last eight weeks as part of a wider project funded by Dorset County Council’s Inspired by 2012 Health and Wellbeing Legacy Fund. We were fortunate that a representative from the Fund could join us for the performance, allowing him to see first-hand what the support of the Dorset Legacy Fund has meant to this inspiring group of individuals, their families and even to the BUDI team.
On a personal note, as a Research Assistant who has worked closely on this project since October (and previous versions since February 2014), I have been struggling to put what I felt during their performance into words… something more than pride, more than happiness for their achievements, and more than the bittersweet knowledge that this may be their last performance due to lack of continuous funding. These are people that have come together and formed their own social community, not through the project per se, but through the bonds they have made with other people in a similar situation to their own, sharing their experiences as they learn to make music together. They, like us, have passion for their work and for the people they have met along the way, as anyone lucky enough to watch the performance would have witnessed. It has been an incredible privilege to be part of that.
Thank you to everyone that took the time to attend and celebrate this extraordinary group of people.
BUDI Holds Technology and Dementia Masterclass
On Wednesday 18th March, the Bournemouth University Dementia Institute (BUDI) hosted a Masterclass on the use of technology with people with dementia. This was the first in a series of four Masterclasses set for the 2015 calendar year. We provided a day full of information and inspiration on the use of a range of technology with people with dementia. The morning focused on technology and everyday living, and included sessions on assistive technology, monitoring technology, smart homes, virtual reality, and dementia friendly technology guidelines. The afternoon focused on gaming technology and included opportunity to interact with a range of devices including iPads, an Xbox, Wii, a virtual reality environment, and an educational game.
We had 20 external guests attend the day, who represented organisations from the public, private, and third sectors. The feedback was on the whole very positive and we look forward to providing the next Masterclass in a few months!
Next Masterclasses:
Wednesday 17th June: Financial and Legal Aspects of Dementia Care
Future Masterclasses:
Wednesday 30th September: Creative Approaches in Dementia
Wednesday 2nd December: Promoting Wellbeing at the End of Life
BUDI attends Quarterly Meeting of the Dementia Action Alliance (DAA)
On 20th March BUDI attended the quarterly meeting of the Dementia Action Alliance (DAA). This was held in London at the College of Occupational Therapists. The day primarily consisted of presentations with time for discussion, and attracted members from private, public, and third sector organisations as well as people with dementia and their carers. The morning centred on risk reduction and the evidence for lifestyle factors to increase / decrease the risks of developing a dementia, and depression was a particular factor that was highlighted as an important risk factor. The afternoon presented two new calls to action:
Dementia Words Matter
From consultations with people with dementia, this call to action is to ask that everyone uses appropriate language when referring to people with dementia. We are to use terms such as “person with dementia” or “person living with dementia”. Terms to be avoided include referring to people with dementia as “sufferers”, “demented”, “senile”, or “victims”. Part of being a dementia friendly university will mean using the correct language when referring to people with dementia and not using terms that are likely to offend.
National Family Carer’s Involvement Network
With support of the Department of Health, this network will be to engage and equip carers to raise the profile of the needs of carers and to influence policy and practice. It will also be a resource for carers to support each other. Anyone who is a carer or knows of a carer of a person with dementia is encouraged to join this initiative and help campaign for better support and services for informal caregivers who play a vital role in supporting people with dementia.
BUDI is a proud member of the DAA and is a great place to network with key stakeholders who have an influence on policy and practice.
BUDI Orchestra Performance 27th March
Last October, BUDI were lucky enough to secure funding from the ‘Inspired by 2012 Health and Wellbeing’ Fund via Dorset County Council to run another round of our music initiative with people with dementia and their carers from the community.
BUDI Orchestra have been working hard for the last eight weeks to bring you a performance this Friday 27th March, and we would be delighted if you could come along and show your support for all they have achieved in such a short space of time.
When? 27th March 2015, 10:30 – 11:30am
Where? The Atrium, Talbot Campus
We look forward to seeing you there!
Higher Education for Dementia Network (HEDN) 17th March
Report on Meeting of the Higher Education for Dementia Network (HEDN) 17th March, Worcester
On the 17th March, BUDI attended the quarterly meeting of the Higher Education for Dementia Network (HEDN). It was held in The Hive, University of Worcester, a building co-owned by the university and the council. The Network is an open forum with a purpose to share information and innovation across UK Higher Education providers and to influence the provision of education for the current and future dementia workforce. The host institution gives a presentation at these meetings and on this occasion the University of Worcester decided to initiate discussion about their intentions of developing training for academics wanting to specialise in dementia, and dementia trainers working outside of higher education who want more training in how to design and deliver educational programmes. We also had discussion about how dementia could be better embedded within existing programmes across university departments / courses. At these meetings members also have opportunity to share about their latest developments and initiatives. BUDI was able to share about their work in developing a new MSc in Applied Dementia Studies, and the four Masterclasses that we are running this calendar year. BUDI is proud to be a member of this network and national networks such as these are great not only for sharing innovation and good practice but for working together to help shape the UK’s education provision. This network’s most recent way of achieving this was to develop a national curriculum that is now in the process of being implemented.
Cake Sale for Alzheimer’s Society
Sarah and I will be hosting a bake sale in the Talbot Campus Atrium on Thursday 5th March, from 1-3pm, in aid of our 54km trek along the Isle of Wight coastal path this May Bank Holiday weekend. We’re taking on this test of endurance to support the valuable work of Alzheimer’s Society, and to help to make a difference for people living with dementia.
We would like to raise £295 each and we’ve been challenged to reach 50% of our fundraising target by 23rd March 2015. In order to achieve this goal, we would like to invite you to indulge your sweet tooth in aid of a good cause, and join us in the Atrium this Thursday afternoon for cakes and treats!
We’ll have a wide variety of cakes, biscuits, chocolates, and other treats available, along with vegan-friendly, gluten-free, and sugar-free options. If you would like to donate some baked goods for our stall, please contact us at snoone@bournemouth.ac.uk or lreynolds@bournemouth.ac.uk to make arrangements.
We’re not putting any prices on our cakes. We want people to donate however much they would like to (loose change also welcomed!). Alternatively, if you would like to donate to our fundraising efforts online, please visit our JustGiving team page at http://www.justgiving.com/teams/IOW2015-BUDI
To give you an idea of what your generosity could mean for people with dementia:
- £5 could pay for one person to attend a half hour session at a monthly Dementia Café, providing information and support for people with dementia and their carers.
- £20 could pay for 100 copies of Understanding and respecting the person with dementia – one of the Society’s most requested factsheets
- £50 could fund a PhD researcher for one day to continue vital research into understanding the causes of dementia, how it can be treated and, ultimately, to find a cure.
- £100 could pay for 4 weekly visits by an experienced Dementia Support Worker to someone affected by dementia offering them one-on-one support to help them feel less alone and to identify the services that could help them.
- £120 could pay to run Talking Point for one day – the Society’s 24/7 online community for all people affected by dementia.
We have already received some very generous donations following our last blog post, and we would like to thank you for your support so far. We look forward to seeing you on Thursday!
14:Live with Dr Samuel Nyman
Hello!
Thank you to everyone who attended 14:Live on the 24th February, it was a very entertaining half an hour with Dr Samuel Nyman.
Dr Samuel Nyman, senior lecturer in psychology and a core member of BUDI, Bournemouth University Dementia Institute, gave us all a very interesting insight into enhancing care services for people with dementia. The talk presented two studies and ended by briefly mentioning current work under this theme and this year’s new Masterclasses and Master’s degree in dementia.
For those of you who turned up to this talk and those interested in March’s run, the date of the next 14:Live will be on 24th march at 14:00 and will be presented by Professor Matthew Bennett. So look out on the Research Blog and the student portal events page for updates on the talk, I look forward to seeing you all on the 24th March were there will again be 30 x tokens for a FREE Papa Johns pizza!
Would being a speaker at 14:Live interest you? or do you just want to find out more about student engagement with research events, if so, please feel free to contact ssquelch@bournemouth.ac.uk
14:Live Today!
Today will see 14:Live returning for its second run from 14:00-14:45 at the same location, Poole House Refectory, next to Papa Johns. It is open to all staff and students and 14:Live is pleased to welcome Dr Samuel Nyman, senior lecturer in Psychology.
Enhancing care services for people with dementia
The Bournemouth University Dementia Institute (BUDI) was established in May 2012 with a mission to make a positive influence on the lives of people with dementia. BUDI is made up of a multidisciplinary team that provides education, consultancy and evaluation, and research on a range of topics. One theme of BUDI is concerned with enhancing services that provide health and social care for people with dementia and their carers. This talk will present the findings of two studies under this theme.
The first study explored the social care needs of people with dementia who also have a visual impairment. Interviews with people in their own homes illuminated areas where services could be improved. The second study evaluated a service that supports people with dementia and their carers who are living at home. Interviews with staff and service users from the urban and rural areas identified important differences in how these two social care services operated, and the implications on care provision.
The talk will end by briefly mentioning current work under this theme and this year’s new Masterclasses and Master’s degree in dementia.
It would be great to see you all today to listen to what’s going to be a very interesting talk about BUDI’s research. Just to give you that little bit more incentive to come along, there will be tokens for the first 30 audience members to be exchanged for a FREE individual Papa Johns Pizza at the end of the talk, plus lots of free tea & coffee, water & juices – don’t miss out!
If you have any questions about this event or would like to hear about any other upcoming student engagement with research events contact me at ssquelch@bournemouth.ac.uk
I look forward to seeing you there!
14:Live with Dr Samuel Nyman
Hello!
14:Live will be returning for its second run on the 24th February 14:00-14:45 at the same location, Poole House Refectory, next to papa johns. This is open to all staff and students and I am pleased to welcome Dr Samuel Nyman, senior lecturer in Psychology.
Title of talk: Enhancing care services for people with dementia
The Bournemouth University Dementia Institute (BUDI) was established in May 2012 with a mission to make a positive influence on the lives of people with dementia. BUDI is made up of a multidisciplinary team that provides education, consultancy and evaluation, and research on a range of topics. One theme of BUDI is concerned with enhancing services that provide health and social care for people with dementia and their carers. This talk will present the findings of two studies under this theme.
The first study explored the social care needs of people with dementia who also have a visual impairment. Interviews with people in their own homes illuminated areas where services could be improved. The second study evaluated a service that supports people with dementia and their carers who are living at home. Interviews with staff and service users from the urban and rural areas identified important differences in how these two social care services operated, and the implications on care provision.
The talk will end by briefly mentioning current work under this theme and this year’s new Masterclasses and Master’s degree in dementia.
It would be great to see you all there to listen to what’s going to be a very interesting talk about some of the BUDI institutes study, and just to give you that little bit more incentive to come along, there will be 30 x tokens for the first 30 audience members to be exchanged for a FREE individual Papa Johns Pizza at the end of the talk, plus lots of free tea & coffee, water & juices, dont miss out!
If you have any questions about this event or would like to hear about any other upcoming student engagement with research events contact me on ssquelch@bournemouth.ac.uk
I look forward to seeing you there!
RADIQL: Reminiscence Arts and Dementia
Last week, I had the opportunity to attend a one-day seminar hosted by Age Exchange (http://www.age-exchange.org.uk/), at The Kings’ Fund, London, to find out more about RADIQL (Reminiscence Arts and Dementia: Impact on Quality of Life) – a method that uses Reminiscence Arts to improve wellbeing and quality of life in people with dementia.
The day started with an overview of RADIQL, described by the Artistic Director of Age Exchange as “reminiscence empowering people in the present”. RADIQL encompasses two main elements: a structured Reminiscence Arts intervention, and a workforce training programme for care staff working in relationship-centred environments. We were then given an overview of the national context – the recent CQC report ‘Cracks in the Pathway’: the quality of dementia care in health and social services, and a presentation by KCL’s Jo Moriarty on care workers’ views of compassionate care.
The Keynote was provided by Dame Eileen Sills who continued the theme of ‘compassion’ by providing the back-story of ‘Barbara’s Story’, which I’m sure many within health and social care fields will have heard of already. Barbara’s Story is a dramatization created by Guys and St Thomas’ NHS Foundation Trust to raise awareness about dementia among their staff, and show the meaning of ‘kindness’ in the workplace, emphasising the impact that every member of staff has on patient experience. Following the success of ‘Barbara’s Story’, the Trust have since developed as series for use as training materials. You can watch ‘Barbara’s Whole Story’ here (with tissues at the ready!): https://www.youtube.com/watch?v=DtA2sMAjU_Y&feature=share&list=UUbJBh2MFKrX6Lf8bJ7_ZGWQ
The afternoon sessions saw attendees partaking in interactive workshops, demonstrating the activities one might engage with during a RADIQL session. Before the day, attendees were asked to choose whether to be a ‘participant’ or a member of an ‘audience’, i.e. whether to take part in the session, or observe a session from an objective perspective. These workshops were the most insightful part of the day, giving some first-hand experience into how the sessions may be conducted. For anyone planning seminars or ‘how-to’ workshops in the future – I would highly recommend using a similar form of dissemination, if appropriate to your cause, as this seemed to resonate with most of us as an effective and engaging way to demonstrate methods and disseminate research to peers.
The RADIQL method is currently being evaluated by Royal Holloway University London in a three year pilot project funded by Guys & St Thomas’ Charity. More information about the day, and the presentations provided, can be found here: http://www.age-exchange.org.uk/radiql-the-kings-fund/
A paper copy of the interim report and a guide to RADIQL are available in the BUDI office (PG63) if anyone is interested.
BUDI Orchestra Needs You!
BUDI are still looking to recruit people with dementia and their carers to join the BUDI Orchestra, starting Wednesday 4th February 2015 for 8 weeks.
If you know of anyone living with dementia, or caring for someone with dementia, that you think would be interested in joining a music group led by professional musicians from the Bournemouth Symphony Orchestra, then please do get in touch! We are also seeking volunteers with an interest in music (staff or students) to help facilitate the sessions.
Interested?
For more information, please contact: Laura Reynolds on (01202 9) 62546 or email: lreynolds@bournemouth.ac.uk.
We look forward to hearing from you!