Tagged / PPI

New UK Standards for Public Involvement

Guidance, NHS, Research Ethics

Involving the public in your study is important, especially at the research design stage. This is called ‘Public Involvement’ (also known as ‘PPI’ [Patient and Public Involvement]). Public involvement in research means research that is done ‘with’ or ‘by’ the public, not ‘to’, ‘about’ or ‘for’ them.

By seeking the opinions and recommendations of the public, it is a great way to ensure that your study is designed and set-up in a way that will be relevant to participants, and of good quality.
This can also help to avoid any setbacks once the project is underway.

The new UK Standards for Public Involvement have now been released and were developed over three years by a country-wide partnership between the National Institute for Health Research (NIHR), Chief Scientist Office (CSO) Scotland, Health
and Care Research Wales, and the Public Health Agency Northern Ireland

They describe what good public involvement looks like and encourage approaches and behaviours that are the hallmark of good public involvement such as flexibility, sharing and learning and respect for each other.

You can see the six UK standards and supporting materials, as well as further details about the partnership, project and the piloting of the new standards, here.

Further guidance is available via the Clinical Governance section of the Research blog and via the Health Research Authority and NIHR pages.

BUCRU (Bournemouth University Clinical Research Unit) – Newsletter

NHS, Post-award

Please see the latest newsletter from the Bournemouth University Clinical Research Unit (BUCRU). We hope you find it interesting.  This is our ‘last’ newsletter and covers content from last year, we are shortly introducing new quarterly ‘BUCRU Bulletins’ with more recent content to be disseminated digitally.

BUCRU supports researchers to improve the quality, quantity, and efficiency of research locally by supporting grant applications and providing on-going support in funded projects, as well as developing our own programme of research.  2018 was an exciting year for BUCRU including being awarded a further 5 years of funding from National Institute for Health Research (NIHR) to continue our work as the RDS (Research Design Service) South West.  We’ve also submitted 14 grant applications, have 23 peer-reviewed publications and over £800,000 in grant involvement.

You can find out more within the newsletter, including news from our colleagues in the Centre of Postgraduate Medical Research and Education or visit: www.bournemouth.ac.uk/bucru

And don’t forget, your local branch of the NIHR RDS (Research Design Service) is based within the BU Clinical Research Unit (BUCRU) on the 5th floor of Royal London House. Feel free to pop in and see us, call us on 61939 or send us an email.

New page on the Clinical Governance Blog – Public Involvement in Research

Guidance, NHS, Research Ethics

Involving the public in your study is important, especially at the research design stage, this is known as ‘Public Involvement’ or ‘Patient & Public Involvement’ (PPI). This involvement can greatly improve the quality of your study design and documentation.

To better support researchers with this process (in particular for the purposes of clinical research), there is now a dedicated space for guidance, resources and wider reading, on the Clinical Governance blog space.

You can find the page here – as always if there are any specific queries, please get in touch with Research Ethics.

Health Research Authority public involvement guidance – third blog post

NHS, Research Ethics

Involving patients and/or the public in your clinical research is a great way to ensure that your study is designed and set-up in a way that will be attractive to participants. By carrying out PPI (patient and public involvement) you can also ensure that your research will be of benefit, not only to individuals but also the wider population and healthcare in general.

In 2018 the Health Research Authority (HRA) released guidance to help applicants better identify where they have involved the public in their research applications, and the difference that it made to their studies.

In addition, in January of this year two HRA blog posts were advertised, following the journey of a Research Fellow at the University of Surrey, who conducted PPI for her research project. The first and second posts can be found on the HRA website alongside other news items.

The HRA have just released the third blog post in which they talk to one of the lay Research Ethics Committee (REC) members who sat on the panel that reviewed the fellow’s study. The post explores the Committee member’s views on how public involvement benefited the research application. You can find it here.

Remember that support is on offer at BU if you are thinking of introducing your research ideas into the NHS, social care or healthcare institutions – email the Research Ethics mailbox, and take a look at the Clinical Governance blog.

Patient and Public Involvement Seminar Series

DrBUDSPA James Gavin is running a free series of seminars on  patient and public involvement (PPI).

This series will highlight the importance of PPI throughout the research cycle, from design to dissemination. PPI is gaining importance to identify treatments that meet people’s needs and are more likely to be adopted in practice.

Speakers will share insights on involving the public as partners to improve: relevance, quality, study protocol design and the communication of findings in health research. The speakers are from a variety of roles in occupational therapy, mental health, social work, health demographics, education and national health governance.

To find out more information and to book your place please click here.

Date Location Time Speaker Seminar Title
Monday 6 March 2017 EB708, Lansdowne Campus 3.00-4.30pm Professor Jo Adams Making research meaningful and accessible to patients: Why PPI is crucial to designing effective health research studies
Wednesday 15 March 2017 EB708, Lansdowne Campus 3.00-4.30pm Lisa Gale-Andrews & Dr Zoe Sheppard Importance of public involvement in research design: an orthopaedic case study
Monday 3 April 2017 EB708, Lansdowne Campus 3.00-4.30pm Dr Mel Hughes & Angela Warren Recruiting and supporting participants to engage in meaningful PPI
Monday 24 April 2017 EB708, Lansdowne Campus 11.00am-12.30pm Simon Denegri How can today’s patient help research tackle tomorrow’s health challenges?

Patient and Public Involvement – the findings of a pilot programme run by Parkinson’s UK

HomeThe findings of a pilot programme run by Parkinson’s UK to explore the difference patient and public involvement (PPI) can make to research are now available. Both researchers and those involved valued the contribution made by members of the public to the research process, with particular benefits relating to written information about the research, and to the study design. Both a two-page summary and the full report of the findings can be found at the link above.

If you’re interested in PPI, we’ll be running a session as part of the RKE Development Framework, targeted particularly at NIHR applications. More information will be made available as soon as possible here.