Category / Ageing and Dementia

Burdett Trust for Nursing Grant

‘Delivering Excellence in Nutrition and Dignity in Dementia Care – Empowering Nurses and Care Home Staff to Enhance the Care Environment’.

Dr Jane Murphy and Joanne Holmes from the School of Health & Social Care, working in collaboration with representatives from local council (Partners in Care), the Local Enterprise Partnership, local and national care home organisations have won significant grant income from the Burdett Trust for Nursing to tackle the increasing and yet unresolved problems of nutrition and delivering dignity in dementia. Over a two year period, the project will identify best practice guidelines for delivering nutrition in dementia care by providing a new nutrition education programme based on fundamental principles of self-leadership and nutrition to empower nurses and care home staff. The programme will be easily translated and adopted widely to induce a long-lasting culture change towards excellence in dementia care that is person-centred and upholds dignity.

 

For further details, contact either Jane (jmurphy@bournemouth.ac.uk) or Joanne (holmesj@bournemouth.ac.uk).

 

eBU is now live with papers for comment!

BU research, PG research, Publishing, Research news, Research themes, Uncategorized

 

eBU can now be accessed

I am delighted to announce that eBU, the online BU journal that operates on the basis of immediate publication and open peer review, is now live with two papers ready for comment.

Jane Murphy (HSC), Louise Worswick (HSC), Andy Pullman, Grainne Ford (Royal Bournemouth Hospital) and Jaana Jeffery (HSC PhD student) suggest that e-learning is a great way to deliver nutririon education and training for health care staff who are involved in the care pathway for cancer survivors. The abstract can be found below:

Health care professionals are in a prime position to provide diet and lifestyle advice, but there are gaps in their own knowledge and education highlighting the need for improvements in teaching and learning approaches. This paper presents the rationale for the design, implementation and evaluation of an e-learning resource to deliver nutrition education and training for health care staff who are involved in the care pathway for cancer survivors. The findings of the evaluation are discussed and the importance of the resource in terms of its impact upon the provision of nutrition, diet and lifestyle advice in practice for the delivery of care and support of cancer survivors.

This paper can be accessed here –

http://ebu.bournemouth.ac.uk/index.php/ebu/article/view/9

Dorothy Fox (ST) uses original research to discuss the dynamics of doctoral supervision and provides recommendations for improving supervisory practice. The abstract can be found below:

Abstract:

This article reports an exploratory study of the professional relationships between supervisors who co-supervise management doctoral students in England. It draws on the concept and theoretical framework of emotional geographies (Hargreaves 2001) to understand the affective elements of these relationships. Team supervision has become mandatory in many Western universities and whilst the advantages and disadvantages of this development have been identified, the relationship between supervisors has not received the same attention. This is despite the evidence from students that positive or negative relationships within the supervisory team are of critical relevance to a successful outcome. Data from 13 in-depth interviews with supervisors was analysed and the emotional geographies are revealed. Further analysis showed that differences within the relationship are resolved in ways that are either ‘autocratic’, ‘overtly democratic’ or ‘covertly democratic’. With the aim of improving the quality of supervisory practice, the implications for doctoral supervision are discussed.

This paper can be accessed here –

http://ebu.bournemouth.ac.uk/index.php/ebu/article/view/8

Burdett Trust for Nursing Grant: Humanising Services: A new transferable leadership strategy for improving ‘what matters to older people’ to enhance dignity in care

Awarded & submitted bids, Featured academics

In collaboration with Bournemouth University, Professor Kathleen Galvin of the Faculty of Health and Social Care, University of Hull has been successful in attracting a grant from the Burdett Trust for Nursing to apply a new theoretical framework for the purpose of ‘humanising services’ in two clinical settings. The experience of dignity is linked to what makes people ‘feel human’. Conversely, what leads to dehumanisation and therefore loss of dignity needs to be understood and acted upon in meaningful service improvement. (Patients Association, 2009; 2012). Using a lifeworld orientation and grounded in phenomenological philosophy eight key considerations that are relevant to the challenge to improve peoples’ experiences of the human dimensions of services have been defined (Todres et al., 2009; Galvin & Todres, 2012). These are not detailed lists of ‘do’s’ and ‘don’ts’ or abstract generalities such as the need for more ‘user /customer focus’ or ‘choice’. Rather, they are eight dimensions about what makes a person feel human, which could help nurses, with service providers, to effectively focus their leadership when improving services to enhance dignity in care.  The team from University of Hull, Professor Steven Ersser, Dr Fiona Cowdell, Professor Roger Watson, Jane Wray, Kathleen Galvin and the team from Bournemouth University, Professor Les Todres and Dr Caroline Ellis-Hill are interested in what older people with long term skin conditions (being treated at a dermatology outpatient clinic) and people who have had a stroke (being cared for in a stroke rehabilitation unit with outreach service) point to that would make human perspectives more central in treatment. Our key practice partners include: Dr. Shernaz Walton, Consultant Dermatologist, Hull and East Yorkshire, NHS Trust and Dr Damien Jenkinson, National Stroke Lead, Royal Bournemouth Hospital Trust. Within these two settings, dermatology clinic and a stroke rehabilitation unit, a tripartite humanising improvement team group comprising older service users, nurses, and academics will engage in a robust ‘humanising improvement’ process that will be evaluated.

Galvin, K.T. &  Todres, L (2012) Caring and Well-being: A lifeworld approach. London: Routledge

The Patients’ Association (2009) Patients…not numbers, People…not statistics.

 The Patients’ Association (2012) Stories from the present, lessons for the future.

Todres, L., Galvin, K. and Holloway, I. (2009) The humanisation of healthcare: a value framework for qualitative research.  International Journal of Qualitative Studies on Health and Well-being, 4, 68-77.

eBU in final stages before launch – please submit now!

BU research, Publishing, Research themes

eBU is going through the final IT phases before the anticipated launch at the end of July.

I have been delighted with the interest that eBU has generated from all sections of the BU community. Academics, students and professional and support staff have all shown an interest in submitting to and signposting others to eBU, and it is clear that eBU will play a significant role in developing academic output.

eBU has champions in each school (I’m happy to put people in contact), and section editors across all of the research themes under which submissions will sit.

Authors will be encouraged to submit by logging in to the eBU site. However, if you’re interested in submitting to eBU before the live date, please get in touch and email submissions to me at eBU@bournemouth.ac.uk or aharding@bournemouth.ac.uk

We already have some submissions, and submissions sent to me before the launch date will be among the first to be published by eBU and undergo immediate publication and open peer review.

Author guidelines can be found here – eBU guidelines.

Yawning Up-State Post-Visit Report Part 2 – Santander Travel Scholarship – Dr Simon Thompson

Awarded & submitted bids, BU research, Featured academics, Fusion, Post-award, REF Subjects, Research themes

Science Center, Bard College, Rhinebeck, New York State.

 

Bard College, Rhineback, New York State.

 

Circada.

 

L-R: Dr Andrew Gallup; Dr Simon Thompson.

 

Most people can relate to yawning as all of us have done this at some time, with some of us being prolific yawners. However, little is known about the reasons for us yawning or the mechanisms involved.

My work on the link between cortisol and yawning has been published and is gaining momentum in the scientific community with presentations at the First International Conference on Yawning in Paris in 2010 and a forthcoming symposium being planned by me at Bournemouth University.

My travel scholarship enabled me to visit key workers in the field in upstate New York and with affliations with Prinecton University and Bard College (see photos). This has been so successful that we envisgae research collaboration between BU and the USA. I was even able to meet with the assistant to the world famous Professor Oliver Sack’s to discuss my resaerch and to “put it on the map” in the neurological community!

A bonus of my trip was to encounter first hand an extremely rare circada that hatches in the region I visited only every 17 years! What a privilege!

I am most grateful to Santander for their generous support and I believe this trip will help me make significant steps forward in my clinical research i yanwing and multiple sclerosis at BU.

Research Ethics: Insights from the Centre for Midwifery, Maternal & Perinatal Health and the Centre for Social Work, Sociology & Social Policy

BU research, PG research, Publishing, Research Ethics, Research Integritiy, Uncategorized

Ethics contributions

Collage of research ethics contributions

Academics based in HSC have experience in a wide-range of research.  In the process of reflecting on all aspects of the research process several members of HSC have published about ethical issues that they have had to address in their own research.    This BU Blog highlights some of these key HCS papers which may help fellow academics and students across the globe address similar ethical questions.  HSC has a history of publishing on research ethics, Professor Emerita Immy Holloway wrote about the researcher who may have a dual role, or even conflicting role, as researcher and health care professional (1).  More recently, several midwifery researchers in the Centre for Midwifery, Maternal & Perinatal Health wrote about the issues facing practitioners doing research in the field where they work, especially concerning the similarities and differences between professional ethics and research ethics (2-3).  Negotiating ethical paths cleaved by competing concerns between protecting research participants and over-managing the ethical process is tricky.

In her book Rainforest Asylum: The enduring legacy of colonial psychiatric care in Malaysia Dr. Ashencaen Crabtree in the Centre for Social Work, Sociology & Social Policy, addresses the problematic issue of gate-keepers in research together with the ethics of critical observation of abuse (potential or actual), as well as the ethics of advocating on behalf of research participants (4).

The fear that the ethical application process in the UK is becoming more and more cumbersome and bureaucratic has been widely recognised as highlighted by Prof. van Teijlingen and colleagues (5-6).

Research ethics review processes are also considered in terms of access to participants regarded as ‘vulnerable’ in a recently published paper by Dr. Ashencaen Crabtree (7) of ethnographers working in health settings who are seeking to understand the context of care and patient/service user experiences.  She concludes that paternalistic control of participation on the grounds of ethical protection of vulnerable people seriously disenfranchises potential participants in preventing them from being able to share their relevant, lived experiences as recipients of service provision.

Prof. van Teijlingen and BU Visiting Fellow Dr. Padam Simkhada highlighted that the social, cultural and economic contexts in which research is conducted often differ between developing and developed countries.  However they stress that researchers need to apply for research ethics approval to the relevant local authority, if national legislation requires one to do so (8).

A new and challenging area of research is the use of discussion boards as a source of research data.  In their paper Dr. Bond and BU colleagues discuss both practical and ethical dilemmas that arise in using such data (9). In earlier research, Prof. Parker of the Centre for Social Work, Sociology & Social Policy, highlighted some of the benefits and dangers of using email and the Internet for research as the potential for electronic media continues its rapid growth (10).

Obtaining informed consent is something that all researchers need to consider. However, in some research situations obtaining consent can be particularly challenging.  Prof. Hundley and colleagues discuss the ethical challenges involved in conducting a cluster randomised controlled trial, where consent needs to be considered at a number of levels (11).  In a second paper issues of consent during pregnancy, where there is the potential for harm to two participants, are considered (12).

In research into the implications of the Mental Capacity Act 2005 for social research, Prof. Parker explored the contested meanings and difficulties associated with informed consent in social research, highlighting some of the challenges raised by an almost unquestioned acceptance of biomedical research ethics in social research and questioning whether potential ‘harm’ is different in this context (13, 14). This research has led to further explorations of the potential for ethical covert research by Prof. Parker and Dr. Ashencaen Crabtree.

 

The way forward

There a plenty of challenges to research ethics in both the health and social care sectors.  Ethical considerations relate to technological developments such conducting research over the Internet or the analysis of tweets.  HSC staff will continue to publish on a range of moral dilemma as well as practical issues related to research ethics.  Moreover, academic from the two centres are planning a Masterclass on research ethics to be held in early 2014.

 

 

References

  1. Holloway, I., Wheeler, S. (1995) Ethical Issues in Qualitative Nursing Research, Nursing Ethics 2: 223-232.   Web address:  http://nej.sagepub.com/content/2/3/223.full.pdf+html
  2. Ryan, K., Brown, B., Wilkins, C., Taylor, A., Arnold, R., Angell, C., van Teijlingen, E. (2011) Which hat am I wearing today? Practicing midwives doing research, Evidence-Based Midwifery 9(1): 4-8.
  3. van Teijlingen, E.R., Cheyne, H.L. (2004) Ethics in midwifery research, RCM Midwives Journal 7 (5): 208-10.
  4. Ashencaen Crabtree, S. (2012) Rainforest Asylum: The enduring legacy of colonial psychiatric care in Malaysia, London: Whiting & Birch.
  5. van Teijlingen, E., Douglas, F., Torrance, N. (2008) Clinical governance and research ethics as barriers to UK low-risk population-based health research? BMC Public Health 8(396)                            Web address: www.biomedcentral.com/content/pdf/1471-2458-8-396.pdf
  6. van Teijlingen, E. (2006) Reply to Robert Dingwall’s Plenary ‘Confronting the Anti-Democrats: The unethical Nature of Ethical Regulation in Social Science, MSo (Medical Sociology online) 1: 59-60  Web address:  www.medicalsociologyonline.org/archives/issue1/pdf/reply_rob.pdf
  7. Ashencaen Crabtree, S. (2013) Research ethics approval processes and the moral enterprise of ethnography. Ethics & Social Welfare. Advance Access: DOI:10.1080/17496535.2012.703683
  8. van Teijlingen E.R., Simkhada, P.P. (2012) Ethical approval in developing countries is not optional, Journal of Medical Ethics 38 :428-430.
  9. Bond, C.S,  Ahmed, O.H., Hind, M, Thomas, B., Hewitt-Taylor, J. (2013) The Conceptual and Practical Ethical Dilemmas of Using Health Discussion Board Posts as Research Data, Journal of Medical Internet Research 15(6):e112)  Web address: http://www.jmir.org/2013/6/e112/
  10. Parker, J.  (2008) Email, ethics and data collection in social work research: some reflections from a research project, Evidence & Policy: A Journal of Research, Debate & Practice, 4 (1): 75-83.
  11. Hundley, V, Cheyne, HC, Bland, JM, Styles, M, Barnett, CA.. (2010) So you want to conduct a cluster randomised controlled trial? Lessons from a national cluster trial of early labour, Journal of Evaluation in Clinical Practice 16: 632-638
  12. Helmreich, R.J., Hundley, V., Norman, A., Ighedosa, J., Chow, E. (2007) Research in pregnant women: the challenges of informed consent, Nursing for Women’s Health 11(6):  576-585.
  13. Parker, J., Penhale, B., Stanley, D., 2010. Problem or safeguard? Research ethics review in social care research and the Mental Capacity Act 2005. Social Care & Neurodisability, 1 (2): 22-32.
  14. Parker, J., Penhale, B., Stanley, D. (2011) Research ethics review: social care and social science research and the Mental Capacity Act 2005, Ethics & Social Welfare, 5(4): 380-400.

 

Vanora Hundley, Sara Ashencaen Crabtree, Jonathan Parker & Edwin van Teijlingen

 

 

eBU staff drop in sessions to be held in each school

BU research, PG research, Publishing, Research news, Research themes

I am pleased to announce that I am holding drop in sessions in each school for the BU community to ask questions about eBU: Online Journal.

These sessions will be:

Mon 24th June – DEC 12 -2pm in P411

Mon 24th June – School of Applied Sciences 2-4pm in C122

Tues 25th June – HSC 9-11am in the Wellbeing Centre, B112 Bournemouth House 

Tues 25th June – Business School 2-4pm in EB205

Thurs 27th June – School of Tourism 1.30-3.30 in P410

Fri 28th June – Media School 8-10am in CAG04

 

Festival of Learning – Testament to a Successful Morning (Dr Simon Thompson, DEC Psychology Research Centre)

BU Challenges, Featured academics, Festival of Learning, Fusion, Research Ethics, Research Integritiy, Training

‘Testamentary Capacity in Dementia’ (03 June 2013 10:00h – 13:00h) – Presentation followed by in-depth plenary session about the complexities of leaving an estate to beneficiaries following a diagnosis of dementia.

‘Dementia’ is an umbrella term used to describe many types of deteriorating diseases – the most common ones are Alzhiemer’s disease, Vascular dementia, and Lewy body dementia.

Many married couples own property as ‘joint tenants’. Upon death, ownership automatically passes to the survivor. If property is owned as ‘tenants in common’, one half of the estate belonging to the deceased is dealt with by their Will. Problems arise when there is no Will, when others make a claim, or when another Will is executed.

‘Testamentary capacity’ is a person’s legal and mental ability to make a
valid Will. There are three premises: Presumption of capacity; Requirements; Proof of testamentary capacity.

It is proposed that the law should allow testators alternative means of satisfying the testamentary capacity standard such as an option to validate a testator’s capacity during their lifetime through forensic assessment measuring cognitive elements of testamentary capacity.

It does not remove the difficulty of knowing the status of person at a specific time line. However, it goes some way to describing a person during their lifetime in terms of mental ability and capacity.

Thompson, SBN (2006). Dementia and memory: a handbook for students and professionals. Aldershot: Ashgate.

Thompson, SBN (2012). Dementia. In SBN Thompson (Ed), Psychology of trauma: clinical reviews, case histories, research (pp169-202). Portsmouth: Blackwell-Harvard-Academic.

‘Off the Campus and Into the Community: Teaching for Social Justice

BU research, Research themes

Speaker: Dr Susan Hyatt, Visiting Fellow, Department of Applied Social Sciences, Durham University, Associate Professor of Anthropology, IU School of Liberal Arts, Indiana University – Purdue University, Indianapolis 

 Monday, 17th June 2013

12:00– 13:30

R303  Royal London House

 

Abstract:

Over the past 20 years, institutions of higher learning in the US, both public and private, have increasingly emphasized the value of civic engagement and community outreach as integral parts of their educational missions. In my teaching of applied anthropology, I have embraced this pedagogical turn as a way to involve students in community-based issues and to promote critical thinking. In this talk, I offer several brief examples where I have taken students out off the campus and into the community to engage in collaborative research projects. And, I have also offered students opportunities to participate in courses taught in somewhat unconventional community settings, including prisons and a residential treatment facility for women overcoming addiction. I argue that through such courses, we do not teach our students about social justice; rather, we allow students to experience for themselves the inequalities that structure much of our contemporary world and to reflect deeply on the ways that social action connects theory with practice.

 

 

PHENOMENOLOGY INTEREST GROUP: Sport and Well-being

BU research

 

 

 

 

You are warmly invited to the fourth meeting of the Phenomenology Interest Group which will be held on Wednesday 3 July between 12.00—1.30. Venue: R201, Royal London House

We are fortunate to have Dr Joanne Mayoh and Dr Ian Jones from the School of Tourism who will demonstrate an example of cross-disciplinary thinking and the translation of theory into practice:

Title: Using the Dwelling Mobility theory to explore how sport can make wellbeing an experiential possibility

Abstract:

The positive relationship between sport and wellbeing has been widely documented in both policy documents and the academic literature. Whilst it is widely acknowledged that this relationship exists, little is known regarding how and why sport can contribute to positive wellbeing for individuals.  Subsequently, there is a need for research that takes a bottom-up approach in order to adequately explore the nature of this relationship in order to contribute to wider knowledge regarding sport and wellbeing, and effectively inform future policy and practice. In mirroring this approach our research draws upon phenomenological philosophers such as Heidegger and Merleau-Ponty to provide a view of the individual that sees them having a sense of agency and existential freedom. This philosophical standpoint will provide the human-centred emphasis for research that is required to fully understand how sport and wellbeing may be connected.  Specifically, this paper draws upon the existing work of Todres & Galvin with regards to Dwelling- Mobility Theory in order to consider how lifeworld philosophy could become more central in leading sport research. In line with this theory, our work considers how sport can provide a sense of dwelling, mobility, and dwelling-mobility within each of six lifeworld dimensions: temporarily; spatiality; embodiment; inter-subjectivity; identity and mood. We conclude that sport is one of the few single activities that can provide the potential for feelings of dwelling, mobility and dwelling-mobility within these dimensions simultaneously.

Dr Joanne Mayoh is a Lecturer in Sport, Physical Activity and Health at Bournemouth University. Her main research interests include the Conceptualisation of Wellbeing, and Active Ageing. She has published journal articles on Phenomenology and research methodology.

Dr Ian Jones is the Associate Dean for Sport at Bournemouth University- His research interests include Sport and Identity, Sport Fandom, and Spectators. He is author of Research Methods for Sport Studies and Qualitative Research in Sport and Physical Activity.

BU Research Blog Exclusive: Design & Look of eBU leaked

BU research, PG research, Publishing, Research news, Research themes

The first screenshot of the eBU interface has been exclusively leaked to the BU Research Blog, and is expected to go viral across the BU community over the next week.

eBU will provide both an internal and external forum for the development of research papers by undergraduate to Professor around the eight BU research themes:

–          Creative & Digital Economies

–          Culture & Society

–          Entrepreneurship & Economic Growth

–          Environmental Change & Biodiversity

–          Green Economy & Sustainability  

–          Health, Wellbeing & Ageing 

–          Leisure & Recreation

–          Technology & Design

Submissions will be open to immediate publication (in a safe internal environment) and open peer review by 2 appropriate BU academics. Authors will be encouraged to act upon these reviews by either reworking papers for submission to an external journal or by opting for publication on the external eBU site.

For BU academics this is a great opportunity to get critical appraisal on your research papers or ideas from colleagues. For academics it also an opportunity to encourage the submission of high quality student output, and possibly to facilitate the co-creation and co-production of publishable material to an external journal or to publish externally with eBU. For students, this is a fantastic opportunity to turn high quality essays or dissertations into scholarly outputs, which will be attractive to employers across many sectors and industries.

If you have any questions or would like to become involved in this exciting venture, please get in touch with me via email aharding@bournemouth.ac.uk or by telephone 01202 963025.

eBU: Online Journal

BU research, Fusion, PG research, Publishing, Research news, Research themes

Following on from my last post ‘Developing a Working Paper at BU’ in January of this year, we are now within sight of having an exciting new online journal at BU. eBU will provide both an internal and external forum for the development of research papers by undergraduate to Professor around the eight BU research themes:

 

–          Creative & Digital Economies

–          Culture & Society

–          Entrepreneurship & Economic Growth

–          Environmental Change & Biodiversity

–          Green Economy & Sustainability  

–          Health, Wellbeing & Ageing 

–          Leisure & Recreation

–          Technology & Design

Submissions will be open to immediate publication (in a safe internal environment) and open peer review by 2 appropriate BU academics. Authors will be encouraged to act upon these reviews by either reworking papers for submission to an external journal or by opting for publication on the external eBU site.

For BU academics this is a great opportunity to get critical appraisal on your research papers or ideas from colleagues. For academics it also an opportunity to encourage the submission of high quality student output, and possibly to facilitate the co-creation and co-production of publishable material to an external journal or to publish externally with eBU. For students, this is a fantastic opportunity to turn high quality essays or dissertations into scholarly outputs, which will be attractive to employers across many sectors and industries.

It is anticipated that author guidelines will be circulated in the coming weeks, and staff and students alike should begin to think about how they could submit to eBU.

If you have any questions or would like to become involved in this exciting venture, please get in touch with me via email aharding@bournemouth.ac.uk or by telephone 01202 963025

Yawning in France

Awarded & submitted bids, BU research, EU, Funding opportunities, Post-award, Research news, Uncategorized

My recent visit to Paris via the Erasmus Teaching Mobility scheme has been most useful, not only as it continues to strengthen the links I have made with like-minded researchers and clinicians, but also because it exposes you to raw student talent. This is important to help you keep up to date with current views and research with the assistance of an eager and interrogative French audience! Such visits are quite intellectually challenging, partly because my level of French is constantly under scrutiny! The collaborative research links I have made are invaluable and I hope to submit some reasrch bids in the area of Multiple Sclerosis and yawning soon.

Finding (and defining) Friendly in New York City

Fusion, Research themes, Uncategorized

‘Dementia Friendly’ is a sound bite used frequently at the moment in my field. This is in part due to the Prime Ministers 2012 Dementia Challenge which has a particular component aspiring to the creation of 20 dementia friendly towns/cities by 2015. But what does dementia friendly actually mean? and how do we know when we have an example of something that is dementia friendly? A colleague and I spent a week in New York City earlier this month and we were truly ‘wowed’ by the dementia friendly initiatives we witnessed. The first was at MOMA where they have an established programme for people with dementia that we were lucky enough to be able to join one afternoon. What made this programme dementia friendly? Three things in my view; first the educators (their term) made no attempt to ‘dumb down’ their offering to those with dementia (too often people with dementia are treated as less able without first having tested the waters to see if  just because the label of ‘dementia’ applied means that the person is unable to participate in various everyday activites ‘as usual’ or if it needs modified in some way, in this case participating in an arts appreciation programme). Two it was extremely difficult to tell who might have dementia and who were the accompanying family members and finally the contributions from the group reflected the individual perspective different people have on what is ‘art’, what they like, or in the case of one man what was ‘trash’ (every piece we stopped at!). We were also invited to join a choir rehearsing in a cathedral (an extremely modern building that we walked by twice before realising this was the cathedral, another story…) for the final time before performing at MOMA the following week (we didn’t get to see the real performance as back at BU by then). This choir group, known as ‘The Unforgettables’, was amazing, the two directors created an unbelievable energy in the room, there was laughter, fun, serious points made about music/signing. Individuals who could barely walk took their turn to stand by the piano and sing heart rending solos which brought a tear to the eye, a lump to the throat. By contrast, other couples sang humourous duets. This was an inspiring group to witness. The choir directors had again made a conscious decision not to ‘dumb down’ their approach but to encourage and challenge, in the same way that they would any other choral group. The results were incredible. We were offered hospitality by the group members, the only tell tale sign that one particular man had dementia was his bringing us 5 cups of iced tea and numerous plates of fruit/cake/biscuits as he didn’t remember that he had already been up to the table and brought us over some goodies. We also visited the Metropolitan Museum, again with long established groups for people with dementia. Some involve art making, others art appreciation, others tours of different parts of the museum. Again the underpinning philosophy is one of ability to engage, to promote intellectual stimulation, social interaction and also the programmes encourage a degree of physical activity by choosing exhibits at various places throughout the building (mental, physical and social stimulation being key to reducing risk of developing dementia, but also to maintaining well-being once diagnosed).

We went to New York because we had heard about the programmes and wanted to see if possible to learn and implement back here in Dorset but also to meet with academic colleagues, present at NYU, meet with the US Alzheimer Association (which has really made us think about donations and fund raising to support our work) and these were also very productive parts of the trip and reinforced that the approach we are taking at BU Dementia Institute is one that we should continue (mainly that engagement and collaboration with the range of stakeholders that has been guiding our work should continue). But what stands out for me is the energy and enthusiasm of those running groups for people with dementia and the huge engagement and enjoyment this approach created. The US might not have a ‘dementia friendly agenda’ being driven at a national policy level,  and New York might not immediately spring to mind as a place where one could live well with dementia, but the initiatives we saw clearly demonstrate the possibility to create dementia friendly environments even in places where sign posting might not be clear, transport busy and where the assumption that services ‘cost’ can be challenged (all the programmes we joined are free to those with dementia).

State of Yawning – Santander Travel Scholarship awarded to Dr Simon Thompson

Awarded & submitted bids, BU research, Featured academics, Fusion

Studying yawning has the potentially benefit of identifying underlying neurological disorders. Strong evidence of a link between yawning and fatigue, and with multiple sclerosis, is known. Mechanisms involved in excessive yawning are not understood and my work has shown a definitive link between yawning and cortisol levels in normal people. However, since people with multiple sclerosis often yawn excessively, it is important to establish whether or not their cortisol levels rise as with normal people since prolonged rises in cortisol levels indicate stress and may also indicate adverse neurological symptomatology. My work has generated a new hypothesis to explain the occurrence of excessive yawning and is complementary to Dr Gallup’s theories on thermoregulation in multiple sclerosis, which is pioneering. I am meeting Dr Gallup (Princeton University) in New York to discuss further studies in order to stay ahead of research progress. This is an excellent opportunity for kudos for Bournemouth University in being the first to carry out such research.

Want a challenge? short term secondment opportunity @ the Bournemouth University Dementia Institute

The BU Dementia Institute is growing fast with staff or students involved in various ways from all BU schools. We have a short term secondment opportunity (3 months) to work with us as Project manager to help develop our profile, income streams and to work on selected existing projects. Interested? Take a look at http://www.bournemouth.ac.uk/jobs/hsc184.html and drop me an email if you would like to discuss ainnes@bournemouth.ac.uk