Category / Publishing

#DataSavesLives – using patient data for research

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Patient data underpins and leads to improvements in research and care.

The National Institute for Health Research (NIHR) has recently shared a resource surrounding the use of patient data in clinical research. The page contains a number of useful links to guidance such as the NHS pages on why patients’ data matters and also the Understanding Patient Data resource, which outlines a set of key principles that should be followed in using patient data for research purposes.

Acknowledging contribution

It’s important that if a researcher uses patient data, that they acknowledge it by using the following citation –

“This work uses data provided by patients and collected by the NHS as part of their care and support”

The above has been developed by use MY data, a movement of patients, carers and relatives, in place to ensure that the patient data used is protected by the appropriate safeguards, and is treated with the respect and confidentiality it deserves.

National data opt-out programme

The page likewise signposts the above programme which allows patients and the public to opt-out of their confidential patient information being used for planning and research purposes.

All health and care organisation will uphold these choices by March 2020.

Two papers rejected the day after submission in same week

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This week we had this enviable record of two academic papers on health topics being rejected the day after submission.  The first paper was submitted on Monday to Issues in Mental Health Nursing.  Our paper reported the Content Analysis of a review of the nursing curricula on mental health and maternity care issues in Nepal. The journal editor emailed us the next day to inform us that the topic was interesting, but not relevant enough to the journal’s readers.

The second paper submitted by a different configuration of staff was submitted last Friday to the Journal of Youth & Adolescence.  The second paper reported a qualitative study on students views on abortion in the south of England.  This journal’s rapid reply came the next day (yesterday) stating that:

Unfortunately, the editors have completed an internal review of your study and have deemed your manuscript inappropriate for our journal. Although your manuscript has important strengths, the journal has moved away from supporting qualitative work (unless it would be part of a journal special issue). Please rest assured that our decision has nothing to do with the quality of your study or findings.

On both occasion we had discussed potential journals and we thought we had targeted appropriate journals for the respective manuscripts.  Moreover, in both manuscripts we managed to cite at least one paper published in the journal to which we had submitted it.  The general message to my colleagues is that it does not matter how many papers you have written and submitted, you will: (1) occasionally opt for the wrong journal; (2) continue to face regular rejection by journal editors; and (3) have an opportunity to submit to another journal.

 

Prof. Edwin van Teijlingen

Centre for Midwifery, Maternal & Perinatal Health

BU PhD student PROSPERO publication

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Congratulations to BU PhD student Dimitrios Vlachos who had his PROSPERO protocol published [1].   Dimitrios working on a project promoting the Mediterranean-style diet in childbearing age, he is supervised across faculties by Dr. Fotini Tsofliou and Prof. Katherine Appleton.

Well done!

Prof. Edwin van Teijlingen

Centre for Midwifery, Maternal & Perinatal Health (CMMPH)

 

Reference:

  1. Tsofliou, F., Appleton, K., Vlachos, D. (2018) Barriers and facilitators to following a Mediterranean style diet in adults: a systematic review of observational and qualitative studies. PROSPERO 2018 CRD42018116515

 

 

 

New paper on Nepal by FHSS’s Dr. Nirmal Aryal

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Many congratulations to Dr. Nirmal Aryal, postdoctoral researcher in FHSS for his new publication ‘Blood pressure and hypertension in people living at high altitude in Nepal’ in Hypertension Research [1]. Hypertension Research is a prestigious journal published by Nature (Impact Factor of 3.4).

This is the first study of its kind to collect cardiovascular disease and risk factors related information at four different altitude levels above or equal to 2800 m and from ethnically diverse samples. This paper highlighted that despite known hypoxia-induced favourable physiological responses on blood pressure, high altitude residents (>2800 m) in Nepal might have an increased risk of raised blood pressure associated with lifestyle factors and clinicians should be aware of it. The authors previously published a systematic review paper summarizing global evidence on the relationship between blood pressure and high altitude [2].

This publication is available online at: https://www.nature.com/articles/s41440-018-0138-x and pre-refereed version is available in BURO.

Well done!

Dr. Pramod Regmi & Prof. Edwin van Teijlingen

 

References:

  1. Aryal N, Weatherall M, Bhatta YKD, Mann S. Blood pressure and hypertension in people living at high altitude in Nepal. Hypertension Res 2018 doi: 10.1038/s41440-018-0138-x[published Online First: Epub Date]|
  2. Aryal N, Weatherall M, Bhatta YKD, Mann S. Blood pressure and hypertension in adults permanently living at high altitude: a systematic review and meta-analysis. High Alt Med Biol 2016; 17: 185-193.

Highly topical BU article on BREXIT

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Congratulations to Dr. Rosie Read and Prof. Lee-Ann Fenge in the Faculty of Health & Social Sciences who just published in the academic journal Health and Social Care in the Community.  Their paper is called ‘What does Brexit mean for the UK social care workforce? Perspectives from the recruitment and retention frontline’ [1].  You can’t have a more topical academic paper and it is freely available on the web through Open Access!  

The paper is based on research on research they undertook last year on the impact of Brexit on the social care workforce.  A key finding is that, irrespective of whether they employ EU/EEA workers or not, research participants have deep concerns about Brexit’s potential impact on the social care labour market. These include apprehensions about future restrictions on hiring EU/EEA nurses, as well as fears about increased competition for care staff and their organisation’s future financial viability. This article amplifies the voices of managers as an under‐researched group, bringing their perspectives on Brexit to bear on wider debates on social care workforce sustainability.

Congratulations!

Prof. Edwin van Teijlingen

 

Reference:

  1. Read R, Fenge L‐A. (2018) What does Brexit mean for the UK social care workforce? Perspectives from the recruitment and retention frontline.
    Health Soc Care Community [online first] :1–7.    https://doi.org/10.1111/hsc.12684

 

 

Congratulations to Denyse King

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Congratulations to Denyse King, who is currently attending the Future Technologies Conference, FTC 2018; Vancouver, BC; Canada (15-16 November).  Her conference paper ‘NoObesity apps – From approach to finished app’ has been published in Advances in Intelligent Systems and Computing [1].  Denyse is part of the Centre for Midwifery, Maternal & Perinatal Health (CMMHP) where she is a Lecturer (Academic) in Midwifery based at BU’s campus in Portsmouth ,

Obesity is still a growing public health problem in the UK and many healthcare workers find it challenging to have a discussion with service users about this sensitive topic. They also feel they are not competent to provide the relevant heath advice and are seeking easily accessible, evidence-based, mobile health learning (mHealth). mHealth applications (apps) such as the Professional NoObesity and Family NoObesity (due for release late 2018), have been designed to: support families with making sustainable positive behaviour changes to their health and well-being, ease pressure on practitioners’ overweight and obesity care related workloads, as well as to support the education of professionals, students and service users. This paper describes the process of designing the apps from the inception of the idea, through the stages of research, app builds and testing. The processes of collaborative working to design and develop the apps to meet the needs of both service users and health professionals will also be reflected upon. Childhood obesity is an complex problem and whilst it is recognised that the NoObesity apps cannot singlehandedly resolve this health crisis, it is proposed that they can support families to identify and reduce the barriers that prevent them from living healthier, happier lives. 

Reference:

King D., Rahman E., Potter A., van Teijlingen E. (2019) NoObesity Apps – From Approach to Finished App. In: Arai K., Bhatia R., Kapoor S. (eds) Proceedings of the Future Technologies Conference (FTC) 2018. FTC 2018. Advances in Intelligent Systems and Computing, vol 881. Springer, Cham, pp. 1145-1157.

Failing to publish data from clinical trials presents risk to human health

BU research, Clinical Governance, data management, NHS, open access, Publishing, Research Ethics, Research Integritiy, research integrity, Research news

A recent inquiry into research integrity was made earlier this year by the Science and Technology Committee, which revealed that nearly half of clinical trials fail to publish their results.

This lack of publishing has been deemed a risk to human health and a contributory factor in research wastage.

The article gives examples of a number of studies that are yet to be published, and how this activity ‘threaten(s) research integrity, and in some cases, endanger(s) human life’. The full article can be found here.

The University has administrative access to the ClinicalTrials.gov system – get in touch with us  if you are conducting clinical research, to ensure that you have access.

Nepal paper by Lesley Milne (CMMPH)

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Congratulations to Lesley Milne, senior lecturer in midwifery, on the acceptance of her latest paper on maternity care in Nepal.  This new paper ‘Gender inequalities and childbearing: A qualitative study of two maternity units in Nepal’ will appear soon in the Open Access publication: Journal of Asian Midwives [1].   This is the second publication from a qualitative research study undertaken in two birthing facilities in Kathmandu Valley to examine barriers to women accessing these services from the perspective of hospital staff [2].

The study received financial support from Wellbeing of Women and the RCM (Royal College of Midwives) as Lesley won their first International Fellowship Award.   The study was a collaboration led by Lesley in the Centre for Midwifery, Maternal & Perinatal Health (CMMPH) with two of FHSS’s Visiting Faculty, namely Prof. Padam Simkhada who is based at Liverpool John Moores University and Jillian Ireland, Professional Midwifery Advocate based at Poole NHS Hospitals Foundation Trust.

Well done!

Profs. Vanora Hundley & Edwin van Teijlingen

 

 

 

References

  1. Milne, L., Ireland, J., van Teijlingen, E., Hundley, V., Simkhada, P.P. (2018) Gender inequalities and childbearing: A qualitative study of two maternity units in Nepal, Journal of Asian Midwives (accepted).
  2. Milne, L., van Teijlingen, E., Hundley, V., Simkhada, P., Ireland, J. (2015) Staff perspectives of barriers to women accessing birthing services in Nepal: A qualitative study BMC Pregnancy & Childbirth 15:142 www.biomedcentral.com/1471-2393/15/142 .

Journal of Asian Midwives

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As co-editor of the Journal of Asian Midwives I receive occasional updates from the Aga Khan University (AKU) library in Pakistan on the number of downloads of articles published in the journal.   The journal is fully Open Access and does not charge a submission or processing fees!  All articles in the Journal of Asian Midwives are stored online in the AKU Institutional Repository.  The latest update with data until end of September 2018 informed us that there had been: 18,462 downloads, from 167 countries/regions, across 56 articles.  Nearly 20,000 downloads is not bad for a fairly new journal, which only published its inaugural issue online in 2014.

What is interesting is that the detailed download figures show that Bournemouth University is the highest ranking university of all the downloading organisations.  Listed as fifth on the download list, Bournemouth is behind two commercial organisations, the Pakistan library network and Bangladesh-based Icddr-B.  The latter is one of the largest NGO (Non-Governmental Organisations in the world based on staff numbers.  Of course it helps that Bournemouth academic staff and PhD students have published five scientific articles in the past four editions of the journal [1-5].

 

Prof. Edwin van Teijlingen

CMMPH (Centre for Midwifery, Maternal & Perinatal Health)

References:

  1. Ireland, J., van Teijlingen, E., Kemp, J. (2015) Twinning in Nepal: the Royal College of Midwives UK and the Midwifery Society of Nepal working in partnership, Journal of Asian Midwives 2 (1): 26-33.
  2. Mahato, P., van Teijlingen, E., Simkhada, P., Angell, C. (2016) Birthing centres in Nepal: Recent developments, obstacles and opportunities, Journal of Asian Midwives 3(1): 18-30.
  3. Baral, YR., Lyons, K., van Teijlingen, ER., Skinner, J., (2016) The uptake of skilled birth attendants’ services in rural Nepal: A qualitative study, Journal of Asian Midwives 3(3): 7-25.
  4. Sharma, S., Simkhada, P., Hundley, V., van Teijlingen, E., Stephens J, Silwal, R.C., Angell, C. (2017) Evaluation a Community Maternal Health Programme: Lessons Learnt. Journal of Asian Midwives. 4(1): 3–20.
  5. Mahato, P., van Teijlingen, E., Simkhada, P., Angell, C. (2017) Determinants of quality of care & access to Basic Emergency Obstetric & Neonatal Care facilities & midwife-led facilities in low & middle-income countries: A Systematic Review, Journal of Asian Midwives 4(2):25-51.

Congratulations to Dr. Alison Taylor

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Congratulations to Dr. Alison Taylor whose PhD paper ‘The therapeutic role of video diaries: A qualitative study involving breastfeeding mothers‘ has just appeared online [1].  This paper, in Women and Birth (published by Elsevier), was co-authored with her PhD supervisors Prof. Emerita Jo Alexander, Prof. Kath Ryan (University of Reading) and Prof. Edwin van Teijlingen.

The paper highlights that despite breastfeeding providing maximum health benefits to mother and baby, many women in the United Kingdom do not breastfeed, or do so briefly.  Alison’s study explored in a novel way the everyday experiences of first-time breastfeeding mothers in the early weeks following birth.  Five UK mothers were given a camcorder to capture their real-time experiences in a video diary, until they perceived their infant feeding was established. This meant that data were collected at different hours of the day by new mothers without a researcher being present.  Using a multidimensional approach to analysis, we examined how five mothers interacted with the camcorder as they shared their emotions, feelings, thoughts and actions in real-time. In total mothers recorded 294 video clips, total recording time exceeded 43 hours.

This paper focuses on one theme, the therapeutic role of the camcorder in qualitative research. Four subthemes are discussed highlighting the therapeutic impact of talking to the camcorder: personifying the camcorder; using the camcorder as a confidante; a sounding board; and a mirror and motivator. The paper concludes that frequent opportunities to relieve tension by talking to “someone” without interruption, judgement or advice can be therapeutic and that more research is needed into how the video diary method can be integrated into standard postnatal care to provide benefits for a wider population.

Alison is Senior Lecturer in Midwifery and a member of the Centre for Midwifery, Maternatal & Perinal Health.

 

 

Reference:

  1. Taylor, A.M., van Teijlingen, E., Alexander, J. & Ryan, K. The therapeutic role of video diaries: A qualitative study involving breastfeeding mothers, Women Birth (2018), (online first)  https://doi.org/10.1016/j.wombi.2018.08.160

International Conference on Migration Health (Rome)

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Two days ago Bournemouth University Visiting Professor Padam Simkhada presented our paper ‘Problems faced by Nepalese female migrants workers in the Gulf Countries: A quantitative survey’ at the International Conference on Migration Health in Rome, Italy [1].  The study reports on the health and other problems experienced by Nepali women migrants at their work place during foreign employment in Gulf Countries.  The paper is building on earlier research with the charity Pourakhi in Kathmandu which helps women who return from working abroad in trouble.  The first paper was publish earlier this year in the journal BMC International Health & Human Rights [2].  

The conference presentation was co-authored with BU’s Dr. Pramod Regmi and Prof. Edwin van Teijlingen, Ms. Manju Gurung from Pourakhi, Ms. Samjhana Bhujel from Green Tara Nepal, and Padam Simkhada, who is professor in the Public Health Institute at Liverpool John Moores University.

 

References:

  1. Simkhada, P., van Teijlingen, E., Bhujel, S, Gurung, M., Regmi, P. Problems faced by Nepalese female migrants workers in the Gulf Countries: A quantitative survey’ [Abstract: 238] presented at Internat. Conf. Migration Health, Rome, 1-3 Oct. 2018, http://istmsite.membershipsoftware.org/files/Documents/Activities/Meetings/Migration/FOR%20WEBSITE%20-%20ORAL%20accepted%20abstracts%20-%20session-bookmark.pdf
  2. Simkhada, P.P., van Teijlingen, E.R., Gurung, M., Wasti, S. (2018) A survey of health problems of Nepalese female migrants workers in the Middle-East and Malaysia, BMC International Health & Human Rights 18(4): 1-7. http://rdcu.be/E3Ro

FIRST paper at PRO-VE 2018

Awarded & submitted bids, conferences, international, Publishing

Mr. John Kasse presented the paper The Need for Compliance Verification in Collaborative Business Processes, in the 19th IFIP Working Conference on Virtual Enterprises (PRO-VE 2018), Cardiff, UK, 17-19 Sep 2018.  John’s paper is a result of  Working Package 4 On-the-fly Service-oriented Process Verification of EU FIRST project, which BU is leading.

More information about FIRST project, please follow our social media links on Facebook, Twitter, Instagram and YouTube Channel.

Ouch! Missing reference

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One of the first rules of drafting a scientific paper is that one cites the key literature in the respective field.  So as someone who teaches people how to write and publish in this week’s experience of getting a paper rejected was not great, if not disheartening!   Earlier this week we submitted a research paper to the Journal of Travel Medicine on a study of the health and well-being of female migrant workers in Nepal.  This is high quality journal in which we have published before, including one paper on migrants’ health [1-3]. 

Two days later the journal editor emailed us to say: “”We feel that the scope of your paper would not justify a full original article in the Journal of Travel Medicine”, which is, in our opinion, a fair judgement.  My co-authors and I between us have over 300 papers published and most have been rejected or at least we have been asked for a resubmission, so nothing new here. What was more upsetting than the rejection itself was the additional comment.  The editor added:

“The authors should ideally include the two following references:

……(first reference omitted)   …. +

Identifying the gaps in Nepalese migrant workers’ health and well-being: a review of the literature.

Simkhada PP, Regmi PR, van Teijlingen E, Aryal N. J Travel Med. 2017 Jul 1;24(4). doi: 10.1093/jtm/tax021. Review.

 

We agree with the editor that we should have included the two listed key papers. Crucially, it is more than a little mistake to have missed the second paper since we wrote it ourselves.  There are many lessons to be learnt from this: (a) check you have covered the key literature in your paper, either in the Background section and/or the Discussion; (b) don’t underestimate the importance of your own work; (c) you’re never too old to make mistakes (and to learn from them); (d) be thankful for good editors and reviewers; (e) do what you advise others to do; (f) etc. ………………

 

In shame,

Prof. Edwin van Teijlingen

CMMPH

 

References:

  1. Hind, C., Bond, C.M., Lee, A., van Teijlingen E. (2008) Needs assessment study for community pharmacy travel medicine services, Journal of Travel Medicine 15(5): 328-334.
  2. Bhatta, P., Simkhada, P., van Teijlingen E., Maybin, S. (2009) A questionnaire study of VSO volunteers: Health risk & problems encountered. Journal of Travel Medicine 16(5): 332-337.
  3. Simkhada, P.P., Regmi, P.R., van Teijlingen, E., Aryal, N. (2017) Identifying the gaps in Nepalese migrant workers’ health and well-being: A review of the literature, Journal of Travel Medicine 24 (4): 1-9.

Congratulations on timely editorial in Nepal

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Congratulations to FHSS academics Dr. Pramod Regmi and Dr. Nirmal Ayral who published an editorial yesterday in a scientific journal in Nepal.  The paper ‘Experts warn Nepal Government not to reduce local Public Health spending’ [1] was co-authored by Dr. Bibha Simkhada who has just been offered a post as Lecturer in Nursing in the Department of Nursing & Clinical Sciences, she shall be starting with us on November 1st.  Further co-authors include FHSS Visiting Professor Padam Simkhada and Dr . Sujan Marahatta, the journal’s editor.  He is based at Manmohan Memorial Institute of Health Sciences (MMIHS) in Kathmandu, Nepal.  Bournemouth University has a long-standing research collaboration with MMIHS.

The editorial warns about the risks of losing the focus on public health and its wider national and global perspective in the recently changed political arena of Nepal.  Since 2015 Nepal has moved from a central state to a federal republic, whereby the seven new Provinces have gained much more power and control in the decentralisation process.  Moreover the first local elections for two decades in 2017 meant a lot of new and inexperienced local politicians were voted in.  Many of these local people had little prior experience of political processes, governing health systems, the notion of priority setting, running sub-committees of elected representatives, political decision-making at local level, etc.  The paper argues that Public Health can easily disappear of the radar.  The untrained newly elected representatives with no political experience are most likely to be drawn into proposing and supporting popular measures including developing new buildings, black-top roads, hospitals, etc., rather than measures that increase the local or regional budget for teachers, Continuous Professional Development (CPD) for community health workers, and preventative public health measures in general.  Buildings and roads are immediate demonstration to voters that politicians have done something useful, reducing maternal mortality by 2.6% or employing two additional health workers doesn’t give politicians neither the same publicity, nor do such policies have immediate signs of success, and hence are unlikely to be vote winners.

The Journal of Manmohan Memorial Institute of Health Sciences is part of the Open Access publishing of Nepal Journals OnLine (NepJOL) supported by INASP.  The editorial also illustrates the kind of work conducted in Bournemouth University’s Integrative Wellbeing Research Centre (iWell).

 

Prof. Edwin van Teijlingen

Centre for Midwifery, Maternal & Perinatal Health (CMMPH)

 

Reference:

Simkhada, P., Teijlingen van, E., Simkhada, B., Regmi, P., Aryal, N., Marahatta, S.B. (2018) Experts warn Nepal Government not to reduce local Public Health spending, Journal of Manmohan Memorial Institute of Health Sciences, 4(1): 1-3.

BU NCCA Undergraduate Student Success at SIGGRAPH’18

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The 45th International Conference & Exhibition on Computer Graphics and Interactive Techniques  (SIGGRAPH’18), the international annual conference of the Special Interest Group on Computer Graphics and Interactive Techniques of the Association for Computing Machinery (ACM, the world’s foremost computing society) was held in Vancouver in August.

Among the work showcased at the conference was the poster “Withering fruits: vegetable matter decay and fungus growth” by Bianca Cirdei  (Computer Visualisation and Animation – CVA, Level 6) from this year’s graduating cohort from the National Centre for Computer Animation (NCCA, Faculty of Media and Communication) and co-authored by Dr Eike Falk Anderson.

Poster presented at SIGGRAPH

The work, which was based on Bianca’s Innovations Project unit results extends and improves existing methods for procedurally simulating decaying fruit for use in computer graphics and visual effects, focusing on artist directability and visual fidelity. As the resulting visuals are quite impressive, this project was also one of the ten submissions featured in the SIGGRAPH’18 posters preview video.

Of the 74 posters presented at this year’s SIGGRAPH conference, 16 submitted posters, including Bianca’s contribution (poster 74), were invited to the first round of the prestigious ACM Student Research Competition (SRC) sponsored by Microsoft. Bianca’s submission was one of only four European semi-finalists and of those the only one from a UK institution. After presenting the work to a panel of experts, the submission made it into the second round and after the ACM Student Research Competition Final Presentation it won first place in the undergraduate category.

1st placed Undergraduate Poster at the SIGGRAPH'18 Student research Competition

After Ben Knowles (with Dr Oleg Fryazinov) who was awarded second place at SIGGRAPH’15 for “Increasing realism of animated grass in real-time game environments“, Teemu Lindborg and Philip Gifford (with Dr Oleg Fryazinov) who were semi-finalists at SIGGRAPH’17 for “Interactive parameterised heterogeneous 3D modelling with signed distance fields” and Quentin Corker-Marin (with Dr Valery Adzhiev and Professor Alexander Pasko) who achieved second place at SIGGRAPH’17 for “Space-time cubification of artistic shapes“, this is the first time that an NCCA student has won first place in this prestigious competition.

The work will now progress to the next stage of the competition, the Grand Finals in 2019, in which the first placed entries from almost 30 major ACM conferences will compete with one another.

New paper by recent BU Sociology graduate

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Dr. Andrew Harding and his BU PhD supervisors just published a new paper from his Ph.D. research [1].   This interesting paper ‘Suppy-side review of the UK specialist housing market and why it is failing older people’ reviews the supply-side of policies and practices that impact on the shortage of supply in the contemporary specialist housing market for older people in the UK.  Andrew is currently based at Lancaster University.

Congratulations!

Prof. Edwin van Teijlingen

CMMPH

 

Reference:

  1. Harding, Andrew, Parker, Jonathan, Hean, Sarah & Hemingway, Ann (2018) Supply-side review of the UK specialist housing market and why it is failing older people. Housing, Care and Support