Tagged / Health

Paper published on ‘living evidence’

The Nepal Journal of Epidemiology published today carries an article on so-called ‘living evidence’ as an on-going synthesis approach that provides up-to-date rigorous research evidence [1].  This short research methods paper argues that living evidence is particularly useful in rapidly expanding research domains, uncertain existing evidence, and incorporating new research evidence that may impact policy or practice, ensuring that health worker, managers and health-policy makers have access to the best, i.e. the most recent evidence.

The Nepal Journal of Epidemiology is an Open Access journal, and hence freely available to researchers across the globe.  The paper has been co-authored by researchers from the Denmark, Qatar, Mauritius and the UK.

 

Prof. Edwin van Teijlingen

Centre for Midwifery & Women’s Health (CMWH)

 

Reference:

  1. Sathian B., van Teijlingen E., do Nascimento I.J.B., Khatib M.N., Banerjee I., Simkhada P., Kabir R., Al Hamad H. (2023) Need for evidence synthesis for quality control of healthcare decision-making. Nepal Journal of Epidemiology 13(3):1288-1291.  DOI: 10.3126/nje.v13i3.61004

BU MSc Student, Sarah Clark, gives a presentation at EDS ECHO Fatigue Summit 0n 21st October

Sarah is giving a Community Voice presentation at the EDS ECHO Summit Series: Fatigue – Causes and Management at 4.32pm UK time in the “Exercise, Pacing and Diet” section, sharing some of her own tips and tricks for life managing several complex chronic health conditions.    This will be followed by participation in the live online Q&A session at approx 4.45 pm UK time.

 

Sarah, who has hypermobile Ehlers-Danlos syndrome, is a Masters student at BU studying Clinical and Developmental Neuropsychology.  Sarah sits as a patient expert in the EDS International Consortium, Psychiatric and Psychological Aspects Working Group.

Sarah presented her BMJ paper “Help me trust you after my misdiagnosis” at The EDS Global Learning Conference in Dublin in August.

Sarah was diagnosed in May 2022 with Autism spectrum condition, a realisation she only made thanks to attending the autism lectures on her MSc course here at BU!  She recently completed her qualitative MSc Research Project, supervised by Dr Emily Arden-Close, on “What are the daily experiences of autistic people living with hEDS?” and has just started working on writing her dissertation up for submission to a journal.

Sarah is studying part-time at BU due to the time-consuming nature of managing several complex conditions. But alongside managing her wellbeing, Sarah regularly engages in public awareness work, volunteering and charity fundraising work. She is also a keen photographer, writer and yogi and was featured in Hotpod Yoga’s Move with Purpose Campaign recently where she talked about her late-autism diagnosis: https://hotpodyoga.com/move-with-purpose/

Sarah is hugely grateful to the BU Community for the support and encouragement she’s had over the past few years which has allowed her to make great leaps in improving her own health and wellbeing, as well as giving others hope.  You can read more about Sarah’s inspirational journey on her website.

 

Introduction to Patient and Public Involvement

This half day course is an introduction to PPI and will:
1. Define PPI and why it matters
2. Explore the links between PPI and health equity
3. Explain how to deliver PPI and support those involved

It will be an interactive session, including input from someone with lived experience, talking about their involvement in research.

It will be delivered by Sue Bickler from the Involving People team at Help and Care, an organisation that ‘helps people and communities live the lives they choose’.

Sue has worked in the voluntary sector, local authorities, and health, and has substantial experience engaging with people and communities to ensure that services meet their needs.  Her current role brings together the four Healthwatch in Hampshire and the Isle of Wight (HIOW), ensuring that patient voice is central to decision making in the HIOW Integrated Care System and that people are equipped to support effective Patient and Public Involvement (PPI).

The session is funded by Clinical Research Network Wessex and is open to all health and care researchers working in Wessex including public contributors and community organisations.

Book your place here.  A link to the online training will then be sent to you.