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BU MSc Student, Sarah Clark, presents MSc dissertation research at BPS Division of Health Psychology Annual Conference 2024

Sarah, who is a BU MSc Student studying Clinical and Developmental Neuropsychology, presented research from her MSc dissertation on Friday 7th June at The BPS Division of Health Psychology Annual Conference 2024.

Supervised by Dr Emily Arden-Close, Sarah’s dissertation delved into the daily experiences of autistic individuals with hypermobile Ehlers-Danlos syndrome (hEDS). This was lived-experience research as Sarah has both conditions herself, and therefore engaging with her study participants carried huge emotional relevance and importance to her personally.

The research found that traits commonly associated with autism, such as the need for routine and structure, significantly aid in planning daily activities and managing EDS symptoms. However, participants also highlighted the psychological challenges of having to adjust meticulously planned routines due to acute pain and fatigue flare-ups. This qualitative research underscores the complexity and challenges faced by those living with both hEDS and autism.

Sarah was diagnosed with hypermobile Ehlers-Danlos syndrome (a rarely diagnosed genetic connective tissue disorder) in February 2020. This diagnosis came after fifteen years of physical symptoms which were misdiagnosed as Emotionally Unstable Personality Disorder. Sarah has an extremely rare co-condition called Median arcuate ligament syndrome (MALS) and has studied for her Masters degree on a prescription liquid-only diet, unable to eat food.

Sarah was diagnosed with autism in May 2022, after realising she is autistic thanks to the lectures on autism on her MSc course at BU!

Acknowledging the transformative impact of formal diagnosis on her life, Sarah has embraced lifestyle changes and effective self-management strategies for her hEDS and various co-morbidities.

Sarah sits as a patient expert in the EDS International Consortium, Psychiatric and Psychological Aspects Working Group, and Sarah presented her BMJ paper, “Help me trust you after my misdiagnosis,” at The EDS Global Learning Conference in Dublin last August.

Alongside being a student here, Sarah also works at BU as a Student Ambassador, Digitial Marketing Ambassador and a member of BU PIER (as a member of the public). Passionate about medical education and raising awareness of rare health conditions, Sarah regularly engages in public awareness, volunteering, and charity fundraising.

Influenced by her own health journey and navigating the complexities of the healthcare system, coupled with Complex PTSD from childhood trauma, Sarah has developed a keen interest in various aspects of the diagnostic journey.

In March 2024, Sarah’s art exhibition “Seeking Meaning in Diagnosis” was held in the Atrium Gallery at BU. Sarah recently won the SUBU Award in the “Outstanding Contribution to Equality” category.

As well as being a patient expert, photographer and blogger Sarah is also a keen yogi and she was featured in Hotpod Yoga’s Move with Purpose Campaign, discussing her late-autism diagnosis.

To learn more about Sarah’s inspirational diagnostic journey – visit her website.

BU Research Conference 2024: Powerful Partnerships – practical workshops

A lightbulb created by interlocking pieces of stringThe BU Research Conference returns on Wednesday 26th June, where we’ll be exploring the power of partnerships and how collaboration can enhance your research.

As well as a keynote talk from Isabella Pereira, Head of the Institute for Community Studies, and a panel discussion around building partnerships, we also have a range of practical workshops to help with developing effective research collaborations and finding partners.

Each workshop will last 45 minutes and attendees will have the opportunity to attend two workshops on the day – click on the links below to book your place.

This workshop will provide practical strategies for engaging with underserved communities and how to build on social capital and lived experience of communities to develop and implement impactful research.

This workshop will be facilitated by Dr Sophia Amenyah, Post Doctoral Research Fellow in the Faculty of Health and Social Sciences

International collaboration can increase the quality, reach and impact of research, as well as provide access to datasets, facilities, and teams of talented researchers. This workshop will feature a lively discussion about the benefits of international research collaboration, opportunities to get involved in BU strategic partnerships overseas, and to meet some of our international partners in person.

This workshop will be facilitated by Dr Gloria Khamkar, Principal Academic in Journalism, Dr Alastair Morrison, Head of International Partnerships, and colleagues from our partners at the University of Saskatchewan, Canada and the Brest National School of Engineering (ENIB), France

This workshop will be an opportunity to hear and discuss opportunities for collaborating with VCSOs to maximise the relevance, quality and impact of our research. Sharing evidence and examples of best practice, the facilitators will share their insights and experiences from both academic and community perspectives, outlining where to start and how to create opportunities where all involved can work together as equal partners for equal benefit.

This workshop will be facilitated by Professor Mel Hughes and Dr Kate Jupp from the BU PIER partnership

Professor Marcin Budka will talk about his experience of working with several businesses on Knowledge Transfer Partnerships (KTPs), a government-funded initiative that brings universities and businesses together to drive innovation.

He will share his insights into the process – from application to completion – and the long-term strategic impact that can arise from a successful KTP collaboration.

This workshop will be facilitated by Professor Marcin Budka, Professor of Data Science

This workshop offers an opportunity to be inspired by hearing about how to bring research into knowledge exchange collaborations creatively, with impact, and in a funding limited environment. Hear from two of our BU professors about the collaborative work they have been doing in the Ukraine and in Sierra Leone, which has had a significant positive impact on the lives of individuals, and on policy makers, in two socio-politically instable countries.

This workshop will be facilitated by Dr Wendelin Morrison, Knowledge Exchange Manager, Professor Mark Brisbane (the Ukraine Pechersk-Lavra Project) and Professor Lee Miles, Professor of Crisis and Disaster Management

There will also be the chance to find out more about a Smart Leisure and Active Ageing project, led by a team from BU Business School and the Ageing and Dementia Research Centre working in partnership with local tourism and leisure partners to support inclusion and accessibility.

The BU Research Conference takes place on Wednesday 26th June in the Fusion Building. To find out more and book your place, visit Eventbrite.

FHSS academics’ paper cited 1,000 times

This morning ResearchGate alerted us that our paper published two decades ago ‘The Importance of Pilot Studies’ has now been cited one thousand times [1].  This methods paper in the Nursing Standard is very often used by authors quoting a  paper in their research methods section when they have done pilot or feasibility study for a larger-scale study. This paper is also our second top cited paper with 1,982 citations on Google Scholar and, interestingly enough, on SCOPUS it is not listed at all.

Pilot studies are a crucial element of a good study design. Conducting a pilot study does not guarantee success in the main study, but it does increase the likelihood of success. Pilot studies fulfill a range of important functions and can provide valuable insights for other researchers. There is a need for more discussion among researchers of both the process and outcomes of pilot studies. 

This paper is one of several methods paper focusing on pilot studies we have published over the past 22 years [2-8].

 

Professors Vanora Hundley & Edwin van Teijlingen

Centre for Midwifery & Women’s Health

 

 

References:

  1. van Teijlingen E, Hundley, V. (2002) ‘The importance of pilot studies’ Nursing Standard 16(40): 33-36. Web: nursing-standard.co.uk/archives/vol16-40/pdfs/vol16w40p3336.pdf
  2. van Teijlingen E, Rennie, AM., Hundley, V, Graham, W. (2001) The importance of conducting & reporting pilot studies: example of Scottish Births Survey, Journal of Advanced Nursing, 34: 289-95.
  3. Simkhada, P, Bhatta, P., van Teijlingen E (2006) Importance of piloting questionnaire on sexual health research (Letter), Wilderness & Environmental Medical Journal, 17(4): 295-96. wemjournal.org/wmsonline/?request=get-document&issn=1080-6032&volume=017&issue=04&page=0295#Ref
  4. van Teijlingen E, Hundley, V. (2001) The importance of pilot studies, Social Research Update Issue 35, (Editor N. Gilbert), Guildford: University of Surrey.  Web:  http://www.soc.surrey.ac.uk/sru/SRU35.html
  5. Hundley, V., van Teijlingen E.
  6. van Teijlingen E, Hundley, V. (2005) Pilot studies in family planning & reproductive health care, Journal of Family Planning & Reproductive Health Care 31(3): 219-21.
  7. (2002) The role of pilot studies in midwifery research RCM Midwives Journal 5(11): 372-74.
  8. van Teijlingen E, Hundley, V. (2003) Pilot study, In: Encyclopaedia of Social Science Research Methods, Vol. 2, Lewis-Beck, M., Bryman, A. & Liao, T. (eds.), Orego, Sage: 823-24.

 

PGR Online Social

Were you unable to make it to the Summer Social on the 12 June? Join us online instead!

On Friday 21 June 13:00 – 14:00 we are hosting an informal and interactive online gathering of Postgraduate Researchers.

Don’t miss out on this opportunity to expand your academic circle and make new connections!

Book your place here.

Research Ethics Panel Meetings – Reminder to staff and Postgraduate Researchers

Research Ethics

There are no central Research Ethics Panel (REP) meetings held during August, so if you’re hoping to start data collection activities over the summer and are in the process of completing your research ethics checklist, please keep this in mind when planning your research activities.  Submit your checklist in time for the final REP meetings to be held in June and July.  Checklists received during August which need to be reviewed by a full Panel will be deferred until September (dates to be advised).

REPs review all staff projects and postgraduate research projects which have been identified as high risk through the online ethics checklist.  Details on what constitutes high risk can be found on the research governance, research ethics & integrity website.

There are two central REPs:

  • Science, Technology & Health
  • Social Sciences & Humanities

 

Staff and PGR ‘high risk’ projects will be reviewed by one of the central REPs and Researchers (including PGR Supervisors) will normally be invited to Panel for discussions.

Staff Projects which are ‘low risk’

Reviews for low risk projects will continue as normal during August (via email), although turnaround may take longer than normal due to Reviewer availability during this month.

PGR Projects which are ‘low risk’

There are no changes to the review process for low risk PGR projects and reviews will continues as normal throughout August, again subject to the availability of Supervisor and assigned Ethics Champions.

More details about the review process and REP meeting dates can be found on the governance, research ethics & integrity website.  Email enquiries should be sent to researchethics@bournemouth.ac.uk.

The Missing Persons Indicator Project: Research Collaboration for Knowledge Exchange

The Missing Persons Indicator Project, initiated several years ago by Professor Melanie Klinkner and Andreas Kleiser from the ICMP, has recently been enhanced by a visit to the ICMP, aimed at optimising knowledge exchange. Its goal is to showcase each state’s relationship with missing persons through comprehensive data analysis. This initiative began as a collaborative effort, with data gathering undertaken by undergraduate students at Bournemouth University, engaging students in real-world research and ensuring the project’s sustainability by welcoming new students each September.

Since its inception, the project has been fortunate to work with many enthusiastic students who have completed the first round of Structural Indicator 1. This indicator demonstrates the commitment of states to international legal instruments. The table below outlines the current indicators involved in our data collection process:

Context Indicator A qualitative assessment as to whether the state has experienced extraordinary events that may be correlated to a rise in missing persons cases.
Structural Indicator 1 The commitment shown by states to international legal instruments is an indicator of their duties and obligation in relation to missing persons.
Structural Indicator 2 Domestic legislation by states as an indicator of their duties and obligation in relation to missing persons.
Structural Indicator 3 Institutional framework(s) established by states as an indicator of their duties, obligation, and enactment of legislation in relation to missing persons.

Thanks to HEIF funding, the Missing Persons Indicator Project recently had the opportunity to employ four student volunteers over the past two weeks. Their task was to accelerate the data collation for these indicators. By working through each indicator on a state-by-state basis, they developed a comprehensive understanding of each state’s unique situation. This method also allowed them to recognise and utilise specific details that might recur across the different indicators.

Every day, a designated “data-checker” reviewed previously inputted data to identify and correct any anomalies. This rigorous review process ensures the data’s accuracy, ethical integrity, and suitability for international dissemination.

Throughout this process, the students have been deeply engaged, asking insightful questions that challenged our perspectives and prompted us to consider aspects we might have overlooked. The atmosphere has been a hub of activity and intellectual growth.

We are extremely grateful for the hard work and dedication of our student researchers. Their contributions have demonstrated that a student ‘data-lab’ is an excellent model for conducting research and achieving meaningful results.

As this term draws to a close, we are keen to alert teaching staff to the potential for their students to join the Missing Person Indicator project in September as we recruit a new cohort for the new academic year. To learn more about the project please visit our website!

Conversation article: Documenting the world’s largest prehistoric rock art in South America – new study

Dr Philip Riris co-authors this article for The Conversation about his experiences documenting monumental rock art along the Orinoco River…

Documenting the world’s largest prehistoric rock art in South America – new study

Enhanced image of monumental rock art on Cerro Pintado, Venezuela.
Philip Riris, Author provided

Philip Riris, Bournemouth University; José R. Oliver, UCL, and Natalia Lozada Mendieta, Universidad de los Andes

We weren’t the first to lay eyes on the engraving since it was carved into the hillside any number of centuries or millennia ago, not by a long shot. The Venezuelan archaeologist José Maria Cruxent even recorded it in his diaries in the 1940s – and there were certainly visitors before him.

The site of Cerro Pintado (Painted Hill), in the Venezuelan state of Amazonas, is a local landmark and a well-known fixture on the itinerary of those travelling on the Middle Orinoco River.

Yet viewing the gigantic snake, carved high up on the hillside, immediately ignited both our sense of wonder and our scientific curiosity. Why a snake? Why did its creators climb a towering granite hill to place it there, just so? What about all the other engravings orbiting it – what do they mean?

All these questions and more swirled around our little group as we stood, sticky and mosquito-bitten, in the savanna at the foot of the hill. Its singular status made it all the more intriguing.

While there are other examples of giant prehistoric rock art in other parts of the world, these appear to be the largest. While, as mentioned, some were already known to archaeologists, our team documented others, including over the border in Colombia.

The results reveal a high concentration of these monumental engravings in the region. The subjects of these symbolic works include snakes, humans and centipedes. The animals probably played an important role in the mythologies of the people who made them. The results have been published in the journal Antiquity.

New sites to survey

On our visit to Cerro Pintado in 2015, we supposed that the enormous 42-metre-long snake engraving (probably representing a boa or anaconda, native to the region) stood in splendid isolation. Prior scholars observed that many rock shelters in the surrounding savanna hosted prehistoric paintings, and we had already seen plenty of engravings near our dig sites.

Although often numerous or quite large, none of these sites shared the truly monumental scale of the Cerro Pintado engravings. Its apparent uniqueness led us to dutifully return with a drone to secure better images of the highly inaccessible panel. Already during the first stint in the field, however, we suspected that there was more to be uncovered about the rock art of the region.

Our guide, Juan Carlos García, a local educator and photographer, was well travelled around the area, and had plenty of insights to share. While surveying the islands that separate the calm middle course of the Orinoco River from its turbulent upper reaches, he pointed to the Colombian bank and forthrightly informed us: “Do you see that hill? Over there, behind it, is another snake, as big as Pintado.”

The possibility of another snake was beyond tantalising to us. Did it also have a set of accompanying motifs? Was it truly as big and as visible from far away? For lack of scientific permits in Colombia, or the time to search for a new site even if we had permits, these questions were left unanswered. After four campaigns in Venezuela, our fieldwork funding ended in 2017 and Cerro Pintado remained, as far as archaeology was concerned, a one-and-only location.

Luckily, the project’s principal investigator, José Oliver, at the UCL Institute of Archaeology, secured the means to return to survey the Colombian side in 2018. The results of careful systematic surveys were shared between the team in a flurry of excited text messages and emails, confirming that there was not just one more snake, but several. They were also comparable in size to Pintado and clearly related, yet each with their own twist.

The project’s doctoral candidate, Natalia Lozada Mendieta, from the Universidad de Los Andes, Colombia, now an assistant professor, also returned in 2021 and 2022 to find more snakes. Finally, the entire original team reunited in the field in 2023. Collectively, and with help from local guides, we amassed a database of 13 vast rock art sites with upwards of 150 individual engravings between them.

Striking motifs

To us, the snakes were the most striking motifs, although giant centipedes, humans dancing or playing instruments, and mysterious geometric shapes of unknown intent did not fail to impress. Although not unique, as previously thought, Cerro Pintado is now accompanied by a constellation of related sites – a genuine monumental rock art tradition.

Very large prehistoric petroglyphs, the scientific term for rock engravings, are not unknown. Whales and elk are depicted in the Stone Age art of Norway, and virtually life-size giraffes and camels are known from Niger and Saudi Arabia, respectively.

Highly visible or salient rock art such as this is often presumed to communicate ideas or concepts of importance. While their exact meaning is lost, their impact can be felt through their physicality, meaning their size and placement.

In our cases, we are fortunate to note repeating themes across the indigenous cosmologies of northern South America that allude to gigantic snakes as the creators and protectors of rivers – including the great “river” in the sky, the Milky Way. Yet they are also menacing, predatory and lethal.

This information enriches our understanding of the archaeological record. The snakes were intended to be seen from some distance, reflecting a shared understanding of the world and its inhabitants. What marks the Middle Orinoco out as a unique hotspot, we argue, is the sheer concentration of these enormous works of pre-Columbian art.

They appear to be the largest in the world, and speak to a contested, yet openly communicative cultural landscape during the pre-Columbian period that we are only just beginning to understand.

More importantly, as regional tourism expands year on year, the sites are
increasingly in need of protection, an activity in which indigenous people should have a leading voice. Undoubtedly, there are dozens more sites in this unique monumental tradition to encounter, record and, hopefully, preserve.The Conversation

Philip Riris, Lecturer in Archaeological & Palaeoenvironmental Modelling, Bournemouth University; José R. Oliver, Reader in Latin American Archaeology, Institute of Archaeology, UCL, and Natalia Lozada Mendieta, Assistant Professor, Department of Art History, Universidad de los Andes

This article is republished from The Conversation under a Creative Commons license. Read the original article.

Getting to the Heart of the Matter: Dr Tony Cammarato (Johns Hopkins School of Medicine) visits BU’s Drosophila scientists.

BU’s team of Drosophila scientists were delighted to host a visit from Dr Tony Cammarato, Associate Professor at Johns Hopkins University School of Medicine. Tony (a visiting fellow at BU) met and gave a fantastic talk to colleagues and undergraduates, detailing work spanning three decades that has defined how heart muscle cells (cardiomyocytes) regulate force during contraction.

(L to R) Dr Tony Cammarato, Ms Jess Whalley, Dr Paul Hartley, Dr Yutaka Matsubayashi

By identifying the specific amino acids that control how muscle troponin proteins interact with the cell’s contractile myosin and actin ‘scaffold’ his research group is explaining how cardiomyopathies develop in humans. The work, which consistently features in the field’s leading journals, is highly significant not only for its rigour and ingenuity but also because it is laying the foundation for medical interventions that correct the cardiomyopathies.

 It is well worth noting that this research relies heavily on genetically defined Fruit flies (Drosophila melanogaster), a very powerful and tractable tool with which to model the molecular mechanisms underpinning human cardiomyocyte function.

 At BU we use Drosophila to model the effects of ageing, metabolism and environmental pollutants on heart and kidney function. It has become very clear that insect and human cardiovascular systems are affected in the same way by the same problems. So, by working with scientists such as Tony, we can develop experimental approaches that generate findings of relevance to many species, including humans.

RKEDF: UKRI Assurance and compliance for externally-funded grants

Thursday 20th June – 10:00-11:30 – Hybrid – Poole House, Talbot Campus

Thursday 20th June – 13:00-14:30 – Hybrid – Gateway Building, Lansdowne

UKRI Assurance and compliance for externally-funded grants

This workshop is aimed at staff who have active UKRI-funded grants, or are in the process of applying for UKRI-funded grants. The workshop will cover; how UKRI conduct its assurance and compliance visits (audits), what you as a principal investigator or co-investigator need to be aware of, how to prepare, and the support you can expect to receive from Research Development & Support. By the end of the workshop, you’ll be aware of the common pitfalls and what you can do to ensure a positive outcome if UKRI pick your project as part of their assurance and compliance process.

The external facilitator for these sessions is Charles Shannon

Please note there is an AM and a PM session on the same day. You are invited to attend online or in person.  

Book your place here – under “UKRI Assurance” in the drop-down menu

For any queries regarding this workshop, please contact RKE Development Framework

Improving Working Practices in Television.

Christa van Raalte has been invited to take part in an  industry round-table: Improving Working Practices in Television. Aimed at television professionals the event promises a thought-provoking discussion about the way television is being produced.  Thought leaders will review some of the harsh realities of production: long hours, immense pressure and a climate of fear that silences concerns.  With valuable crew members feeling disrespected and underpaid, the resulting  exodus threatens the very heart of television.

Christa’s participation in this event follows the recent publication of ‘Where have all the PMs gone? Addressing the Production Management Skills gap in UK TV’ https://eprints.bournemouth.ac.uk/39530/, which Christa first authored along with Richard Wallis, Rowan Aust and Dawid Pekalski.

Dr. Catalin Brylla raises awareness of Research and Social Justice at the Society for Cognitive Studies of the Moving Image

Dr. Catalin Brylla, Principal Lecturer in Film and TV and Deputy Head of CESJ, has chaired the DEI Committee for the Society for Cognitive Studies of the Moving Image since 2022, launching several initiatives.  At this year’s conference in Budapest, the DEI focus was on “Research and Social Justice”, featuring a roundtable discussion with Prof. Srivi Ramasubramanian (Newhouse School at Syracuse University), Prof. Beth Haller (Towson University) and Dr. Wyatt Moss-Wellington (University of New England). The roundtable, moderated by Dr. Ari Purnama, addressed the following questions:

  • How should media research relate to social justice issues in practice?
  • How do media representations of marginalised identities affect production, criticism, and perception of media?
  • How can media research be decolonised through marginalised perspectives, such as the Global South?
  • How can media research symbiotically involve the communities it studies, such as applying participatory research methods and knowledge exchange?

 

Another initiative has been a mentor-mentee programme that has provided support for early-career research on teaching, bidding and wellbeing, organised by committee member Dr. Kata Szita.

Brylla is currently developing with Prof. Jens Eder (Babelsberg University) a model to implement and study the social impact of documentaries, which they presented at the conference in Budapest:

The model is partly based on Brylla’s latest monograph ‘Documentary and Stereotypes: Reducing Stigma through Factual Media‘ (Palgrave 2023) and will be further developed in a research project that compares impact strategies in the UK and Germany.

Parkinson’s disease information day

Tuesday 18 June, 10am-3pm
Bournemouth Gateway Building, Lansdowne

This event is open to all BU staff, students and anyone with an interest in Parkinson’s disease, including researchers, those working in practice and members of the public, please help spread the word about this upcoming event.

Lunch and refreshments will be provided. For further information contact: adrc@bournemouth.ac.uk

To book your place visit: www.bournemouth.ac.uk/parkinsons-disease

This event is supported by funding from British Society of Gerontoloqy’s (BSG) Small Events fund.
For more information about the BSG, visit https://www.britishqerontology.org/

Ageing well together event – Thursday 13th June

The Ageing & Dementia Research Centre are delighted to be hosting “Ageing well together” an event bringing together members of the public, community organisations and researchers for an interactive day to share knowledge and showcase various projects and activities. The event will be in BGB on the Thursday 13th June 10.00- 15.00.

Please invite friends and family to join us. We ask that they register through our Eventbrite link https://www.bournemouth.ac.uk/events/ageing-well-together

Any questions about the event please email adrc@bournemouth.ac.uk 

Prof. John Oliver receives European media award

Prof.John Oliver was presented with the European Media Management Association’s highest award for “excellence in media management scholarship and practice” at the annual conference in The Netherlands.

The award also recognises Prof. Oliver’s contribution to the development of the association where he served on the Executive Board for many years and as the President between 2021-23.

Prof. Oliver commented that “whilst it is an honour to be presented with an individual award, it is also in recognition of the many people that have helped me develop my research and the contribution that many of the association’s members have made over the years”.

Health of Nepalese migrants workers research

Today, Sunday 9th June, our paper ‘Health and well-being of Nepalese migrant workers abroad was highlighted by ResearchGate as being widely read.  This scientific paper which was part of Dr. Pratik Adhikary’s PhD study in the Faculty of Health & Social Sciences has been read 1,000 times.