Tagged / Ageing and Dementia Research Centre

Filming day for the DEALTS2 instructional video for dementia trainers

Fusion, Knowledge Exchange

Try to imagine living with dementia. Now consider how it might feel caring for a person with dementia. Both concepts are challenging to imagine. However, understanding such concepts is key to improving the delivery of care.  

On 27th June 2023, the cameras were rolling live on Lansdowne Campus at Bournemouth University. Dr Michelle Heward and Director Jon Nichols (Jon Nichols Video Production) were filming a train-the-trainer video designed to support those wishing to use the Dementia Education and Learning Through Simulation 2 (DEALTS2) toolkit confidentially in their own training. The DEALTS2 programme, commissioned by Health Education England, is a training package that uses simulation-based activities to place staff into the shoes of a person with dementia. 

Social care providers including Managers, Support Workers, and Developmental Leads who deliver dementia training to staff in their care homes, day centres, and home care services across Dorset came in to receive training and were filmed for the video. There was a fantastic buzz as everyone arrived welcoming the opportunity to “refresh their dementia knowledge” and were excited to “gain new ideas to deliver dementia training”.  

Delivered wonderfully by Dr Michelle Heward, the training was enjoyed by all especially during the simulation activities. These scenario activities included cost-effective and fun tasks such as making origami swans with varying levels of challenging instructions, some deliberately frustrating! Designed to stimulate understanding of living with dementia to inform the care provided, the tasks were considered as “helpful”, “informative”, and “thought provoking and relevant to their service and carers”.  

After a reinvigorating day filming, care providers were “excited to go away and use the DEALTS2 training” and felt “confident” in delivery of the “excellent” resources. It was fantastic to hear most organisations are hoping to use the DEALTS2 resources within their own organisations in the next few months.  

Thanks to everyone who came along, agreed to be filmed, and helped produce the train-the-trainer video. Everyone did an amazing job and appeared unfazed by the camera during the demands of film production. Thanks also to Harry the boom operator and local actors Alex, Samuel, Rae, Amelia, and Nora who supported the day. The DEALTS2 train-the-trainer video was only possible with all your help. Currently in the editing process, watch this space to see how everyone got on!

For more information or to access the DEALTS2 training programme please visit: https://www.hee.nhs.uk/our-work/dementia-awareness/dementia-education-learning-through-simulation-2  

Lyndsey Bradley, BSc final year undergraduate
Research Assistant
Faculty of Health and Social Sciences 

Ageing and Dementia Research Forum – 29th June – Digital Health Coaching DIALOR

Fusion themes, Knowledge Exchange

Details of the next ADRC ageing and dementia research forum are listed below. The forum is an opportunity for staff and PhD students to get together to chat about research and share experiences in a safe and supportive environment. Specific topics are discussed but there is also time for open discussion to mull over aspects of research such as project ideas and planning, ethical considerations and patient and public involvement.

Date, time, and campus Research areas
29th June 2023

15.00-15.45

BG601, Bournemouth Gateway

Lansdowne Campus

 ‘Digital health coaching for older people with frailty in Wessex (DIALOR) ’Rachel Christie

If you would like to discuss your research ideas at a future meeting, please email Michelle mheward@bournemouth.ac.uk

We look forward to seeing you there.

Ageing and Dementia Research Centre

Dementia research in Nepal

international

Yesterday (April 11th) Dr. Bibha Simkhada presented key findings from our research project on ‘Cultural practice and policy in dementia care in Nepal’.  She spoke at the ‘Ninth National Summit of Health and Population Scientists in Nepal’.  This annual health summit in Kathmandu is organised by the NHRC (Nepal Health Research Council).  Dr. Simkhada, who is Visiting Faculty in the Faculty of Health & Social Sciences (FHSS), started this work whilst at Bournemouth University, before she moved to the University of Huddersfield to become a Senior Lecturer in Nursing.  This project is a cross-faculty collaboration with Dr. Shanti Shanker in the Department of Psychology.

This qualitative study comprising four face-to-face interviews and four focus groups with carers, health workers and other stakeholders.  The two key conclusion she presented are:

  • Stigma and stereotyping around dementia needs addressing. Nepal needs better policies, guidelines and service provision for people living with dementia and their carers.
  • There is need for inclusion of Dementia/Alzheimer education in undergraduate and postgraduate curricula of nurses, doctors and allied health professionals in Nepal.

Prof. Edwin van Teijlingen

Centre for Midwifery, Maternal & Perinatal Health (CMMPH)

 

Ageing and Dementia Research Forum – 26th January – Accessible Tourism

Fusion, Research Ethics, Research Integritiy

Details of the next ADRC ageing and dementia research forum are listed below. The forum is an opportunity for staff and PhD students to get together to chat about research and share experiences in a safe and supportive environment. Specific topics are discussed but there is also time for open discussion to mull over aspects of research such as project ideas and planning, ethical considerations and patient and public involvement.

Date, time, and campus Research areas
26th January 2023

15.30-16.45

BG601, Bournemouth Gateway

Lansdowne Campus

 ‘Accessible Tourism for Ageing and Dementia travellers’

Professor Dimitrios Buhalis and Dr Daisy Fan

Please confirm attendance by email to adrc@bournemouth.ac.uk

If you would like to discuss your research ideas at a future meeting, please email Michelle mheward@bournemouth.ac.uk

We look forward to seeing you there.

Ageing and Dementia Research Centre

Join the Ageing and Dementia Research Forum – everyone welcome

 

 

 

 

 

 

Dear colleagues

We are developing a forum for those interested in ageing and dementia research at Bournemouth University. The forum is an opportunity to get together to chat about research and share experiences in a safe and supportive environment. Specific topics will be discussed but there will also be time for open discussion to mull over aspects of research such as project ideas and planning, ethical considerations and patient and public involvement.

The next forum meetings will be in October and November (see table below), if you would like to join us, please email adrc@bournemouth.ac.uk so we can send you the meeting details.

Date, time, and campus Research areas
27th October 2022

15.30-17.00

Talbot Campus

 Dr Michele Board – Frailty

Dr Susan Dewhurst – Falls prevention
24th November 2022

15.30-17.00

Lansdowne Campus

 Dorset Healthcare – Down syndrome and dementia

If you would like to discuss your research ideas at a future meeting, please email Michelle mheward@bournemouth.ac.uk

Kind regards,

Ageing and Dementia Research Centre

 

Interested in mental health research? – don’t miss this upcoming event

Interested in mental health research?  – don’t miss this upcoming event ‘Improving care for mental health: How research can change and save lives’ 5th December 2022

Prof Sam Chamberlain, Mental Health Research Hub Lead, NIHR ARC Wessex visited BU on 6th October 2022 to talk about the hub and opportunities to engage.

If you would like copies of the slides, please contact Caroline Hemmings email: adrc@bournemouth.ac.uk

He also announced an exciting upcoming event ‘Improving care for mental health: How research can change and save lives’. The event will be hosted by the NIHR ARC Wessex Mental Health Hub, CRN Wessex and Wessex Academic Health Science Network.

It will be taking place on Monday 5th December 2022, 10:00 – 16:00 at the Axis Conference Centre in Chilworth Science Park, Southampton, SO16 7NP.

The event is aimed at people working in a mental health related setting, who are interested in learning more about research and how to get involved. See the attached poster.

Please click here to register for the event. Please note that places are limited, so don’t leave it too late to register! Please feel free to share the event details with your networks.

The Ageing and Dementia Research Centre – September Newsletter

Coffee Morning

 

 

 

 

 

 

The Ageing and Dementia Research Centre has put together a newsletter showcasing the work we do here in the centre, we plan on sending this out three times a year (September, January and April) to our network of people in the community who are interested in knowing about the research we are doing.

Here is a link to the newsletter https://www.bournemouth.ac.uk/research/centres-institutes/ageing-dementia-research-centre which you will see located on the righthand side of the web page.

The newsletter includes information about:

  • Our coffee mornings
  • Research projects that are looking for research participants
  • Updates on established research projects
  • Latest news

We would love to hear from you if you are undertaken research within the areas of ageing and dementia and you would like to either present at one of our coffee mornings or would like to include your research project in one of our newsletters.

To find out more and to be involved with the centre, please email adrc@bournemouth.ac.uk

 

Free training sessions for dementia researchers

conferences, international, Knowledge Exchange, Training

Bournemouth University is involved in a wider collaboration which organises the Advanced Dementia Research Conference (ADRC 2021).  The conference is delivered online today and tomorrow (19th-20th November).  ADRC 2021 is led by Dr. Brijesh Sathian, BU Visiting Faculty, based in the Geriatric Medicine Department, Rumailah Hospital, in Doha, Qatar.  Saturday morning Prof. Edwin van Teijlingen will be delivering a session on qualitative research, preceded by a session on mixed-methods research from Prof. Padam Simkhada, also BU Visiting Faculty, from the University of Huddersfield.

The programme shown is for Day 2 tomorrow.   All sessions today and tomorrow are free to attend!  You can register here! Please, note that advertised times a Qatar times which three hours ahead of the UK at the moment.  

Prof. Edwin van Teijlingen

CMMPH (Centre for Midwifery, Maternal & Perinatal Health)

 

ADRC Research Seminar – Interactive Digital Narratives for Health

Knowledge Transfer

Thank you to Dr Lyle Skains for your very interesting and informative presentation this Wednesday.

Title: Interactive Digital Narratives for Health: Approaches to using storygames as intervention and education  

For anyone who couldn’t make it or would like to recap on the information please email adrc@bournemouth.ac.uk to request a copy of the presentation slides or the recording of the seminar which we can send on to you. 

 Abstract: Interactive digital narratives (IDNs) (a.k.a. digital fiction, storygames, hypertexts, interactive fiction) are an emerging form of engaging storytelling adaptable to many devices, platforms, purposes, and audiences. This talk highlights pilot studies in creating and using IDNs as health and science education-through-entertainment on the Playable Comms project (playablecomms.org). As an interdisciplinary network of projects, Playable Comms combines science and arts research and practice to develop a model for creation of health- & sci-comm IDNs, and evaluates their efficacy, attempting to measure message uptake from outright rejection to holistic adoption engendering associated behavioural change. IDNs can be used in schools, GP waiting rooms, on tablets and smartphones; interactivity significantly increases retention, particularly when incorporated into media that audiences voluntarily and eagerly devote attention to.  

Best wishes

The Ageing and Dementia Research Centre

Congratulations to Masters Nutrition and Behaviour student Vicki Lawrence  – paper on Covid-19

Congratulations to Masters Nutrition and Behaviour student, Vicki Lawrence, working as a Student Research Assistant with Prof Jane Murphy  and team to undertake a national UK survey of nutritional care pathways from dietitians.  The  work has been undertaken in collaboration with academics and practitioners at Plymouth University, University College London, Imperial College London and Glasgow Royal Infirmary to understand  the delivery of nutrition care pathways for people with COVID-19 infection. The findings have informed the development of  further collaborative work  to understand nutritional care provided by health care professionals and in people with long COVID.

Congratulations!

Reference:

Lawrence V, Hickson M, Weekes CE, Julian A, Frost G, Murphy J. (2021) A UK survey of nutritional care pathways for patients with Covid-19 prior to and post hospital stay. Journal of Human Nutrition and Dietetics. First published: 18 March 2021 https://doi.org/10.1111/jhn.12896

Older People and Malnutrition in the UK today

Business Engagement

 

 

 

 

 

Prof Jane Murphy from BU’s Ageing and Dementia Research Centre (ADRC) was invited to speak at the All-Party Parliamentary Group (APPGs) for Ageing and Older People on 10th March 2020. The topic of the session was ‘Older People and Malnutrition in the UK today’.

Chaired by Rachael Maskell, MP, it was attended by public, stakeholders and other MPs. This cross-party forum holds government to account on issues affecting ageing older people.

The online forum addressed the concerns of malnutrition in older people, that has worsened as a result of the pandemic due to the consequences of shielding, lockdown and isolation and people not accessing health and social care services.

Jane spoke on the part research plays in raising awareness of malnutrition across health and social care setting alongside Dianne Jeffery OBE, Chair of the Malnutrition Task Force, Dr Trevor Smith , Chair of BAPEN and Vittoria Romano, Chair of  the British Dietetic Association Older People Specialist group.

Jane shared some good practice examples from her research and tools co-produced with key stakeholders and older people to address the problem – the Patients Association Nutrition Checklist and the Nutrition Wheel (see Malnutrition Task Force website). Also a call to action for:

1) more focus on prevention and early identification of malnutrition in the community

2) people having access to appropriate Primacy Care and Voluntary Sector Organisation support in local communities and

3) prioritising nutritional care across integrated pathway across health and social care as part of new integrated care systems to support recovery.

She also raised the importance of research in the area to respond to the concerns of black and minority ethics communities.

What was clear is that long after we’ve beaten the virus, the NHS, care homes and communities will still be dealing with the consequences of malnutrition unless we take action now!

 

Our first research seminar of 2021 – THIS WEDNESDAY

Seminar 1

Title: Dementia and digital selfhood: Identity formation in the age of social media

Speaker: Dr Catherine Talbot

Date and time: 10th February @ 12.30pm

Abstract:  A diagnosis of dementia in mid-life can be challenging, often causing losses or changes in a person’s identity as a worker, partner, or parent. Dementia also continues to be a stigmatised condition, whereby those with the diagnosis are frequently identified as ‘victims’ and ‘sufferers’. In contrast, social media may provide some individuals with a means of reconstructing identity, by facilitating narrative and community membership. In this presentation, Dr Catherine Talbot will discuss the findings of her interview study with 11 people with young-onset dementia who use Twitter. Her findings suggest that people with young-onset dementia are using Twitter to re-establish, communicate, preserve, and redefine their identities. However, there are some risks as Twitter was sometimes a hostile environment for individuals who did not present in a ‘typical’ manner or faced technical difficulties because of their symptoms. These findings have important implications for post-diagnostic support provision and the design of accessible social media platforms.

Seminar 2

Title: Functional and structural plasticity in the ageing brain  

Speaker: Prof Hana Burianová 

Date and time: 20th April @12.30pm

Abstract: Determining the mechanisms that underlie neurocognitive ageing and facilitating the development of effective strategies for cognitive improvement are essential due to the steadily rising ageing population. One approach to study the characteristics of ageing comprises the assessment of functional and structural connectivity in the brain, delineating markers of age-related neurocognitive plasticity. In this talk, Prof. Hana Burianová will discuss the findings of several neuroimaging studies, which demonstrate evidence of age-related functional alterations, such as compensation and/or dedifferentiation, as well as structural decline, such as reduced white matter integrity. The complex relations between the brain reorganisation and behavioural performance have critical implications for the efficiency of neurocognitive functioning in older adults. 

Seminar 3

Title: Interactive Digital Narratives for Health: Approaches to using storygames as intervention and education  

Speaker: Dr Lyle Skains 

Time and date: 16th June @ 12.30pm

Abstract: 

Interactive digital narratives (IDNs) (a.k.a. digital fiction, storygames, hypertexts, interactive fiction) are an emerging form of engaging storytelling adaptable to many devices, platforms, purposes, and audiences. This talk highlights pilot studies in creating and using IDNs as health and science education-through-entertainment on the Playable Comms project (playablecomms.org). As an interdisciplinary network of projects, Playable Comms combines science and arts research and practice to develop a model for creation of health- & sci-comm IDNs, and evaluates their efficacy, attempting to measure message uptake from outright rejection to holistic adoption engendering associated behavioural change. IDNs can be used in schools, GP waiting rooms, on tablets and smartphones; interactivity significantly increases retention, particularly when incorporated into media that audiences voluntarily and eagerly devote attention to.  

We hope you will join us at our seminars, if you are interested in attending please email adrc@bournemouth.ac.uk and we will send you the relevant zoom meeting details.

Thank you for your support

Best wishes

The Ageing and Dementia Research Centre

Using Drama and Storytelling in Dementia Care

 

Irma Konovalova, Danielle Wyman, Dr Ben Hicks and Prof Jan Wiener, members of the ADRC, have been working on ERASMUS+ funded project ‘Using Drama and Storytelling in Dementia Care’. This project has demonstrated the potential for creative psychosocial initiatives to support well-being in people with dementia and their care partners. The team have been working in collaboration with people with dementia to develop a storytelling and creative drama programme that aimed to enhance communication within this population and promote a positive sense of identity.

The Story2Remember team have produced the third output “Storytelling and alternative communication methods in dementia care: Toolkit for family members”. This toolkit aims to enhance the skills of family members of people with dementia through the use of  storytelling as well as alternative communication methods. The toolkit includes a brief description of the most common situations in which communication difficulties may arise, it describes how storytelling and alternative communication methods can be used in these situations and provides step by step guidelines to implement activities that can support communication between people with dementia and their family.

We asked dementia professionals from the partnering countries, England, Greece, Romania and Bulgaria, to review this toolkit and provide their feedback. Professionals identified it as a useful toolkit to support communication between family members and people with dementia. They thought it is well supported by empirical evidence and suggested that this toolkit provides new and alternative ways to communicate with people with dementia that may stimulate memories and positive feelings. One of the professionals reported: “the activities that have been created and outlined at the end of the booklet are an excellent way of developing communication and enhancing the caring relationship between the person with dementia and the family member”. Some professionals also suggested that this toolkit raises awareness of the importance of communication.

Reviewers also commented on how professional and engaging look of the toolkit looks and that it has been written and designed very well. There are a lot of useful tips for family members and practitioners to enhance their communication techniques with people with dementia and it has been tailored to specific difficulties people with dementia and their family may encounter throughout the progress of dementia. The toolkit emphasises individual differences and encouraged people to address them. Reviewers also enjoyed the case study examples of people using story-telling communication techniques to support the person with dementia: “These added some real-life examples to the text and helped to show how they can work in practice”. They suggested that the communication methods encourage originality and creativity.

Reviewers liked the novel ideas and suggestions to support communication, especially the Adventures: “I think the Adventures are excellent and provide a really useful, creative and engaging mechanism for family members to communicate with the person with dementia. I think these activities will be of real benefit to family members who find it difficult to communicate with the person with dementia and are struggling for activities to engage them. This is likely to be even more pertinent in the current global context, where people are self-isolating at home and are likely to be in desperate need of mental, physical and emotional stimulation”.

Professionals also highlighted some areas for improvement that could be addressed in the future. For example, some practitioners mentioned that it may become challenging to use some of the suggested strategies once dementia is more advanced. They wanted more information about how to adapt communication strategies to different stages of dementia, especially if people with dementia eventually loose the ability to communicate. It may have also been useful to address the emotional impact that the progression of dementia has on family members and care partners and how these emotions can be managed.

Even though majority of professionals suggested that the toolkit is very easy to follow and that it is written clearly and contains a logical flow to it, there were suggestions about how the large amount of information provided by the toolkit could be presented in a more accessible format, for example by providing links within the text and by avoiding terms such as ‘personhood’ and ‘PwD’, especially for the lay audience.

Generally, however, the reviewers provided very positive feedback, reporting that the toolkit met their expectations and the content was excellent. They emphasised how much they enjoyed reviewing the toolkit and how novel it was.

“Thank you for your research, implementation and desire for improvement of the tool!”

“I am really glad that this new approach has been taken for the benefit of people with dementia and family members. It is a tool for all family members who care for people with dementia, whether they are in the early or advanced stages of the disease.”

“Thank you for the shared experience!”

“I think this is a really excellent project that demonstrates the importance of creative initiatives to support the well-being of people with dementia and their family members. It will be important to publicise the toolkit widely and so ensure that family members develop the knowledge and skills to run these beneficial activities”.

The toolkit can be downloaded on the project website: https://story2remember.eu/

BU Dementia paper published today

NHS, Publishing, writing

Today the international sociology journal Sociological Research Online (SAGE) published the paper  ‘Dementia as Zeitgeist: Social Problem Construction and the Role of a Contemporary Distraction’  [1].  Using notions of social problem construction and sociologies of legitimacy, this article explores dementia as Zeitgeist that has captured imaginations but as such is contingent and therefore precarious building an edifice that may be limited and may occlude dangers for people living with dementia.  This paper is written by two BU academics: Prof. Jonathan Parker (Department of Social Sciences & Social Work) and Dr. Vanessa Heaslip (Department of Nursing Science) and former one BU staff  member Dr. Clare Cutler .  Clare is now at the Wessex Institute for Health Research & Development.

 

Congratulations

Prof. Edwin van Teijlingen

CMMPH

Photo of the week: ‘Active ageing in place’

Telling a story of research through photography

The ‘photo of the week’ is a weekly series featuring photographs taken by BU academics and students for our Research Photography Competition which took place earlier this year.

These provide a snapshot into some of the incredible research taking place across the BU community. 

This week’s photo of the week was taken by Dr Michelle Heward and is titled;

‘Active ageing in place’

The onset of physical and mental impairments in later life may mean that mobility declines and individuals need to adjust or change their levels of activity accordingly. Older people therefore require choice of physical activities that are flexible to ensure all abilities are catered for. The GO Active Gold Programme in Oxfordshire encourages people in rural areas age 60 and over, to live more active lifestyles, by setting up local physical activities for all abilities. With funding received from Sport England, they employed rural Activators, to work in partnership with local communities to deliver a varied, inclusive and social physical activity programme. To date, the programme has engaged over 3000 participants from 81 different villages.

Under the ‘Activity and Inclusion’ research theme the Ageing and Dementia Research Centre are currently evaluating how far the project has improved the physical and mental well-being of older adults; encouraged stronger community spirit by reducing loneliness and social isolation through participation in activities; developed a sustainable physical activity programme. Research team: Dr Michelle Heward (Post-Doctoral Research Fellow), Amanda Adams (PhD Student) Prof Jane Murphy (Professor of Nutrition)

If you have any questions about the Photo of the Week series or the Research Photography Competition please email research@bournemouth.ac.uk

The Ageing and Dementia Research Centre was at the Caring UK Conference – 11th April 2019

conferences

The Caring UK conference was held at Bournemouth Football Club’s Vitality Stadium. The doors opened promptly at 08.30 for attendees to visit the various exhibition stands that were on show. This included our very own stand displaying our guides and workbooks around the topic of Eating and Drinking Well with Dementia. These were very popular with attendees and helped showcase the work that the centre does. The stand was run by Caroline Jones (Administrator for the centre) and Dr Michele Board (Co-Director of the centre).

As part of the conference Dr Michele Board was giving a talk about ‘Insight into the Lived experience of Living with Dementia – A Virtual Reality Experience’. Having spoken to a lot of attendees in the morning ahead of Dr Michele Board’s talk in the afternoon, they were all very much looking forward to hearing Michele speak.

Overall, it was a very worthwhile conference to attend having met a variety of useful contacts from the care industry and it also really helped raise awareness of the work that the Ageing and Dementia Centre does.

Image of the Eating and Drinking Well with Dementia: A Guide for Care Staff that was on display.

Image of the Eating and Drinking Well: Supporting People Living with Dementia workbook  that was on display.