Tagged / Health

#DataSavesLives – using patient data for research

BU research, Clinical Governance, data management, Guidance, Knowledge Exchange, NHS, policy, Publishing, Research assessment, Research communication, Research Ethics, Research Integritiy, Research news, writing

Patient data underpins and leads to improvements in research and care.

The National Institute for Health Research (NIHR) has recently shared a resource surrounding the use of patient data in clinical research. The page contains a number of useful links to guidance such as the NHS pages on why patients’ data matters and also the Understanding Patient Data resource, which outlines a set of key principles that should be followed in using patient data for research purposes.

Acknowledging contribution

It’s important that if a researcher uses patient data, that they acknowledge it by using the following citation –

“This work uses data provided by patients and collected by the NHS as part of their care and support”

The above has been developed by use MY data, a movement of patients, carers and relatives, in place to ensure that the patient data used is protected by the appropriate safeguards, and is treated with the respect and confidentiality it deserves.

National data opt-out programme

The page likewise signposts the above programme which allows patients and the public to opt-out of their confidential patient information being used for planning and research purposes.

All health and care organisation will uphold these choices by March 2020.

Training opportunity – completing and submitting your IRAS application

BU research, Clinical Governance, data management, NHS, Research Ethics, Research Training, Training

Are you currently in the process of designing, setting up or planning your research study, and would like to extend your project into the NHS?

Yes? Then you may want to take advantage of this training opportunity.

Oliver Hopper (Research & Development Coordinator, Royal Bournemouth and Christchurch Hospital) and Suzy Wignall (Clinical Governance Advisor, R&KEO)  will be running a training session on how to use, and complete your own application within the IRAS system.

IRAS (Integrated Research Application System) is the system used to gain approvals from the NHS Research Ethics Committee and Health Research Authority, before rolling out your study to NHS Trusts. To support this, the session will include the background to research ethics and the approvals required for NHS research.

The session will also be interactive, and so as participants, you will have the opportunity to go through the form itself and complete the sections, with guidance on what the reviewers are expecting to see in your answers, and tips on how to best use the system.

The training will take place in Studland House – Lansdowne Campus, room 102 this Wednesday 5th December, at 09:30am – 12:30pm.

Get in touch with Research Ethics if you would like to register your interest and book a place.

BU Humanising Practice 6th December

Events, innovation

 

We have two great presentations:

  • Humanising higher education by practicing with an embodied relational understanding. Dr Camila Devis-Rozental, Senior Lecturer, OVC, BU
  • Humanising education through digital stories: the human side of technology Dr Sue Baron Lecturer in Adult Nursing FHSS BU

For more details please go to https://research.bournemouth.ac.uk/2017/04/bu-humanisation-special-interest-group/

On:  6th December 2018, From 2pm to 4.30 pm, 

At: Room B225 Bournemouth House Bournemouth University, Lansdowne Campus, (BH1 3LH)

At meetings we discuss issues following two presentations, and share our on-going work into humanising practice in education, practice and research.

All staff, students and external visitors are welcome

If you would like directions to the venue, have any queries OR If you are not already a member of the Humanising SIG e-mail list and would like to be informed of future events, please contact Caroline Ellis-Hill at cehill@bournemouth.ac.uk

We are a group of academics and practitioners who have an interest in what makes us Feel Human and how this is linked to Health, Wellbeing, Dignity and Compassion. As part of the Centre for Qualitative Research CQR we use Lifeworld approaches, embodied knowing and subjective experience as the basis for our understanding. For more information please click here

Two papers rejected the day after submission in same week

BU research, Featured academics, international, PG research, Publishing, Research communication, Research Training, student research, Uncategorized, writing

This week we had this enviable record of two academic papers on health topics being rejected the day after submission.  The first paper was submitted on Monday to Issues in Mental Health Nursing.  Our paper reported the Content Analysis of a review of the nursing curricula on mental health and maternity care issues in Nepal. The journal editor emailed us the next day to inform us that the topic was interesting, but not relevant enough to the journal’s readers.

The second paper submitted by a different configuration of staff was submitted last Friday to the Journal of Youth & Adolescence.  The second paper reported a qualitative study on students views on abortion in the south of England.  This journal’s rapid reply came the next day (yesterday) stating that:

Unfortunately, the editors have completed an internal review of your study and have deemed your manuscript inappropriate for our journal. Although your manuscript has important strengths, the journal has moved away from supporting qualitative work (unless it would be part of a journal special issue). Please rest assured that our decision has nothing to do with the quality of your study or findings.

On both occasion we had discussed potential journals and we thought we had targeted appropriate journals for the respective manuscripts.  Moreover, in both manuscripts we managed to cite at least one paper published in the journal to which we had submitted it.  The general message to my colleagues is that it does not matter how many papers you have written and submitted, you will: (1) occasionally opt for the wrong journal; (2) continue to face regular rejection by journal editors; and (3) have an opportunity to submit to another journal.

 

Prof. Edwin van Teijlingen

Centre for Midwifery, Maternal & Perinatal Health

CQC inspection to include research in NHS Trusts

Clinical Governance, data management, NHS, Research Ethics, Research Integritiy, Research news

A partnership has been formed between the National Institute for Health Research (NIHR), the Health Research Authority (HRA), the Medicines and Healthcare Products Regulatory Agency (MHRA), and the Care Quality Commission (CQC).

This partnership is looking to develop new assessment guidance and indicators as part of the CQC’s monitoring and inspection programme. This means that as part of inspection, an NHS Trust’s research activity will likewise be assessed. Research is recognised as a key factor in delivering quality patient care

Find out more here, including an article on the benefit of research for patients, that was published in the Royal College of Physicians member magazine, Commentary.

Suggest an idea for clinical research – NIHR opportunity

BU research, Clinical Governance, innovation, NHS, Research communication, Research Ethics, Research Integritiy, Research news

Do you feel there are any gaps in health and social care research? The NIHR are advertising the opportunity to submit your own idea, or ideas, for potential future research projects.

You can submit your idea here, and read example suggestions to help inspire you!

Once submitted, the NIHR will compare the suggestion with existing or ongoing research and will likewise seek advice from a number of stakeholders including patients and members of the public.

Remember that support is on offer at BU if you are thinking of introducing your research ideas into the NHS – email the Research Ethics mailbox, and take a look at the Clinical Governance blog.

Supporting Health and Social Care Research – NIHR resource

BU research, Clinical Governance, Knowledge Exchange, NHS, Research communication, Research Ethics, Research Integritiy, Research news

Supporting Health and Social Care Research

A range of resources and best practice success stories have been pulled together to make promoting research and its benefits to patient care more accessible to everyone.

The NIHR website now hosts a number of pages and resources, such as how the NIHR can help academic researchers to conduct and deliver research, and success stories from amongst the research community – access the following link to find out more.

Remember that support is on offer at BU if you are thinking of introducing your research ideas into the NHS – email the Research Ethics mailbox, and take a look at the Clinical Governance blog.

Training opportunity – completing and submitting your IRAS application

BU research, Clinical Governance, data management, NHS, Research Ethics, Research Training, Training

Are you currently in the process of designing, setting up or planning your research study, and would like to extend your project into the NHS?

Yes? Then you may want to take advantage of this training opportunity.

Oliver Hopper (Research & Development Coordinator, Royal Bournemouth and Christchurch Hospital) and Suzy Wignall (Clinical Governance Advisor, R&KEO)  will be running a training session on how to use, and complete your own application within the IRAS system.

IRAS (Integrated Research Application System) is the system used to gain approvals from the NHS Research Ethics Committee and Health Research Authority, before rolling out your study to NHS Trusts. To support this, the session will include the background to research ethics and the approvals required for NHS research.

The session will also be interactive, and so as participants, you will have the opportunity to go through the form itself and complete the sections, with guidance on what the reviewers are expecting to see in your answers, and tips on how to best use the system.

The training will take place in Studland House – Lansdowne Campus, room 102 on Wednesday 5th December, at 09:30am – 12:30pm.

Get in touch with Research Ethics if you would like to register your interest and book a place.

BU PhD student PROSPERO publication

BU research, Delicious links, international, Publishing, Research news, student research, Uncategorized, writing

Congratulations to BU PhD student Dimitrios Vlachos who had his PROSPERO protocol published [1].   Dimitrios working on a project promoting the Mediterranean-style diet in childbearing age, he is supervised across faculties by Dr. Fotini Tsofliou and Prof. Katherine Appleton.

Well done!

Prof. Edwin van Teijlingen

Centre for Midwifery, Maternal & Perinatal Health (CMMPH)

 

Reference:

  1. Tsofliou, F., Appleton, K., Vlachos, D. (2018) Barriers and facilitators to following a Mediterranean style diet in adults: a systematic review of observational and qualitative studies. PROSPERO 2018 CRD42018116515

 

 

 

New paper on Nepal by FHSS’s Dr. Nirmal Aryal

BU research, international, Publishing, Research news, Uncategorized, writing

Many congratulations to Dr. Nirmal Aryal, postdoctoral researcher in FHSS for his new publication ‘Blood pressure and hypertension in people living at high altitude in Nepal’ in Hypertension Research [1]. Hypertension Research is a prestigious journal published by Nature (Impact Factor of 3.4).

This is the first study of its kind to collect cardiovascular disease and risk factors related information at four different altitude levels above or equal to 2800 m and from ethnically diverse samples. This paper highlighted that despite known hypoxia-induced favourable physiological responses on blood pressure, high altitude residents (>2800 m) in Nepal might have an increased risk of raised blood pressure associated with lifestyle factors and clinicians should be aware of it. The authors previously published a systematic review paper summarizing global evidence on the relationship between blood pressure and high altitude [2].

This publication is available online at: https://www.nature.com/articles/s41440-018-0138-x and pre-refereed version is available in BURO.

Well done!

Dr. Pramod Regmi & Prof. Edwin van Teijlingen

 

References:

  1. Aryal N, Weatherall M, Bhatta YKD, Mann S. Blood pressure and hypertension in people living at high altitude in Nepal. Hypertension Res 2018 doi: 10.1038/s41440-018-0138-x[published Online First: Epub Date]|
  2. Aryal N, Weatherall M, Bhatta YKD, Mann S. Blood pressure and hypertension in adults permanently living at high altitude: a systematic review and meta-analysis. High Alt Med Biol 2016; 17: 185-193.

Training opportunity – completing and submitting your IRAS application

BU research, Clinical Governance, data management, NHS, Research Ethics, Research Training, Training

Are you currently in the process of designing, setting up or planning your research study, and would like to extend your project into the NHS?

Yes? Then you may want to take advantage of this training opportunity.

Oliver Hopper (Research & Development Coordinator, Royal Bournemouth and Christchurch Hospital) and Suzy Wignall (Clinical Governance Advisor, R&KEO)  will be running a training session on how to use, and complete your own application within the IRAS system.

IRAS (Integrated Research Application System) is the system used to gain approvals from the NHS Research Ethics Committee and Health Research Authority, before rolling out your study to NHS Trusts. To support this, the session will include the background to research ethics and the approvals required for NHS research.

The session will also be interactive, and so as participants, you will have the opportunity to go through the form itself and complete the sections, with guidance on what the reviewers are expecting to see in your answers, and tips on how to best use the system.

The training will take place in Studland House – Lansdowne Campus, room 102 on Wednesday 5th December, at 09:30am – 12:30pm.

Get in touch with Research Ethics if you would like to register your interest and book a place.

Training opportunity – completing and submitting your IRAS application

BU research, Clinical Governance, data management, NHS, Research Ethics, Research Training, Training

Are you currently in the process of designing, setting up or planning your research study, and would like to extend your project into the NHS?

Yes? Then you may want to take advantage of this training opportunity.

Oliver Hopper (Research & Development Coordinator, Royal Bournemouth and Christchurch Hospital) and Suzy Wignall (Clinical Governance Advisor, R&KEO)  will be running a training session on how to use, and complete your own application within the IRAS system.

IRAS (Integrated Research Application System) is the system used to gain approvals from the NHS Research Ethics Committee and Health Research Authority, before rolling out your study to NHS Trusts. To support this, the session will include the background to research ethics and the approvals required for NHS research.

The session will also be interactive, and so as participants, you will have the opportunity to go through the form itself and complete the sections, with guidance on what the reviewers are expecting to see in your answers, and tips on how to best use the system.

The training will take place in Studland House – Lansdowne Campus, room 102 on Wednesday 5th December, at 09:30am – 12:30pm.

Get in touch with Research Ethics if you would like to register your interest and book a place.

Health Research Survey – have your say

Knowledge Exchange, NHS, Research communication

Do you want to have a say in deciding priorities for health research? 

Have your say and rank priorities for research to help make care safer for adults with complex health needs. The list of priority areas in this survey was identified by patients, carers, the public and healthcare staff who filled out the first survey earlier this year. The survey is open to those not currently doing healthcare research.

The survey can be accessed here. Deadline: 12 November 2018

The NIHR Imperial Patient Safety Translational Research Centre, who are running this survey with the James Lind Alliance, will host a workshop on 17th December (London) with the results of this survey to come to a consensus for the top 10 areas for research. The results will be widely publicised to encourage research funding bodies and research teams to address these questions. It will also do research in some of these areas itself.

Dorset physio shares first experience as Principal Investigator on NIHR funded study

Clinical Governance, NHS, Research communication, Research news

A recent article published on the Wessex Clinical Research Network website explores the experience of a local physiotherapist, based at Dorset County Hospital (DCH), who became the Principal Investigator for a clinical research study. Having undertaken the role for the first time, the article contains his experience of performing the duty and how this was balanced with his pre-existing clinical tasks and responsibilities.

The CORKA study investigates rehabilitation for patients that have undergone a knee arthoplasty and was the first collaborative study between DCH and Dorset Healthcare. To date the study has recruited over 300 participants.

Remember that support is on offer at BU if you are thinking of introducing your research ideas into the NHS – email the Research Ethics mailbox, and take a look at the Clinical Governance blog.

Good Clinical Practice refresher – Monday 12th November

BU research, Clinical Governance, NHS, Research Ethics, Research Training, Training

Are you currently undertaking research within the NHS and your Good Clinical Practice (GCP) training is due to expire? Or has it expired recently?

GCP certification lasts for two years, so if your training is due to expire, has expired, or you want to validate your learning, then take advantage of the upcoming refresher half day session, taking place at Poole Hospital on Monday 12th November, 9am – 12:30pm.

Spaces are still remaining, so if you’d like to enrol, get in touch with Research Ethics or the Wessex Clinical Research Network.

Failing to publish data from clinical trials presents risk to human health

BU research, Clinical Governance, data management, NHS, open access, Publishing, Research Ethics, Research Integritiy, research integrity, Research news

A recent inquiry into research integrity was made earlier this year by the Science and Technology Committee, which revealed that nearly half of clinical trials fail to publish their results.

This lack of publishing has been deemed a risk to human health and a contributory factor in research wastage.

The article gives examples of a number of studies that are yet to be published, and how this activity ‘threaten(s) research integrity, and in some cases, endanger(s) human life’. The full article can be found here.

The University has administrative access to the ClinicalTrials.gov system – get in touch with us  if you are conducting clinical research, to ensure that you have access.