Category / Psychology

Presenting BU’s kidney disease research in Manchester

conferences, international, Publishing, writing

Tuesday 18th March Drs. Pramod Regmi and Nirmal Aryal from the Department of Nursing Sciences presented our work on risk of kidney disease in Nepalese migrant workers in the Middle East and Malaysia.  The presentation was at the Project Impact Seminar in the Whitworth Gallery in Manchester organised by  The Colt Foundation, the funder of our research.

The title was: ‘Risk of kidney injury among returnee Nepalese migrants: a mixed-methods’ which was conducted in the one of areas of Nepal with a high proportion of people working abroad as migrant labourers.  Over the past decade there have been increasing concerns about possible chronic kidney disease (CKD) in migrant workers returning to Nepal. 

This important study has resulted in one publication in PLoS One  (1) and one more recently submitted.  The event was good for networking to discuss possible collaborations.  We also had the pleasure of meeting former colleagues from the University of Aberdeen, now based at the University of Stirling.  This dissemination event is the latest in a long line of research publications focusing on the health and well-being of migrant workers from Nepal from the BU team in the Faculty of Health & Social Sciences [1-35].

 

Prof. Edwin van Teijlingen

Centre for Midwifery & Women’s Health

 

References:

  1. Regmi, P., Aryal, N., Bhattarai, S., Sedhain, A., KC, R.K. and van Teijlingen, E. (2024) Exploring lifestyles, work environment and health care experience of Nepalese returnee labour migrants diagnosed with kidney-related problems, PLoS One 19(8): e0309203. https://doi.org/10.1371/journal.pone.0309203
  2. Paudyal, P., Wasti, S.P., Neupane, P., Sapkota, J.L., Watts, C., Kulasabanathan, K., Silwal, R., Memon, A., Shukla, P., Pathak, R.S., Michelson, D., Beery, C., Moult, A., Simkhada, P., van Teijlingen, E., Cassell, J. 10, (2025) Coproducing a culturally sensitive storytelling video intervention to improve psychosocial well-being: a multimethods participatory study with Nepalese migrant workers, BMJ Open 15:e086280. doi: 10.1136/bmjopen-2024-086280
  3. Mahato, P., Bhusal, S., Regmi, P.,  van Teijlingen, E. (2024). Health and Wellbeing Among Nepali Migrants: A Scoping Review. Journal of Health Promotion, 12(1): 79–90. https://doi.org/10.3126/jhp.v12i1.72699
  4. Paudyal, A.R., Harvey, O., van Teijlingen, E., Regmi, P. R., Sharma, C. (2024). Returning Home to Nepal after Modern Slavery: Opportunities for Health Promotion. Journal of Health Promotion, 12(1): 125–132. https://doi.org/10.3126/jhp.v12i1.72713
  5. Simkhada, P.P., van Teijlingen, E., Gurung, M., Bhujel, S., Wasti, S.P. (2024) Workplace harassment faced by female Nepalese migrants working aboard, Global Health Journal 8(3): 128-132. https://www.sciencedirect.com/science/article/pii/S241464472400040X
  6. Regmi, P., Aryal, N., van Teijlingen, E., KC, R.K., Gautam, M. and Maharjan, S. (2024). A Qualitative Insight into Pre-Departure Orientation Training for Aspiring Nepalese Migrant Workers. Tropical Medicine and Infectious Disease, 9 (7).
  7. Chaudhary, M.N., Lim, V.C., Faller, E.M., Regmi, P., Aryal, N., Zain, S.N.M., Azman, A.S. and Sahimin, N. (2024). Assessing the basic knowledge and awareness of dengue fever prevention among migrant workers in Klang Valley, Malaysia. PLoS ONE, 19 (2).
  8. Aryal, N., Regmi, P., Adhikari Dhakal, S., Sharma, S. and van Teijlingen, E. (2024). Moral panic, fear, stigma, and discrimination against returnee migrants and Muslim populations in Nepal: analyses of COVID-19 media content. Journal of Media Studies, 38 (2), 71-98.
  9. Chaudhary, M.N., Lim, V.C., Sahimin, N., Faller, E.M., Regmi, P., Aryal, N. and Azman, A.S. (2023). Assessing the knowledge of, attitudes towards, and practices in, food safety among migrant workers in Klang Valley, Malaysia. Travel Medicine and Infectious Disease, 54.
  10. Adhikari, Y., Regmi, P., Devkota, B. and van Teijlingen, E. (2023). Forgotten health and social care needs of left-behind families of Nepali migrant workers. Journal of Health Promotion, 10, 1-4.
  11. Regmi, P., Simkhada, P., Aryal, N., van Teijlingen, E. (2022) Excessive mortalities among migrant workers: the case of the 2022 FIFA World Cup. Europasian Journal of Medical Sciences, 4:31-32. https://doi.org/10.46405/ejms.v4i0.455
  12. Regmi, P., Dhakal Adhikari, S., Aryal, N., Wasti, S.P., van Teijlingen, E. (2022) Fear, Stigma and Othering: The Impact of COVID-19 Rumours on Returnee Migrants and Muslim Populations of Nepal, International Journal of Environmental Research & Public Health 19(15), 8986; https://doi.org/10.3390/ijerph19158986
  13. Simkhada, P., van Teijlingen, E. and Regmi, P. (2022). Migrant Workers in Qatar: Not just an important topic during the FIFA World Cup 2022. Health Prospect: Journal of Public Health, 21 (3), 1-2.
  14. Simkhada, B., Sah, R.K., Mercel-Sanca, A., van Teijlingen, E., Bhurtyal, Y.M. and Regmi, P. (2021). Perceptions and Experiences of Health and Social Care Utilisation of the UK-Nepali Population. Journal of Immigrant and Minority Health, 23 (2), 298-307.
  15. Aryal, N., Sedhain, A., Regmi, P.R., KC, R. K., van Teijlingen, E. (2021). Risk of kidney health among returnee Nepali migrant workers: A survey of nephrologists. Asian Journal of Medical Sciences, 12(12), 126–132. https://doi.org/10.3126/ajms.v12i12.39027
  16. Aryal, N., Regmi, P.R., Sedhain, A., KC, R.K., Martinez Faller, E., Rijal, A., van Teijlingen, E. (2021) Kidney health risk of migrant workers: An issue we can no longer overlook. Health Prospect 20(1):15-7
  17. Aryal, N., Regmi, P.R., van Teijlingen, E., Trenoweth, S., Adhikary, P. and Simkhada, P., (2020). The impact of spousal migration on the mental health of Nepali women: A cross-sectional study. International Journal of Environmental Research and Public Health, 17 (4).
  18. Regmi, P., Aryal, N., van Teijlingen, E., Adhikary, P. (2020) Nepali migrant workers and the need for pre-departure training on mental health: a qualitative study, Journal of Immigrant & Minority Health https://link.springer.com/content/pdf/10.1007/s10903-019-00960-z.pdf
  19. Adhikary, P., Aryal, N., Dhungana, R.R., KC, R.K., Regmi, P., Wickramage, K.P., Duigan, P., Inkochasan, M., Sharma, G.N., Devkota, B., van Teijlingen, E. and Simkhada, P. (2020). Accessing health services in India: Experiences of seasonal migrants returning to Nepal. BMC Health Services Research, 20 (1), 992.
  20. Regmi, P., van Teijlingen, E., Mahato, P., Aryal, N., Jadhav, N., Simkhada, P., Zahiruddin, Q.S., Gaidhane, A. (2019) The Health of Nepali Migrants in India: A Qualitative Study of Lifestyles and Risks. International Journal of Environmental Research and Public Health, 16 (19). https://doi.org/10.3390/ijerph16193655
  21. Adhikary P, van Teijlingen E. (2019) Support networks in the Middle East & Malaysia: A qualitative study of Nepali returnee migrants’ experiences’ – International Journal of Occupational Safety and Health  9(2): 31-35.
  22. Aryal, N., Regmi, P.R., Faller, E.M., van Teijlingen, E., Khoon, C.C., Pereira, A., Simkhada, P. (2019) Sudden cardiac death and kidney health related problems among Nepali migrant workers in Malaysia. Nepal Journal of Epidemiology, 9 (3), 788-791. https://doi.org/10.3126/nje.v9i3.25805
  23. Adhikary P, van Teijlingen E., Keen S. (2019) Workplace accidents among Nepali male workers in the Middle East and Malaysia: A qualitative study, Journal of Immigrant & Minority Health 21(5): 1115–1122. https://link.springer.com/article/10.1007/s10903-018-0801-y
  24. Dhungana, R.R., Aryal, N., Adhikary, P., Kc, R.K., Regmi, P.R., Devkota, B., Sharma, G.N., Wickramage, K., Van Teijlingen, E. and Simkhada, P. (2019). Psychological morbidity in Nepali cross-border migrants in India: A community based cross-sectional study. BMC Public Health, 19 (1).
  25. Aryal, N., Regmi, P.R., van Teijlingen, E., Simkhada, P. and Mahat, P. (2019). Adolescents left behind by migrant workers: a call for community-based mental health interventions in Nepal. WHO South-East Asia journal of public health, 8 (1), 38-41.
  26. Simkhada, P.P., van Teijlingen, E.R., Gurung, M., Wasti, S. (2018) A survey of health problems of Nepalese female migrants workers in the Middle-East & Malaysia, BMC International Health & Human Rights 18(4): 1-7. http://rdcu.be/E3Ro.
  27. Simkhada, P., van Teijlingen, E., Sharma, A., Bissell, P., Poobalan, A., Wasti, S.P. (2018) Health consequences of sex trafficking: A systematic review, Journal of Manmohan Memorial Institute of Health Sciences, 4(1): 130-49.
  28. Adhikary P, Sheppard, Z., Keen S., van Teijlingen E. (2018) Health and well-being of Nepalese migrant workers abroad, International Journal of Migration, Health & Social Care 14(1): 96-105.  https://doi.org/10.1108/IJMHSC-12-2015-0052
  29. Adhikary, P, Sheppard, Z., Keen, S., van Teijlingen, E. (2017) Risky work: accidents among Nepalese migrant workers in Malaysia, Qatar & Saudi Arabia, Health Prospect 16(2): 3-10.
  30. Simkhada, P.P., Regmi, P.R., van Teijlingen, E., Aryal, N. (2017) Identifying the gaps in Nepalese migrant workers’ health and well-being: A review of the literature. Journal of Travel Medicine, 24 (4). https://doi.org/10.3126/nje.v9i3.25805
  31. Aryal, N., Regmi, PR., van Teijlingen, E., Simkhada, P., Adhikary, P., Bhatta, YKD., Mann, S. (2016) Injury and Mortality in Young Nepalese Migrant Workers: A Call for Public Health Action. Asian-Pacific Journal of Public Health 28(8): 703-705.
  32. Aryal, N., Regmi, PR., van Teijlingen, E., Dhungel, D., Ghale, G., Bhatta, GK. (2016) Knowing is not enough: Migrant workers’ spouses vulnerability to HIV SAARC Journal of Tuberculosis, Lung Diseases & HIV/AIDS 8(1):9-15.
  33. Adhikary P., Keen S., van Teijlingen E. (2011) Health Issues among Nepalese migrant workers in Middle East. Health Science Journal 5: 169-75.   www.hsj.gr/volume5/issue3/532.pdf
  34. van Teijlingen E, Simkhada, P., Adhikary, P. (2009) Alcohol use among the Nepalese in the UK BMJ Rapid Response: www.bmj.com/cgi/eletters/339/oct20_1/b4028#223451
  35. Adhikary, P., Simkhada, P.P., van Teijlingen E., Raja, AE. (2008) Health & Lifestyle of Nepalese Migrants in the UK BMC International Health & Human Rights 8(6). Web address: www.biomedcentral.com/1472-698X/8/6.

 

Congratulations on new paper by BU PhD graduate

Guidance, PG research, Publishing, Research Ethics, writing

Congratulations to Dr. Karim Khaled on the latest paper from his BU Ph.D. research.  This article ‘Ethical Issues and Challenges Regarding the Use of Mental Health Questionnaires in Public Health Nutrition Research‘ [1] was published earlier this month in the international journal Nutrients. 

Karim is currently based at Birmingham City University, and the paper is co-authored with his  Ph.D. supervisors Dr. Fotini Tsofliou and Prof. Vanora Hundley in BU’s Faculty of Health & Social Sciences.  This paper addresses the potential burden of completing mental health questionnaires on (a) participants and (b) researchers. This examines ethical issues and challenges of using such scales and questionnaires, providing a real-life case study where the Beck’s Depression Inventory-II was used.
The ethical considerations raised by using mental health questionnaires in epidemiological research include incorrectly identifying participants as depressed or non-depressed; inability to identify participants for referral procedures due to the anonymous nature of some research studies; an increased burden on participants through depression and suicidal questions; and the high expectation of participants towards the researcher. Preventative measures to reduce these challenges include choosing appropriate cut-off scores for correctly identifying participants; highlighting whether mental health questionnaires used may elicit negative emotional or psychological reactions related to suicide ideation; specifying the criteria for referral to clinical services; detailing the intended referral processes; including approaches where the researcher directly connects participants with a psychological service provider; and including a passive referral method such as contact details for participants to initiate their own referrals to clinical care.  The authors offer a guide for researchers aiming to collect data on mental health through questionnaires, and they conclude that ethical challenges should be considered and reviewed at all stages of the research project.

Well done!

Prof. Edwin van Teijlingen

 

Reference:

  1. Khaled, K., Tsofliou, F., Hundley, V. (2025). Ethical Issues and Challenges Regarding the Use of Mental Health Questionnaires in Public Health Nutrition Research Nutrients 17 (4): 715. https://doi.org/10.3390/nu17040715

 

 

BU student’s M.Res. paper read 500 times

international, open access, Publishing, student research, Women's Academic Network, writing

Yesterday ResearchGate alerted us that our paper ‘The importance of positionality for qualitative researchers‘ [1] has been read 500 times. This methods paper was only written last year by Bournemouth University M.Res. student Hannah Gurr, her M.Res. supervisors Dr. Orlanda Harvey, Dr. Louise Oliver and Prof. Edwin van Teijlingen in collaboration with Prof. Madhusudan Subedi from Patan Academy of Health Sciences in Nepal.

In the paper we remind qualitative researchers about the importance of critical reflection, and why they need to explain their positionality to readers of their work. This account can be relatively straightforward, but there are occasions when this process of reflection and outlining one’s positionality is much more complicated. This method-paper explains this process. It outlines, using examples of different occasions and situations, where and why such complications may arise, for example, around values and personal experiences. It concludes with further practical advice on writing the section on positionality for novice social scientists.

Well done Hannah!

Dr. Lou Oliver, Dr. Orlanda Harvey & Prof. Edwin van Teijlingen

 

Reference:

  1. Gurr, H., Oliver, L., Harvey, O., Subedi, M., & van Teijlingen, E. (2024). The Importance of Positionality for Qualitative Researchers. Dhaulagiri Journal of Sociology and Anthropology, 18(1): 48–54. https://doi.org/10.3126/dsaj.v18i01.67553

Research seminar and tech showcase 12.02.25: ICONIC (Intergenerational Co-design Of Novel technologies In Coastal communities) project

Fusion, innovation, PG research, Research themes

The Ageing and Dementia Research Centre are welcoming colleagues from Plymouth University to talk about the ICONIC project (see more details below) and showcase some of the technologies they have created.

 The team are interested in talking to any BU colleagues who work on co-design/digital health or immersive technologies and AI so please do come along (and let Michelle mheward@bournemouth.ac.uk know if would like to give a short presentation about your research).

 12th February 2025

11-1pm (presentations will be first and then tech showcase)

P222, Poole House, Talbot Campus

ICONIC Project

The ICONIC (Intergenerational Co-design Of Novel technologies In Coastal communities) project is exploring how co-design of novel technologies can support digital inclusion in Cornwall and Devon. The project recruited 99 participants to join intergenerational co-design workshops to create technologies that support access to environment, heritage, and community resources. The technologies include a social game, immersive heritage and underwater experiences, and a voice AI system accessed via a telephone call. The research team will be sharing their insights from the co-design process for each technology and discuss the effects of participation on digital inclusion.

  • Dr Rory Baxter is a Research Fellow at the Centre for Health Technology, University of Plymouth, working on the EPSRC funded Intergenerational Codesign Of Novel technologies In Coastal communities (ICONIC) project to address digital exclusion in Cornwall and Devon. The project involves the intergenerational co-design of technologies for supporting access to heritage, environment, and community resources. His previous work includes the ESRC funded GOALD and ERDF funded EPIC projects, which focused on digital health innovation co-design and evaluation to support healthy ageing. Prior to that he completed an EPSRC funded iCASE PhD, exploring human navigation and search behaviour, during which Rory developed VR-based experimental tasks using Unity, which were adapted for online platforms during the COVID-19 pandemic.
  • Dr Oksana Hagen earned a BSc in Electrical and Computer Engineering from NCTU (Taiwan), MSc in Computer Vision and Robotics through the Erasmus Mundus ViBOT program, and a PhD in Computing at the University of Plymouth. After a brief period in industry, Oksana joined Aldebaran AI Lab (France) under a Marie Curie Fellowship to focus on research in machine learning. She subsequently contributed to social robotics research for AgeIn project at the University of Plymouth. Currently, she is part of the ICONIC project, developing VoiceAI and underwater telepresence applications through co-design. Her research interests include machine learning, robotics and HCI.
  • Dr Marius Varga’s expertise sits at the intersection of game technology and user experience, with a focus on serious games and immersive experiences. Currently, a Research Fellow part of the ICONIC project, using a co-design approach, Marius leads the development of a multiplayer Social Game focused on seagrass conservation and for Extended Reality (XR), he is developing an immersive heritage experience in partnership with National Trust. Marius is also involved in digital health projects such part of Bridging project – focused on using XR training with autistic employees and employers and Glider project – addressing challenges in frailty through robotics, play and immersive technology.
  • Dr Linan Zhang holds an MA in East Asian Studies (Japanese) and an MSc in International Development from the University of Edinburgh. She later earned a PhD with Transtechnology Research at the University of Plymouth, where she developed a philosophical framework to ease the paradigm conflicts in knowledge sharing, drawing inspiration from an international health collaboration, a global health crisis, and the development discourse. She is currently an Associate Lecturer for i-DAT, a Research Fellow in Orbital Science, and the Media and Admin officer for the ICONIC Project at the University of Plymouth. Additionally, she serves as an Associate Editor for Leonardo Review.

Anyone can drown. No one should!

Awarded & submitted bids, international, PG research, Publishing, writing

The first editorial of The Lancet Public Health [1] highlights a public health issue close to our work in Bangladesh, namely the risk of drowning, especially in young children.  “Anyone can drown. No one should” are the words of the Director General of the World Health Organization (WHO) in its first Global status report on drowning prevention, published two weeks ago (Dec. 2024). According to  The Lancet Public Health this landmark report dissects the drowning burden globally, at the country level, and the trends since 2000, presents an overview of the key strategies to prevent drowning, and provides a benchmark for tracking prevention efforts in the future. Importantly, this report sheds light on a tragic, neglected, mostly preventable public health issue.

We are grateful to The Lancet Public Health for raising this important issue in 2025, since Bournemouth University (BU) is currently engaged in  research project in this field called ‘Sonamoni’.  This an interdisciplinary study is a collaboration with CIPRB (the Centre for Injury Prevention and Research, Bangladesh), the University of the West of England (in Bristol), the University of Southampton, the Royal National Lifeboat Institution (RNLI), and Design Without Borders (DWB) in Uganda.  Sonamoni aims to design and develop interventions to reduce the number of  young children drowning in Bangladesh.

This public health project is funded by the National Institute for Health and Care Research (NIHR) through its Research and Innovation for Global Health Transformation programme. For more information, visit the NIHR website.

The interdisciplinary team at BU includes three faculties and six member of staff: Dr. Mavis Bengtsson, Dr. Kyungjoo Cha, Dr. Mehdi Chowdhury, Dr. Yong Hun Lim, Mr. John Powell, and Prof. Edwin van Teijlingen.  We recently published the first paper ‘Drowning Prevention should be a Public Health Issue in Nepal related to this project [2].

 

References:

  1. Anonymous (2025) Anyone can drown. No one should. The Lancet Public Health, 10(1): e1
  2. Hossain, M. S., Pant, P.R., van Teijlingen, E., Sedain, B., Rahman, A. (2024). Drowning Prevention should be a Public Health Issue in Nepal. International Journal of Social Sciences and Management, 11(4): 83–87.

Impact of virtual reality on the well-being and travel experiences of people affected by dementia

BU Challenges, Fusion, Fusion themes, Knowledge Exchange, PG research, REF Subjects, Student Engagement

I am undertaking a research placement as part of my studies on the MSc Foundations of Clinical Psychology. In my role as a research assistant, I have been working on a project that aimed to introduce the idea of travelling using Virtual Reality headsets for people with dementia and their caregivers/ family members. Virtual reality (VR) technology presents a promising means of bridging geographical divides and empowering individuals with dementia to participate in their communities in ways that were not possible prior to diagnosis. Additionally, research has demonstrated the value of virtual reality in helping people with dementia remember their past, revisit their hometown, or most treasured vacation spots. The purpose of this project is to evaluate how virtual reality can support people with dementia with travel and explore the impact on their wellbeing.

This is a collaborative pilot research study involving BU staff from the Ageing and Dementia Research Centre (ADRC) (Dr. Michelle Heward, Dr. Catherine Talbot, Dr. Michele Board, Dr Aisling Flynn, Lyndsey Bradley) and the International Centre for Tourism and Hospitality Research (ICTHR) (Dr. Daisy Fan, Prof. Dimitrios Buhalis) alongside colleagues from PramaLife (Sue Warr and Jo Keats) and is funded with QR funding from the Department of Psychology. We collected data on campus, and I was able to support this and had an opportunity to engage with the participants. The participants were asked to come to 2 sessions. The first session consisted of a session in the Blended Learning Interactive Simulation Suite, also known as the BLISS room. In this room, the participants and their caregivers were given the chance to play interactive VR games of their choice on the walls or visit different parts of the UK, such as London and Oxford. The second session consisted of using the VR headsets, where the participants were able to use the headsets themselves, which allows them to virtually experience other parts of the world, by looking around and having access to a 360 view, of a location of their choosing, whether that be somewhere they had never been to or reminisce about places they have been.

Given this immense opportunity to relive and reminisce about their previous experiences around the world, and their respective homes, the reception was overall a positive one. The participants left feeling positive about having virtually visited places from their past and having engaged with places they have never been to or would like to go to in the future. They provided some useful insights and feedback to inform future research in this area. We now move towards analysing and publishing the data.

Roshin Sibu

For more information about this project please email Michelle mheward@bournemouth.ac.uk

Paper with a difference

international, open access, Publishing, writing

Last night ResearchGate informed us that our paper ‘Understanding health education, health promotion and public health‘ had reached 6,000 reads [1].  This reflective paper in an Open Access journal tries to bring a little more clarity in the confusion around the difference between the concepts of health education, health promotion and public health. We argue that such confusion does not limit itself to the individual terms but also to how these terms relate to each other. Some authors and public health practitioners use terms such as health education and health promotion interchangeably; others see them clearly as different concepts.

In this theoretical overview paper, we have first of all outlined our understanding of these individual terms. We suggest how the five principles of health promotion as outlined by the World Health Organization (WHO) fit into Andrew Tannahill’s model from 2009 [2] of three overlapping areas: (a) health education; (b) prevention of ill health; and (c) health protection. Our schematic overview places health education within health promotion and health promotion itself in the center of the overarching disciplines of education and public health. We hope our representation helps reduce confusion among all those interested in our discipline, including students, educators, journalists, practitioners, policymakers, politicians, and researchers.

The paper is co-authored by a primary school teacher based in Dorset, and four professors who have a combined experience in the wider public health field of over a century.

 

Prof. Edwin van Teijlingen

Centre for Midwifery & Women’s Health

 

References:

  1. van Teijlingen, K., Devkota, B., Douglas, F., Simkhada, P., van Teijlingen, E. (2021) Understanding health education, health promotion and public health, Journal of Health Promotion 9(1):1-7.
  2. Tannahill, A. (2009). Health promotion: The Tannahill model revisited. Public Health, 123(5),396-399. doi: https://doi.org/10.1016/j.puhe.2008.05.021

First EPPOCH study paper accepted for publication

open access, Publishing, writing

This afternoon the editorial office of Frontiers in Psychiatry informed us that our manuscript “Prenatal maternal mental health and resilience in the United Kingdom during the SARS-CoV-2 Pandemic: A cross-national comparison” [1] has been accepted for publication in Frontiers in Psychiatry, section Perinatal Psychiatry.   An interdisciplinary team from Germany, Canada and the UK designed and initiated a longitudinal pregnancy cohort in the United Kingdom titled Maternal mental health during the COVID-19 pandemic: Effect of the Pandemic on Pregnancy Outcomes & Childhood Health (EPPOCH).    In the second half of  2020, we recruited 3,600 pregnant individuals via self-enrollment through our website ‘www.eppoch-uk.org’. Our EPPOCH study has since collected a wealth of validated questionnaire data at multiple time points, from mothers (during pregnancy and postpartum) and their children (from birth to age 3), and we are currently distributing our 4-year childhood follow-up questionnaire. This is the first paper from the EPPOCH study.

The UK team is a collaboration between Bournemouth University and University Hospitals Dorset NHS Foundation Trust, the latter through Professor Minesh Khashu and Dr. Latha Vinayakarao based in Poole Maternity Hospital. The German team is led by Dr. Melanie Conrad, previously at Charité University Medicine Berlin, and now associated with the University of Augsburg, and includes Swarali Datye, PhD student at Charité University Medicine Berlin, whilst our Canadian collaborator, Alison MacRae-Miller, is based at the University of British Columbia, Victoria.  This EPPOCH cohort is closely linked with a sister cohort in Canada called the Pregnancy During the Pandemic (PDP) study.

 

Prof. Edwin van Teijlingen

Centre for Midwifery & Women’s Health

 

 

Reference:

  1. Datye, S., Smiljanic, M., Shetti, R.H., MacRae-Miller, A., van Teijlingen, E., Vinayakarao, L., Peters, E.M.J., Lebel, C.A., Tomfohr-Madsen, L., Giesbrecht, G., Khashu, M., Conrad, M.L. (2024) Prenatal maternal mental health and resilience in the United Kingdom during the SARS-CoV-2 Pandemic: A cross-national comparison, Frontiers in Psychiatry, (accepted).

Third INRC Symposium: Interdisciplinary Computational and Clinical Approaches at the Edge of Brain Research

Fusion, international, Knowledge Exchange, REF Subjects

Last month, we celebrated the third symposium of the Interdisciplinary Neuroscience Research Centre at the Inspire Lecture Theatre, entitled “Interdisciplinary Computational and Clinical Approaches at the Edge of Brain Research”.

This year, our symposium revolved around two linking themes: applied machine learning for understanding neuroscientific data and translational neuroscience. We choose to contrast these two themes because they show the breadth of areas of the centre and steer the debate on potential synergies.

The event started with an exciting talk by Prof. Miguel Maravall (director of the Sussex Neuroscience Centre of Excellence, Sussex University).  Dr Maravall presented new experiments testing the idea that the function of the somatosensory cortex -beyond processing input information about an object’s features- represents the decision to act and even the outcomes of such actions. The recording of this lecture is available here.

Next, the first session concentrated on computational approaches. In this focused session, we enjoyed three talks. The opening talk by Michak Gnacek (Emteq Labs Emteq Labs, Brighton and Centre for Digital Entertainment, BU) showcased his appealing results on affect recognition in Virtual Reality leveraging multimodal physiological recordings and continual machine learning. The second speaker was Dr Géza Gergely Ambrus (Department of Psychology, BU). Dr Ambrus presented gripping new findings that extend the application of multivariate pattern analysis beyond face perception to other facial characteristics to explore underlying neural mechanisms. Finally, Dr Matteo Toscani (Department of Psychology, BU) discussed a series of intriguing studies over the recent years on unsupervised learning approaches -such as avant-grade deep autoencoders- for inferring haptic material properties.

After this first session, Prof. Jonathan Cole (University Hospital Dorset, NHS) opened the second session centred on clinical neuroscience. In his inspiring talk, Dr Cole discussed his research on patients with congenital and acquired complete absence of touch and movement/position, showing how the absence of these senses leads to different alterations in proprioception. Next, Prof. Caroline Edmonds (Department of Psychological Sciences, University of East London) presented a fascinating study on real-life implications of co-occurring memory impairments in children with neonatal hypoxic-ischaemic encephalopathy. The study evaluated memory function in school-aged children with this condition who received hypothermia treatment and survived without extensive neuromotor impairment.

To conclude the symposium, Prof. Birgit Gurr (Community Brain Injury and Adult Neuropsychology Services Dorset at Dorset HealthCare University, NHS) and Dr Ellen Seiss (Department of Psychology, BU) introduced a compelling evaluation of the dynamic information processing programme, encompassing mental exercises fostering the recovery of patients from a stroke.

After the symposium, we visited the Multimodal Immersive Neuro-sensing lab for natural neuro-behavioural measurement (MINE), led by Dr Xun He.

All in the INRC would like to wholeheartedly thank the speaker and the attendees for the fascinating talks and exciting debates we had. If you are interested in getting in touch, contributing or joining the Interdisciplinary Neuroscience Research Centre, please do not hesitate to contact Ellen Seiss (eseiss@bourenmouth.ac.uk) or Emili Balaguer-Ballester (eb-ballester@bournemouth.ac.uk).

Thank you again for your interest, and we are looking forward to seeing you in our upcoming activities.

Kind regards,

Ellen and Emili, on behalf of all of us at the INRC

 

BU MSc Student, Sarah Clark, presents MSc dissertation research at BPS Division of Health Psychology Annual Conference 2024

conferences, student research

Sarah, who is a BU MSc Student studying Clinical and Developmental Neuropsychology, presented research from her MSc dissertation on Friday 7th June at The BPS Division of Health Psychology Annual Conference 2024.

Supervised by Dr Emily Arden-Close, Sarah’s dissertation delved into the daily experiences of autistic individuals with hypermobile Ehlers-Danlos syndrome (hEDS). This was lived-experience research as Sarah has both conditions herself, and therefore engaging with her study participants carried huge emotional relevance and importance to her personally.

The research found that traits commonly associated with autism, such as the need for routine and structure, significantly aid in planning daily activities and managing EDS symptoms. However, participants also highlighted the psychological challenges of having to adjust meticulously planned routines due to acute pain and fatigue flare-ups. This qualitative research underscores the complexity and challenges faced by those living with both hEDS and autism.

Sarah was diagnosed with hypermobile Ehlers-Danlos syndrome (a rarely diagnosed genetic connective tissue disorder) in February 2020. This diagnosis came after fifteen years of physical symptoms which were misdiagnosed as Emotionally Unstable Personality Disorder. Sarah has an extremely rare co-condition called Median arcuate ligament syndrome (MALS) and has studied for her Masters degree on a prescription liquid-only diet, unable to eat food.

Sarah was diagnosed with autism in May 2022, after realising she is autistic thanks to the lectures on autism on her MSc course at BU!

Acknowledging the transformative impact of formal diagnosis on her life, Sarah has embraced lifestyle changes and effective self-management strategies for her hEDS and various co-morbidities.

Sarah sits as a patient expert in the EDS International Consortium, Psychiatric and Psychological Aspects Working Group, and Sarah presented her BMJ paper, “Help me trust you after my misdiagnosis,” at The EDS Global Learning Conference in Dublin last August.

Alongside being a student here, Sarah also works at BU as a Student Ambassador, Digitial Marketing Ambassador and a member of BU PIER (as a member of the public). Passionate about medical education and raising awareness of rare health conditions, Sarah regularly engages in public awareness, volunteering, and charity fundraising.

Influenced by her own health journey and navigating the complexities of the healthcare system, coupled with Complex PTSD from childhood trauma, Sarah has developed a keen interest in various aspects of the diagnostic journey.

In March 2024, Sarah’s art exhibition “Seeking Meaning in Diagnosis” was held in the Atrium Gallery at BU. Sarah recently won the SUBU Award in the “Outstanding Contribution to Equality” category.

As well as being a patient expert, photographer and blogger Sarah is also a keen yogi and she was featured in Hotpod Yoga’s Move with Purpose Campaign, discussing her late-autism diagnosis.

To learn more about Sarah’s inspirational diagnostic journey – visit her website.

Congratulation on new interdisciplinary publication

international, Women's Academic Network, writing

Congratulation to Dr. Orlanda Harvey (Social Work), Dr. Terri Cole (Psychology) and Dr. Jane Healy (Criminology) who in collaboration with Jade Levell, a colleague at the University of Bristol, had their article ‘Explorations of attitudes towards accessibility and accessing domestic violence and abuse (DVA) perpetrator support programmes by victim-survivors and perpetrators across five European countries’ accepted by the journal Abuse: An International Impact Journal [1].  This paper reports on an international mixed-methods study exploring victim-survivors and perpetrators’ attitudes towards perpetrator support programmes. The study includes a questionnaire survey of victim-survivors and interviews with male perpetrators conducted in five European countries.

Results showed that of the 93 victim-survivors of domestic violence and abuse, half stated they would have stayed in their relationship with perpetrators if the abuse had stopped, and a similar number reported that they believed their relationships would have been different had there been help for the perpetrator. Analysis of perpetrator interviews showed that they faced barriers to obtaining support, such as being labelled a ‘perpetrator’ which, had they been addressed, may have enhanced their engagement with services. Whilst acknowledging the need for safeguarding and justice, this paper demonstrates the importance of reflecting both victim-survivor and perpetrator needs in order for perpetrators to fully engage with support services. Moreover, it highlighted the need to address the underlying societal issues related to hegemonic masculinity, which can lead to the abuse of women being normalised and the vulnerability of men being stigmatised, through education for young people around healthy relationships.

 

Congratulations

Prof. Edwin van Teijlingen

Centre for Midwifery & Women’s Health

Reference:

Harvey H.,  Cole T., Levell, J., Healy J. (2024) ‘Explorations of attitudes towards accessibility and accessing domestic violence and abuse (DVA) perpetrator support programmes by victim-survivors and perpetrators across five European countries’,  Abuse: An International Impact Journal 5(1): 26-45    https://doi.org/10.37576/abuse.2024.055