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Dementia toolkit to help patients, carers and healthcare workers – now live!

dementia

The aim of this Dementia Evidence Toolkit is to make all information publicly that is publicly available, available in a form that is clear and easy to understand for dementia patients, their families and unpaid carers as well as for staff working in health and social care. It will also benefit academics and those involved in decision-making both locally and nationally.

Launched at the beginning of August , the toolkit devised by Adelina Comas-Herrera, David McDaid, Professor Martin Knapp and colleagues, is the first of its kind globally, and is funded by the Economic and Social Research Council (ESRC). The Dementia Evidence Toolkit brings together more than 3,000 journal articles and 700 reviews of research studies in one place.

The toolkit is in the form of a comprehensive online database featuring the latest scientific evidence on what works in dementia care and treatment has been developed by the researchers at the Personal Social Services Research Unit, London School of Economics and Political Science (PSSRU at LSE).

Dementia is the fastest growing major cause of health-related disability across the world, and the health, social and economic impacts are increasing because of an ageing population. There are around 850,000 people in the UK with the condition, a figure expected to rise to 2 million by 2051. There are currently no cures for dementia which is associated with ongoing cognitive decline such as memory loss, problems with judgement and often some behavioural issues. Instead, the focus for healthcare services is on slowing down dementia progression using different care approaches.

Read the press release in full.

Dr. Fiona Kelly invited guest speaker at Cecily Saunders Institute, King’s College London

fiona Cecily SaundersOn 25th November, Dr Fiona Kelly attended the Cecily Saunders Institute at King’s College London as an invited guest speaker to present research on determining what aspects of the design of care environments might be important for people with dementia nearing the end of life. The key messages of her presentation were the importance of firstly assuming the ability of people with dementia to engage with the senses, whether through touch, sound, smell, sight or taste and then to provide the means of engaging with whatever sense was appropriate or possible. The presentation was followed by a panel discussion with the audience in which the practical application of design principles within hospital settings was debated. The consensus was that even small changes can make a big difference. Following the presentation and discussion, the panel made a commitment to include consideration of dementia design principles in staff education within the Institute.

Fleming, R., Kelly, F. and Stillfried, G. (2015) ‘I want to feel at home’: establishing what aspects of environmental design are important to people with dementia nearing the end of life, BMC Palliative Care. http://www.biomedcentral.com/1472-684X/14/26

BUDI at the Care and Dementia Show, Birmingham 2-4 November 2015

Dr Fiona Kelly, Dr Suyu Liu and Dr Michelle Heward represented Bournemouth University Dementia Institute (BUDI) at the Care and Dementia Show held at the NEC in Birmingham from 2-4th November 2015. The Care and Dementia Show is designed to provide education, products and services to any organisation responsible for the care of older people.
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This show attracted over 300 national exhibitors from many sectors of the care industry, including care home providers. This was a fantastic opportunity for BUDI to network and meet a range of potential collaborators. During the event we met over 200 delegates, many were interested in BUDI’s research and education services, including the MSc Applied Dementia Studies programme.

The show was a good opportunity to meet practitioners in the field of dementia care, and to see first-hand the range of products and services on offer to people affected by dementia.

BUDI Carers’ Forum 2015

On 9 September, we held our fourth annual Carers’ Forum. Our Carers’ Forum provides an opportunity to hear from local people who are caring for people with dementia on what matters most to them. We were also delighted to welcome Vivien Zarucki, Independent Financial Advisor, as our guest speaker who discussed the financial aspects of caring for someone living with dementia. Alison Adams, Information Worker from the Alzheimer’s Society, was also on hand to provide attendees with details about local support for people affected by dementia.

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In a parallel session, people with dementia participated in a range of activities (including using technology such as IPads), and talked to the team about what it’s like living with dementia locally.

Feedback following the event suggests that attendees welcomed the opportunity to share their views and experiences:

  • “Thank you so much for the whole experience. Once again we are very blessed with the care and encouragement we receive”.
  • “Many thanks to all that helped arrange the day, the person we care for enjoy meeting others who are in the same situation as themselves”.
  • “It was good to exchange ideas. People always know something you don’t”.

These views and experiences will enable us to focus our research, education and consultancy services around the issues that matter most to people who are affected by dementia.

FREE – Places for BU Staff and PhD Students for Creative Approaches in Dementia Masterclass

BUDI have a few free places available for BU staff and PhD Students to attend its masterclass entitled “Creative Approaches in Dementia” being held on Wednesday 30 September. This masterclass will be an interactive session which will be exploring the power and potential of creativity in supporting good practice and positive experiences of living with dementia.

Our speakers are:

Derek Eland, artist; Jonny Fluffypunk, poet; Andrew Baker, musician and Sharon Muiruri, drama specialist.

To read the flyer please click here . To book your free place please contact Dr Samuel Nyman at snyman@bournemouth.ac.uk

BUDI Financial & Legal Masterclass – 17 June

There are still places left for BUDI’s upcoming one day Masterclass on the Financial and Legal aspects of Dementia, to be held at the EBC, Landsdowne Campus this Wednesday 17th June.

We have a number of different speakers including Stuart Bradford from Coles Miller solicitors, Esther Donald from Bournemouth Borough Council, Malcolm Skinner, a legal writer for LexisNexis and Vivien Zarucki, an Independent Financial Advisor. It looks set to be an interesting and informative day with plenty of opportunity for participation and discussion.

Should you wish to book a place, please see the link below:-

http://www.eventbrite.co.uk/e/budi-masterclass-financial-legal-aspects-of-dementia-care-tickets-15779535014

Inspirational opening to the Interdisciplinary Research Week

The BU Dementia Institute kicked off the Interdisciplinary Research Week last night with an inspirational and interactive lecture on improving the lives of people affected by dementia in Dorset.

Professor Anthea Innes opened the week and then went on to explain the interdisciplinary research that her institute carries out and the importance of collaboration in the community.  She informed the audience how the language used to describe the people diagnosed with dementia can often be negative and derogatory and how people are often treated differently upon diagnosis.  The Institute work with care providers, hospitals, GPs, etc. to change their perception and enable better lives for those diagnosed with dementia.

Anthea handed over to her team to show some of the ways that lives can be improved and how a dementia diagnosis does not mean that you can no longer learn.  Andy Baker from the BUDI orchestra had half the audience clapping to the ‘oo-ah’ parts of ‘oo-ah Cantona, say oo-ah Cantona’ and the other half clapping to the ‘wood’ and ‘chuck’ in ‘how much wood could a woodchuck chuck if a woodchuck would chuck wood’.  This was not an easy task but a good demonstration of how to play your part in an orchestra.  He went on to show how his work had given people diagnosed with dementia the ability to learn something new and engage in a rewarding activity.

Clare Cutler then talked about the Intergenerational Technology club where school pupils have welcomed people with dementia and their carers into their schools to work together in an after school club where they have been learning to play on the wii, xbox and ipads together.  This way of working offers opportunities to educate younger generations about dementia and to combat associated stigma, ignorance and fear of what it might mean to live with dementia. 

Samuel Nyman ended the evening with an enthusiastic lecture on ‘Falls Prevention’ and how the amount of time we spend being sedentary increases our chances of falling and injuring ourselves.  Research has shown that the more active we are in our 30’s and 40’s will decrease our chances of developing dementia.  Samuel’s research is looking to develop behavioural change techniques that can be used to encourage a much more active lifestyle.  He showed a clip of people choosing to use an escalator instead of the stairs.  The stairs were transformed into a working piano overnight and usage of the stairs increased by 66% the next day. 

The IRW audience clapping to 'Oo-ah Cantona'

It was an excellent evening with a great opportunity for the audience to engage with the BUDI team.  I’ll end with just one of the positive comments from the audience, which was ‘Wonderful to hear from such enthusiastic and passionate presenters forging strong partnerships with those in the community. Many thanks.’

There are nine more interdisciplinary research events being held this week and so please do come along: https://research.bournemouth.ac.uk/interdisciplinary-research-week-2015/.  Today’s events are:

BUDI Open Public Meeting 2015: Dementia-friendly Communities

To coincide with Dementia Awareness Week (18-24 May 2015), on Wednesday 20 May 2015 from 12 – 3pm, Bournemouth University Dementia Institute (BUDI) are hosting their fourth Annual Public Open Meeting. This free event will showcase work that is being undertaken locally to make our community dementia-friendly.

There will be an overview of local progress in the following areas:

  • Becoming dementia-friendly in Dorset and Somerset
  • Dementia-friendly GP Surgeries
  • Home fire safety for people affected by dementia.

Alongside updates on the following creative community involvement projects:

  • Intergenerational IT Club
  • BUDI Orchestra
  • Gardening
  • Care Farming

Anyone interested in dementia-friendly communities is welcome to attend, for more information or to register for your free place:

Call us on: +44 (0)1202 962771

Book online at: http://www.eventbrite.co.uk/e/budi-2015-open-public-meeting-dementia-friendly-communities-tickets-14377261777