Tagged / collaborative research

Introduction to Patient and Public Involvement

Guidance, NHS, Research Ethics, Training

This half day course is an introduction to PPI and will:
1. Define PPI and why it matters
2. Explore the links between PPI and health equity
3. Explain how to deliver PPI and support those involved

It will be an interactive session, including input from someone with lived experience, talking about their involvement in research.

It will be delivered by Sue Bickler from the Involving People team at Help and Care, an organisation that ‘helps people and communities live the lives they choose’.

Sue has worked in the voluntary sector, local authorities, and health, and has substantial experience engaging with people and communities to ensure that services meet their needs.  Her current role brings together the four Healthwatch in Hampshire and the Isle of Wight (HIOW), ensuring that patient voice is central to decision making in the HIOW Integrated Care System and that people are equipped to support effective Patient and Public Involvement (PPI).

The session is funded by Clinical Research Network Wessex and is open to all health and care researchers working in Wessex including public contributors and community organisations.

Book your place here.  A link to the online training will then be sent to you.

Improving information for people taking part in clinical research

Guidance, NHS, Research Ethics

The Health Research Authority (HRA) has launched new Quality Standards to improve information given to people who are invited to take part in research. The Quality Standards have been launched alongside Design and Review Principles, which show researchers and Research Ethics Committees (REC) what the important ethical considerations are for participant information.

  • The new HRA Participant Information Quality Standards will help research organisations to understand what good participant information looks like, and will make clear to researchers what the Research Ethics Committees will consider as part of the ethics review, including the review of participant information. The REC will support researchers to create information that meets the Quality Standards.
  • The aim of the Quality Standards and Design and Review Principles is to make participant information better, and to make the way that RECs review that information more consistent. The documents set out the basic criteria that all participant information must meet, and covers language, accessibility, and mandatory content.

Next steps

The Quality Standards and Design and Review Principles will be phased in from autumn 2023. As study materials are prepared in advance, REC reviews of participant information will initially be presented to research organisations as recommendations as opposed to actions required for approval.

From December 2023, the Quality Standards and Design and Review principles will become mandatory and will be applied to all research applications submitted for review.

Changes to participant information are currently the most likely reason for ethics committees to give a provisional opinion. Using this guidance will increase the possibility of receiving a favourable opinion.

Available templates

Remember that BU has Participant Information Sheet templates that provide much of the required wording to ensure your participants are making a fully informed decision before agreeing to participate.

It is vital that when compiling your information sheets that you remember to include the HRA GDPR transparency wording.

Questions or concerns?

If you have any questions regarding these new standards or about clinical research in general, please email Suzy Wignall, Clinical Governance Advisor – swignall@bournemouth.ac.uk or clinicalresearch@bournemouth.ac.uk

NIHR Be Part of Research platform

Guidance, NHS, Research Ethics

The NIHR Be Part of Research platform is an online service that makes it easy for research participants to find and take part in health and social care research. Participants may search for trials and studies taking place looking at certain health conditions and in locations accessible to them.

Clinical researchers may also make use of the service to extend their recruitment and widen their recruitment methods, as the platform has been designed to make it easier for researchers and potential study participants to find each other.

Using Be Part of Research to recruit participants

To use the service for your recruitment, the study must meet the following requirements:

  • Be funded or supported by the NIHR. This includes studies on the NIHR Clinical Research Network Portfolio.
  • Have Research Ethics Committee approval to use the service as a recruitment tool.
  • Have a dedicated point of contact such as a pre-screener or website for interested volunteers to engage with your research team.

Getting your study onto the Be Part of Research platform

Once your study has been registered on either ISRCTN, ClinicalTrials.gov, or on the NIHR Clinical Research Network (CRN) Central Portfolio Management System (CPMS), your project will then appear on Be Part of Research. Given those visiting the site are mostly patients and members of the public, medical and scientific terminology should be omitted when writing your study summary, with plain English used to ensure the information is accessible to a broad audience. In order to do this, you should:
  • Keep it short – but don’t oversimplify it. The reader must understand what the study is trying to achieve.
  • Imagine you are talking to the reader.
  • Take out any jargon.
  • Make sure you cover the what, why, when, where and how so they have the basics of your study.

Additionally, to make sure that participants contact the appropriate person, the contact details provided on ISRCTN or ClinicalTrials.gov should be up to date and accurate. In general, the registry record should be monitored continuously so that any changes are reflected on Be Part of Research as soon as possible.

Further support/contact

If you have any questions regarding the platform or regarding clinical research in general, please email Suzy Wignall, Clinical Governance Advisor: swignall@bournemouth.ac.uk or clinicalresearch@bournemouth.ac.uk

The Journal of Asian Midwives’ 10th anniversary

international, open access, Publishing, writing

This week the Journal of Asian Midwives published its latest issue.  Celebrating a decade of publishing, this is the first issue of volume 10.  The journal is Open Access and freely available online for anybody who wants to read it (click here!).  In the editorial of this new issue the editors highlighted online events around the International Day of the Midwife, the ICM (International Confederation of Midwives) Triennial Congress in Bali, Indonesia in June, and the acceptance of the Journal of Asian Midwives by SCOPUS [1].  The editorial finishes by highlighting new additions to the journal, including the opportunity to submit short research proposals, or proposals for improvement in service or practice, blogs and from the next issue onwards, short view point articles.

 

Reference:

  1. van Teijlingen, E., Jan, R., Mubeen, K., Musaddique, A. (2023) Editorial – summer 2023. Journal of Asian Midwives, 10(1): 1–3.

Fitness to Practise paper published

NHS, Publishing, writing

Congratulations to Megan Jadzinski, Sara White, Sue Way and Dominique Mylod on the acceptance of their paper ‘How are Fitness to Practise processes applied in UK Higher Education Institutions? – A systematic review’ by the international journal Nurse Education in Practice.  All authors are based in the Faculty of Health and Social Science, or were as Prof. Sue Way retired recently.

Well done,

Prof. Edwin van Teijlingen

Centre for Midwifery & Women’s Health

Global Consortium in Public Health meets in Huddersfield

international

On Monday and Tuesday 18-19 June the University of Huddersfield will organize its Global Consortium in Public Health meeting. This meeting is the brain child of Prof. Padam Simkhada, he is Visiting Professor at Bournemouth University and based at the University of Huddersfield.  The event brings together public health researchers and experts from the UK, the USA, Ghana, Nepal, India, Qatar and Brazil to discuss the latest developments and challenges in the field. The Global Consortium in Public Health is an international network of public health researchers, practitioners, and policymakers who are committed to advancing the field of public health through collaborative research, education, and advocacy. The consortium provides a platform for sharing best practices and building future collaborations.

On Monday 19th June Prof. Edwin van Teijlingen will be talking about the REF 2028 and the importance of strong international partnerships in the fields of research and education.  BU’s Dr. Pramod Regmi was also invited to this event in Huddersfield, but he is on his way to Nepal as part of Bournemouth University’s Erasmus+ staff and student exchange with Manmohan Memorial Institute of Health Sciences (MMIHS).

Using participatory asset mapping and PhotoVoice in Nepalese alcohol study

international, open access, Publishing, writing

This week we received an email from the editorial office of  Perspectives in Public Health with congratulations on the acceptance of your paper ‘Participatory asset mapping and photovoice interviews to scope cultural and community resources to reduce alcohol harm in Chitwan, Nepal’ [1].  The lead researcher on this public health alcohol research project in Nepal is Dr. Ranjita Dhital, Lecturer in Interdisciplinary Health Studies in the Arts and Sciences Department at UCL (University College London).

The World Health Organization (WHO) suggests that in low and middle-income countries (LMICs) like Nepal, morbidity and mortality risks are greater per litre of pure alcohol consumed than in higher-income countries. This is largely due to poverty, poor nutrition, adverse living conditions, and poor access to care. These inequities are made worse by the dearth of understanding of the most appropriate and cost-effective approaches to reduce alcohol-related harm in LMICs.  Our study aims to stimulate new thinking on how cultural and community assets could be integrated to co-designed alcohol interventions for future evaluation in LMICs, through scoping the breadth of cultural and community assets in relation to alcohol use and to exploring attitudes towards alcohol and people experiences with it.

The journal Perspectives in Public Health is published by SAGE and the paper will be Open Access when it appears online.  My previous alcohol studies have focused on students [2], Nepalese migrants living in the UK [3], and Public Health measures to reduced alcohol misuse in Scotland [4].

 

Prof. Edwin van Teijlingen

Centre for Midwifery & Women’s Health

 

Reference:

 

  1. Dhital, R., Yoeli, H., Adhikari, A., Luitel, N.P., Nadkarni, A., van Teijlingen, E., Sin, J. (2023) Participatory asset mapping and photovoice interviews to scope cultural and community resources to reduce alcohol harm in Chitwan, Nepal, Perspectives in Public Health (accepted).  DOI: 10.1177/17579139231180744).
  2. Engs, R.C, van Teijlingen E (1997) Correlates of alcohol, tobacco & marijuana use among Scottish post-secondary helping profession students, Journal of Alcohol Studies, 58:435-44.
  3. van Teijlingen E, Simkhada, P., Adhikary, P. (2009) Alcohol use among the Nepalese in the UK BMJ Rapid Response: bmj.com/cgi/eletters/339/oct20_1/b4028#223451
  4. Ludbrook A, Godfrey C, Wyness L, Parrott S, Haw S, Napper M, van Teijlingen E. (2002) Effective & Cost-Effective Measures to Reduce Alcohol Misuse in Scotland: Lit Review, ISBN: 0755932803 www.alcoholinformation.isdscotland.org/alcohol_misuse/files/MeasureReduce_Full.pdf

 

BU Workshop on Health Systems in Nepal

open access, writing

You are invited to a two-hour ‘Workshop on Health Systems in Nepal’ at Bournemouth University (BU) on Thursday 25th May in the Bournemouth Gateway Building (BGB room 315) starting at 14.00, aiming to finish at 16.00.  We have the pleasure of welcoming three academic visitors from Manmohan Memorial Institute of Health Sciences (MMIHS) in Kathmandu who are at BU on an Erasmus+ exchange.

‘Prof. Sujan Marahatta, Dr. Sujata Sapkota and Dr. Sujan Gautam from MMIHS are part of an international project examining the consequences for the health system of Nepal’s move to a federal government structure.  This project, launched in 2020 at the beginning of the COVID-19 pandemic, is led by the University of Sheffield, in collaboration with BU, the University of Huddersfield, PHASE Nepal and MMIHS.  This nearly four-year project is UK-funded by the MRC (Medical Research Council), the Wellcome Trust and DFID (now called Foreign, Commonwealth & Development Office [FCDO]) under the Health Systems Research Initiative.

The project has resulted in several publications, all in Open Access journals.  The first of three papers introduced the research project ‘The impact of federalisation on Nepal’s health system: a longitudinal analysis’ [1], the second focused on COVID-19 when examining the effects of changing Nepal’s constitution towards a federal republic on its health system [2], and the third one highlighted  Public Health approaches around the ongoing federalisation of the state of Nepal and the associated decentralisation processes in its health system [3].

 

Prof. Edwin van Teijlingen

Centre for Midwifery & Women’s Health (formerly CMMPH)

 

References:

  1. Sapkota, S., Panday, S., Wasti, S.P., Lee, A., Balen, J., van Teijlingen, E., Rushton, S., Subedi, M., Gautam, S., Karki, J., Adhikary, P., Marahatta, S., Simkhada, P. for the Nepal Federal Health System Team (2022) Health System Strengthening: The Role of Public Health in Federal Nepal, Journal of Nepal Public Health Association 7 (1): 36-42.
  2. Rushton, S., Pandey, S., van Teijlingen, E., Subedi, M., Balen, J., Karki, J., Simkhada, P. on behalf of the Nepal Federal Health System Team (2021) An Investigation into the Impact of Decentralization on the Health System of Nepal. Journal of Manmohan Memorial Institute of Health Sciences, 7(1): 3–14. https://doi.org/10.3126/jmmihs.v7i1.43146
  3. Adhikary, P., Balen, J., Gautam, S., Ghimire S., Karki J.K., Lee A.C., Marahatta S.B., Pandey S., Pohl G., Ruston S., Sapkota S., Simkhada P.P., Subedi M., van Teijlingen E.R., on behalf of the NFHS Team (2020) The COVID-19 pandemic in Nepal: Emerging evidence on the effectiveness of action by, and cooperation between, different levels of government in a federal system. Journal of Karnali Academy of Health Sciences 3(3)